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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Please read! Any doctors/nurses/opticians on here?

78 replies

confusedfamilymember · 10/03/2023 22:17

Posted before but posting again for traffic- apologies, hope that’s allowed.

I have a close family member who has been unwell recently. We are worried about her and feel she needs more help than she is getting. We are trying to help as much as possible without stepping on her toes as she is an adult. If anyone can offer any advice or knowledge about what we could do as a family to help her it would be greatly appreciated. I will include all the information I’m aware of.

She would kill me if she knew I was posting on here so I will keep it as anonymous as I can!

She is in her early 20s and has been getting headaches. I’ve seen her with them and it’s awful. She throws up and is almost hitting her head off the wall with the pain. I don’t know how often exactly it happens but it is very regularly. She said it started around summer time. I don’t recall her being prone to headaches or sickness before then. She has had eye tests and she said her eyes are fine apart from finding out she has glaucoma- she had to go to the hospital straight away as the test for glaucoma was so high. She takes medicine for glaucoma now but she said the headaches and sickness are still happening. I believe she has been back to the doctor who told her it was migraine but she said last weekend that the medication she was given has not helped.

As her family we are obviously concerned and hate to see her unwell. I am by no means a healthcare professional but she seems very young to have glaucoma and headaches with sickness.

Incidentally she had a CAT scan after an unrelated injury which was fine. Is it fair to assume they would have picked up any brain problems on that scan? As I said I am not a healthcare professional but as a family we were worried about something serious. Would a CAT scan have ruled this out? Should she be asking for an MRI scan or another test?

She seems happy to involve us and tell us about it, but ultimately it’s her decision what to do going forward. She won’t admit it but I can tell she is feeling down about having no real answers or help. We wanted her to be referred for further help for her headaches but she said that the GP said it wasn’t needed. I don’t know what else they recommended as she hasn’t told me, but she did say that the GP wasn’t worried.

Has anyone any knowledge on this type of thing? Or what we could do as a family to help and support her? She said she feels like she is expected to live with it and these headaches and sickness are now part of her everyday routine. We just want to help her but don’t know the best way forward.

She hasn’t complained about it specifically but as a family we have also noticed how tired she is recently. She’s fit and sporty yet is always napping and dozing now. I know she had a blood test recently which she said was healthy, although she didn’t say what exactly was tested.

I have tried to include as much information as I can, if anyone has any knowledge or experience I would greatly appreciate it. We just want what’s best for her.

OP posts:
MyOldFriendTime · 11/04/2023 19:18

So is she going to book privately? Can she afford it? She needs it sorting once and for all.

NooNooHead1981 · 11/04/2023 19:33

confusedfamilymember · 11/04/2023 19:15

Just posting an update after speaking to her at the weekend.

Her optician checked her eyes again- she said that her optician has been brilliant throughout this all. She has a copy of a written referral letter now which she showed me, so she can now be seen either on the NHS or privately. She said that she wants to be seen privately.

She showed me her letter; she has a RAPID in her pupils in her eyes now. I’m not medically trained and my understanding of this is limited to information from Google but from my quick search it seems it’s a complex problem. Her glaucoma pressure behind her eyes is still high too according to the letter.

Unfortunately she seems to have it stuck in her head that she is being a time-waster and will not go back to the hospital for it via the NHS. I love her but she is bloody stubborn when she digs her heels in. Kids/young adults, eh! In fairness, I think she is genuinely frightened of coming across a dismissive doctor again.

Hi OP, does the RAPID in her pupils relate to the glaucoma?

Has she been told what type of glaucoma she has? Is it open angle glaucoma, or a less common type called narrow angles (which isn't technically glaucoma but can caused high intraocular pressure and the risk of an angle closure "attack" which could lead to sudden sight loss. Symptoms are very high intraocular pressure and severe headache).

I've got narrow angles in both eyes and had a laser iridotomy procedure so that they opened the angles more, which helped to reduce the pressures.

Forgooodnesssakenow · 11/04/2023 21:24

An RAPD is to do with the way her pupils react, 1 eye is not seeing well is what this tells us. She needs to go back to a consultant NHS or private asap. At this rate she's very likely losing sight irreversibly in 1 eye for something that would be treatable if she'd engage and follow up with her ophthalmologist.

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