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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

Sepsis - raise awareness

78 replies

whoruntheworldgirls · 16/03/2023 13:27

Not AIBU but following a session I've just attended i wanted to share this as wide as i could

sepsistrust.org/about/about-the-charity/

Sepsis - raise awareness
OP posts:
goingtotown · 16/03/2023 13:34

Thank You.

WinterMusings · 16/03/2023 13:37

It's scary how fast sepsis kills.

Chevyimpala67 · 16/03/2023 13:41

Haha
Yeah right
I spent 12 hours telling hospital staff my mum had sepsis (again)
I was ignored and she almost died

Original poster
whoruntheworldgirls · 16/03/2023 13:41

There is also a school park you can request

sepsistrust.org/about/about-the-charity/our-current-campaigns/schoolsresources/

It is so scary how fast this can take hold

OP posts:
Scrowy · 16/03/2023 13:50

This video is currently shortlisted for an award raising awareness of Sepsis specifically in the farming community.

Hannah was 26 and the mother of an 8 month old baby.

WinterMusings · 16/03/2023 13:51

Chevyimpala67 · 16/03/2023 13:41

Haha
Yeah right
I spent 12 hours telling hospital staff my mum had sepsis (again)
I was ignored and she almost died

I'm sorry about your Mum. 🌸. I'm very sorry you were ignored 🌷

but I think that's MORE reason to raise awareness, not less. Hospital staff are people/posters too and the more people (non hospital staff) ask about sepsis, the greater chance they'll check for it.

in 1997 when my aunt died from
it, it really wasn't terribly well known about.
the greater awareness the better!

I've lost another family member to it this week. He didn't live near me or he'd have been forced into hospital. He didn't want to go as 'people go in & don't come out' (to be fair, that's happened too many times in his life). By the time he was forced to go it was too late 😢

WinterMusings · 16/03/2023 14:00

@Scrowy that's a very moving video. Hopefully it will get around the farming community 💕

it's good for everyone to watch, but in particular the 'tough nut' farming community. Being made of sterner stuff is brilliant, but not always a good thing 😢

NewNameWhoDis3 · 16/03/2023 14:27

Thanks so much for this @whoruntheworldgirls . I was hit with sepsis due to iGAS over this past Christmas. I've been out of hospital now for two months and can genuinely say I went from sepsis being something I'd never heard of, to sepsis being something that's completely changed my life. It is shocking how quickly things can go from a typical day, to fighting for your life. In my case it was about 12 hours. I had very few of the symptoms on the chart but luckily (?) it came on so quickly and aggressively that I was nearly in septic shock by the time A&E doctors got to me.

For me, it was a wildly fluctuating temperature, and a rigid, swollen abdomen (full of pus...) that gave it away. I was totally coherent, even making jokes to the surgeons as they prepped me for emergency surgery.

The UK Sepsis Trust have been an absolute godsend in my recovery; I wish I'd known about them while in hospital. Trying to recover from this is brutal on some days. They host a support group for survivors, and a different one from those bereaved. Anyone touched by sepsis would do well to get in touch. It can feel a very lonely road as it's not as widely known as some other life-changing health issues. Being able to hear my own worries/experiences voiced by others has been so reassuring.

LisaD1 · 16/03/2023 14:47

My aunt died of sepsis 5 years ago, on Mother’s Day. It takes hold so quickly, more people need to know the signs, thanks for sharing

Original poster
whoruntheworldgirls · 16/03/2023 14:48

Chevyimpala67 · 16/03/2023 13:41

Haha
Yeah right
I spent 12 hours telling hospital staff my mum had sepsis (again)
I was ignored and she almost died

I'm so sorry you went through that. I hope your mum i ok

OP posts:
Original poster
whoruntheworldgirls · 16/03/2023 14:51

NewNameWhoDis3 · 16/03/2023 14:27

Thanks so much for this @whoruntheworldgirls . I was hit with sepsis due to iGAS over this past Christmas. I've been out of hospital now for two months and can genuinely say I went from sepsis being something I'd never heard of, to sepsis being something that's completely changed my life. It is shocking how quickly things can go from a typical day, to fighting for your life. In my case it was about 12 hours. I had very few of the symptoms on the chart but luckily (?) it came on so quickly and aggressively that I was nearly in septic shock by the time A&E doctors got to me.

For me, it was a wildly fluctuating temperature, and a rigid, swollen abdomen (full of pus...) that gave it away. I was totally coherent, even making jokes to the surgeons as they prepped me for emergency surgery.

The UK Sepsis Trust have been an absolute godsend in my recovery; I wish I'd known about them while in hospital. Trying to recover from this is brutal on some days. They host a support group for survivors, and a different one from those bereaved. Anyone touched by sepsis would do well to get in touch. It can feel a very lonely road as it's not as widely known as some other life-changing health issues. Being able to hear my own worries/experiences voiced by others has been so reassuring.

