To feel exhausted and deflated by the constant battle for Sen support for DC

[Squeakywheelfun]

Just that really. It's just so draining liaising with agencies and talking to school. Chasing up to get support that is promised but doesn't appear. It's just endless and relentless.
All that on top of dealing with the day to day challenges with a child with SEN.
Any tips on how to stay positive, keep going etc. Having a bit of a moment today after a difficult conversation with school/upset child. Wallowing a little ☹️.

You are not alone. It’s exhausting and I hear you. I’m not sure I have any tips, but you allowed to have moments and days where you allow yourself to wallow a bit. It’s tough enough to support your child, without having to battle the adult professionals who should actually be helping you.

*you are allowed

No advice. Just sympathy.
School for us have been very good but they can’t offer that much so it’s a constant negotiation of when DD is in and getting her there and back.
Also what school have offered us is working, but temporary with a view to getting her into lessons. She told me yesterday she never wants to go to lessons again. So we’re stuck where to go to. So back to school/agencies to negotiate.

Do you have a good support group? In my area we have a couple of Facebook groups and regular parent events at a local church hall. I have a network of mums and dads in the same boat and when we meet we either let off steam, describe how the system is so crap, compare schools etc. it makes such a difference having friends who actually understand.

It's tough. I feel the same way a lot. It's exhausting and it's not fair. It makes an already tough situation a lot harder 💐

It’s so hard.
My only advice is to pace yourself, and give yourself grace.

You’re not being unreasonable. It is draining and endless. As far as tips, sounds cliched and a bit impossible but can you do something nice just for you? Bonus points if it’s with a friend or partner to really make you focus on the activity and not your child/school/support for a while. A day off while they’re at school or an evening out so you can take a long walk/swim/go to a dance class/whatever floats your boat.

It is hard and exhausting. The one thing that has helped me is to schedule "time off" so on Mondays, I do no housework apart from switch machines on (dishwasher, washer, etc). I go on a long leisurely walk with ddog while kids are at school and then get a takeaway for dinner, usually more than one for three autistic sons with different food sensitivities, also a special one for me that no one else really likes.
It sounds ridiculous, but we all love Mondays now.
Also sleep whenever you can, otherwise things seem even worse. Let housework slide, get a cleaner if possible, I use carers allowance for a cleaner.

Thank you for the messages and solidarity. It means a lot. Lovely DH is taking me out for lunch tomorrow while DC at school. I'll take a breath and start afresh on Monday.