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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Grommets in, still hearing loss - adenoid removal?

80 replies

ENTnightmare · 14/03/2023 13:43

My toddler has suffered from frequent ENT infections since she was a baby. Mostly ear infections. She has delayed speech and communication as well as questionable hearing (although impossible to get a retest via NHS and private don't test under 3s where I am).

She was diagnosed with glue ear and managed to get her grommets out, I questioned if she could get het adenoids out - surgeon said wait and see as grommets usually solve the problem.

Well, 3 months later the problem hasn't been solved as although the glue ear may have cleared there is still significant pressure from the swollen adenoids so hearing and speech delay is still a major issue. I have tried to contact consultant but have just been told to wait until review which is almost a year away.

What do I do? I am fortunate enough if it comes to it we can go private, however we are under ENT care which is the hard bit.

Has anyone been through getting grommets in and the hearing loss not not being resolved until adenoid removal?

OP posts:
Thelonelychicken · 28/04/2023 15:50

I had bad glue ear as a child. My 1st op was grommets no major improvement. 2nd op grommets and adenoids improvement untill grommets fell out. 3rd op was grommets adenoids again and tonsils biggest improvement. Now I'm older I've had so many burst ear drums I struggle to hear now.

Dd had grommets, adenoids and tonsils 1st op and it's been amazing.

Ds is on the ent waiting list as he has a ear infection and burst drum every 6 weeks

AudiologistHere · 28/04/2023 15:51

@RandomMess great. I've never heard of APD treatment improving the hearing, that's interesting.

RandomMess · 28/04/2023 16:00

@AudiologistHere she had Johansen Individualised Auditory Stimulation.

Even listening to a standard programs for the first 6 weeks showed a massive change in her hearing curve. The brain is an amazing thing and her progress is used as a case study now. All done by chance because she used to come with a sibling for their appointment for something completely different.

annieannietomjoe · 28/04/2023 16:33

Been through this process, 4 sets of grommets, one removal and adenoids and tonsils removal...if grommets didn't work, I suggest having a private consultation to see what they suggest then perhaps approach the NHS and see what they say. I wish we had gone private sooner - so many operations when one would have fixed the problem.

ENTnightmare · 28/04/2023 18:53

annieannietomjoe · 28/04/2023 16:33

Been through this process, 4 sets of grommets, one removal and adenoids and tonsils removal...if grommets didn't work, I suggest having a private consultation to see what they suggest then perhaps approach the NHS and see what they say. I wish we had gone private sooner - so many operations when one would have fixed the problem.

Did you find the T&A solved issues the grommets alone didn't?

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