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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask parents with ASD how you find parenting?

12 replies

1dalmation · 14/03/2023 15:55

Asking how being a parent with ASD do you find parenting regardless of weather to a child with ASD or not.
It's something we have been discussing with a view to starting a family.
I know asd is different for everyone but I'd be interested to hear from parents who've been there and done it, just experiences please, the good and the struggles.

OP posts:
stbrandonsboat · 14/03/2023 16:57

I have autism and adhd and I found it okay apart from ds1 had pda which was a nightmare and very demoralising to deal with.

The hardest things were:

Dealing with trying to get him help as camhs ran rings round me and I couldn't access help.

School also ran rings round me and basically told camhs he was fine, then they'd bitterly complain about his behaviour to me - some sort of weird gaslighting shit they had going on I think.

Dealing with things like World Book Day costumes, Easter bonnets, dress like a Guatemalan Tree Frog Day, make a scale model of the Taj Mahal out of matchsticks project etc. Utter nonsense. I used to keep my dcs off school for the day if there was something I couldn't face doing as a pda child isn't going to cooperate and do projects like that, no way. It all fell to me.

Stuff like cleaning the house, meal prep, laundry, being on time and shopping never caused me any difficulties as I'm a well organised person in spite of my difficulties.

Ds2, autistic, was bullied and secondary school was a nightmare. We pulled him out after only a few weeks. He then went to online school and received his education that way. You have to factor this in if you're having children. Autistic children are very vulnerable to being bullied.

1dalmation · 14/03/2023 17:02

Thank you @stbrandonsboat and yes I can agree with the bullying definitely been there and I'd hate to see my dc go through what I did.

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Itsonlyagame · 14/03/2023 17:04

I'm not diagnosed b6it almost certainly autistic and probably adhd too. My son is autistic and has adhd. My biggest struggles are forms, meetings, dealing with people that are supposed to help and lack of sleep. I love my son very much but his struggles are great which saddens me. My anxiety is off the charts since I had him. I am constantly on edge worrying about the future.

Itsonlyagame · 14/03/2023 17:04

He is a very loving little boy and there is nothing more wonderful than his cuddles.

DaveyJonesLocker · 14/03/2023 17:06

I need time off, but otherwise really manage well. Better than I expected. Better than I did before DS actually. I struggle with him climbing all over me mostly

SquigglePigs · 14/03/2023 17:07

I'm recently diagnosed autistic and have a 4 yr old DD. The thing I find hardest is that evenings used to be my crash or recharge time and now it's just even more input. Still haven't worked out the balance yet.

I think the other things I find hard everyone probably does. Although my autism means I have very heightened reactions to strong smells so I found the nappy phase particularly challenging (vomit inducing at times!)!

1dalmation · 14/03/2023 17:09

I also get very bad anxiety, I think I will be wary of professionals thinking I want good enough.
I also worry if I had an nt child would I would be able to teach them the social skills I lack.

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1dalmation · 14/03/2023 17:10

Sorry I meant if I would

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Itsonlyagame · 14/03/2023 17:11

I worried about my anxiety being an issue for professionals but they have mostly been really good about it. School asked me to be on the parents committee because they wanted sensible and organised parents, I was very shocked they thought of me like that! I feel that my autism gives me a better insight into ds's needs which helps me advocate better for him.

TomatoSandwiches · 14/03/2023 17:13

ASD ADHD inattentive, eldest and youngest ASD, it's frankly shit, all our needs are opposite, it makes parenting very difficult and a thankless, overwhelmingly frustrating daily task that never ends.
If I could go back in time..

1dalmation · 14/03/2023 17:20

TomatoSandwiches · 14/03/2023 17:13

ASD ADHD inattentive, eldest and youngest ASD, it's frankly shit, all our needs are opposite, it makes parenting very difficult and a thankless, overwhelmingly frustrating daily task that never ends.
If I could go back in time..

That's sounds really hard, I also have inattentive ADHD do you have much support?

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LizzieBet14 · 14/03/2023 22:58

My DD13 was diagnosed at 10 and masked heavily for years. We didn't suspect anything until she crashed and burned.
We love her dearly but it's nearly broken us and we have no family life. She is educated at home and holidays/days out/family celebrations are a thing of the past.

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