I'm really sorry you went through this, i hope your on the mend now? I knew of sepsis and that it can be fatal but i didn't know of the charity or symptoms to look for before today, or that it can start from something so minor.

OP posts:
Original poster
whoruntheworldgirls · 16/03/2023 14:53

LisaD1 · 16/03/2023 14:47

My aunt died of sepsis 5 years ago, on Mother’s Day. It takes hold so quickly, more people need to know the signs, thanks for sharing

Sorry about your aunt Flowers

OP posts:
MamaCanYouBuyMeABanana · 16/03/2023 14:55

My daughter almost died from sepsis.

They didn't test for it, despite, as I know now, her having all the symptoms.

She ended up going into organ failure and took almost a year to fully recover, she was only 2, and, thankfully, healthy and happy now.

It's terrifying.

mumof31968 · 16/03/2023 15:01

A lady who I used too babysit her daughter, was poorly and turned into sepsis lost her legs and most fingers on both hands. But she's amazing let's nothing stop her.

Throwncrumbs · 16/03/2023 15:06

WinterMusings · 16/03/2023 13:51

I'm sorry about your Mum. 🌸. I'm very sorry you were ignored 🌷

but I think that's MORE reason to raise awareness, not less. Hospital staff are people/posters too and the more people (non hospital staff) ask about sepsis, the greater chance they'll check for it.

in 1997 when my aunt died from
it, it really wasn't terribly well known about.
the greater awareness the better!

I've lost another family member to it this week. He didn't live near me or he'd have been forced into hospital. He didn't want to go as 'people go in & don't come out' (to be fair, that's happened too many times in his life). By the time he was forced to go it was too late 😢

Show quote history

Sepsis has been known about for years, used to be known as septicaemia/septic shock, any doctor or nurse has known about it for yonks. It’s not a new thing, but because of over use of antibiotics there are now superbugs which make it harder to deal with.

WinterMusings · 17/03/2023 11:15

Throwncrumbs · 16/03/2023 15:06

Sepsis has been known about for years, used to be known as septicaemia/septic shock, any doctor or nurse has known about it for yonks. It’s not a new thing, but because of over use of antibiotics there are now superbugs which make it harder to deal with.

Show quote history

@Throwncrumbs

I know what it was called, my Aunt died from it!!

I didn't say Drs/Nurses didn't know about it at all, or that it was a 'new thing'

i said it wasn't really terribly well known about. Which it wasn't. People didn't recognise the signs, the bloody hospital didn't recognise the signs she died because it took them days to decide it was this relatively little well known thing called 'septicaemia'.

Raising awareness of it, is a good thing.

Can2022getanyworse · 17/03/2023 11:17

Chevyimpala67 · 16/03/2023 13:41

Haha
Yeah right
I spent 12 hours telling hospital staff my mum had sepsis (again)
I was ignored and she almost died

My mum was admitted straight into an oncology ward 10 days after chemo feeling dreadfully unwell (prime candidate for sepsis) and was wrongly diagnosed with dehydration. She died 36h after admission, hospital admitted fault.

Even the doctors aren't getting it.

Sapphire387 · 17/03/2023 13:33

I survived sepsis after my daughter was born. I deteriorated in hours and was in intensive care - thankfully made a full recovery.

I remember shaking uncontrollably as one of the symptoms.

I'm sorry to hear of those of you who have lost loved ones to this dreadful condition.

Locsup183 · 17/03/2023 13:39

@Sapphire387 Your experience sounds identical to mine after childbirth. I vividly remember the shaking and feeling like I’d never be warm again. Glad you made a full recovery

x2boys · 17/03/2023 13:45

My sister in law died from sepsis in 2015 it's scary how fast it can kill

elliejjtiny · 17/03/2023 14:01

I survived sepsis and so did ds in 2014. So many people I have spoken about it don't realise how serious it is.

BertieBotts · 17/03/2023 14:11

I lost somebody to sepsis a couple of years ago, it is astonishing and awful how fast it is. She only had one symptom (confusion) and her partner was quick to phone 999 but a few hours later she was in multiple organ failure and was gone.

Just horrific. She left behind a young child as well. I didn't know all of the signs. By the way, I see the reasoning behind the mnemonic but it's not very easy to remember.

jennyt82 · 17/03/2023 14:14

I lost my Mum last year from Sepsis, she got so poorly so quickly all from an infected cut.

SwayingInTime · 17/03/2023 14:17

I’m a midwife and happy to be reminded/ check in for the latest info.

This article is one of the saddest and most educational things I have ever read. It’s very scary.

amp.theguardian.com/lifeandstyle/2022/sep/03/13-year-old-daughter-dead-in-five-weeks-hospital-mistakes

Disneyforaweek · 17/03/2023 14:18

Such an important message

I had sepsis during labour but was extremely lucky that it was spotted straight away and the midwives/doctor's/consultant were absolutely on it so I had a good outcome.

It was a very scary time though, the feeling of being absolutely delirious is something I'll never forget.