I have posted about this a few times on here before name changing- I last posted a few months ago (I think? I can't remember exactly!). I just wanted to start a new thread as its changed since then.
unfortunately its gotten much, much worse and im losing the will to live now. I feel so depressed and miserable and I hate my life so fucking much now. Its embarrassing, painful and im actually frightened that nothing seems to be helping it.
I have a skin problem on my scalp which causes patches of my skin to become red, open and wet. its as if the skin as been completely abraded off it, like in a skinned knee etc. Im not scratching it either - I have no nails as im a biter and I wear gloves anyway in case I was rubbing it during the night but im not.
It started out of the blue 3 ish years ago (I had no skin problems before) and then got really bad and was in my ears, face etc. Because the skin was permanently open wounds, it also got infected constantly. I've had around 8 different antibiotic prescriptions for it in total. I've also had different anti fungal treatments- everything from shampoos to solutions to oral tablets. I've had steroids- topical and oral. Some treatments made no difference. Some helped for a short while then it returned.
Its not going away. I've been seen by a dermatologist who diagnosed it as psoriasis. But other healthcare people have told me it looks nothing like that and now I feel so confused. Its not dry or patchy- its like huge big raw weepy patches of skin.
My problem now is that previously it was mainly around the back of my head, which was bad enough but bearable because it wasn't obvious, but its suddenly spread and is across my entire scalp now, including the top and at my hairline. its everywhere and getting worse. I dont really have much skin on my scalp at the moment- its probably 95% open wet wound. it looks as if someone has shaved the majority of my skin off.
I just want to scream, im so fucking fed up with this. I believe the doctor that its psoriasis, but it looks nothing like it and nothing so far is helping it. Its not like silvery plaques like in psoriases on google- its like huge wet open wounds. My entire head is sticky because my scalp is leaking stuff.
im at a loss. my doctor is at a loss. im waiting to see the dermatologist again and Im so frightened. is this going to be my life now? I know it sounds dramatic but its not just the embarrassment side, its excruciating and I can't lie down at night or have anything touching my scalp.
I just wanted to vent, and to post on here one last final time in case anyone is going through similar and has any advice I could try. I know some people have much bigger problems than this but its destroying my life right now😥