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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Migraine

33 replies

airfryerandelectricblanket · 06/02/2023 01:24

I suffer with awful migraines.

I am not sensitive to light but I'm sensitive to noise. The slightest noise feels like someone is stabbing me in my head. They make me feel so sick too. I can end up I tears.

I have to take myself off from others and try to sleep them off. It then takes a couple of days to shake off the after effects.

I've even turned a good promotion down at work because of them.

AIBU to get fed up with everyone saying they've got a migraine when they've just got a headache?

A colleague will sit at her desk and say she's got got a migraine and then ten minutes later is sitting there laughing and joking!!!! Seriously?!

If you don't suffer from them you don't realise how bad they are!

OP posts:
susanu67 · 23/10/2023 17:37

i am currently suffering a migraine attack.. its been going on for 2 months, i've just come out of hospital! i cannot stand up without falling over, i have a head ache, i have pain in my right eye and my right side of my face is numb and i cannot see properly and my tinitus is at level 10! i do not know how long this will last, I've started a course of medication, the last episode like this lasted 6 months.. but i am able to laugh at my condition! there is no 'one size fits all' migraine i'm afraid. To some people, a strong headache IS a migraine to them and who are we to say our pain is worse than theirs? We all know, it probably isn't a proper migraine, but then what is a proper migraine?

susanu67 · 23/10/2023 17:49

stayingaliveisawayoflife · 06/02/2023 07:23

I have hemiplegic migraines and mostly have little pain with them. I get the aura and then numbness down one side. I also confuse my words. When I catch it quickly with pain killers I can keep going. As a primary school teacher that does involve laughing and joking etc but believe me they are definitely migraines.

oh my goodness... i have just googled hemiplegic migraines! and this is me! for 10 years! I've just come out of hospital with suspected stroke.. there is no explaination for the right side of my face being numb or losing sight in my right eye... i've just read up on this and i am nearly 99% certain i now have an answer. I've always been diagnosed with Chronic Migraine.. but this just makes so much more sense thank you

stayingaliveisawayoflife · 23/10/2023 18:02

@susanu67 when I had my first one I was very overweight so a strike was assumed straight away. I had to have scans and a needle in my spine.

When I saw a neurologist he said it was typical hemiplegic migraine. There are lots of medications I can't take for it but there is lots of research going on and it is classed as a chronic form.

susanu67 · 23/10/2023 18:04

stayingaliveisawayoflife · 23/10/2023 18:02

@susanu67 when I had my first one I was very overweight so a strike was assumed straight away. I had to have scans and a needle in my spine.

When I saw a neurologist he said it was typical hemiplegic migraine. There are lots of medications I can't take for it but there is lots of research going on and it is classed as a chronic form.

i am over weight yes.. and ive been diagnosed chronic migraine for many many years but this is a new symptom i've been suffering for about 2 months now. and it just all makes sense and now i know i am not going mad! They have started me on Topiramate, and i am not currently working, they tested for MS and stroke both thankfully negative. I just feel such relief to have read you reply.. thank you

GonnaGetGoingReturns · 23/10/2023 18:12

I suffered from migraines in my teens and on and off up to my mid to late 30s when they sort of tailed off (I do get the odd one now). My worst ones were when I took the BCP in my early 20s and I had to try about 3 BCP before they got better. I did have a tablet to take but even then if I took it, it still was bad.

I’m lucky that people who know me like DM know exactly what they are. I recall once I was at DM’s house for Christmas, went out the evening before Christmas Eve and came back as my DM said looking like I’d been punched between the eyes! For people who’ve never had a migraine and try to sympathise with their headache stories I don’t bother though I do sometimes say “imagine a sledgehammer being pounded into one side of your head repeatedly, you may feel nauseous, dark room and sleep (and painkillers) are the only thing that helps. The next day you feel totally wiped out”.

Barleysugar86 · 23/10/2023 18:13

See I get what I would call migranes semi frequently. I can feel them coming on as my eyes are very sensitive and the front of my head pain is very tight, but I can function albeit uncomfortably for a couple of hours from that point, and if I'm quick with medication head it off entirely.

If I don't take medication in those first few hours and let it progress I feel very nauseous and it gets quite unbearable, I need to be in a dark room. But 50% of the time even after its made me feel sick- the next day I'm fine.

I think it is possible to have milder versions of a migrane? Both my parents suffered with them so I do think I'm genetically predisposed to them, although I don't get the dancing lights effects my mum does.

Lancrelady80 · 23/10/2023 23:41

3 days laying down in a blacked out room is the only thing that helps. Any attempt to power through or get rid using painkillers just results in it being worse and progressing to vomiting. :-( Generally brought on through stress/tiredness/not enough sleep, but sometimes out of the blue.

Happened to mention to optician that I sometimes get almost snowfall type pixellation in one or both eyes and he nodded wisely and said, "aah, optical migraine, no headache but visual disturbance." So that was a new one, as couldn't convince GP I had migraines as no aura/visual issues at time of "headaches" and was not aware you could have visual migraines with no head pain!

Cloverforever · 23/10/2023 23:53

pineapple360 · 26/05/2023 13:33

YANBU

However we do need to be mindful that people experience migraines differently.

I get migraines sometimes, not the typical presentation of them, but I've been subject to "the migraine police" (not saying this is you OP!) who love to say "oh you can't possibly have a migraine because you aren't experiencing xyz" and tell me I have "no idea what a real migraine is like" and "that's definitely not a migraine, you couldn't do xyz if it was".

I definitely think people use the terms headache and migraine interchangeably though which makes light of people's suffering.

I agree. My Dd has been diagnosed by a consultant neurologist as suffering with chronic migraine. At the appointment my dd disagreed with the doctor, saying she didn't think it was migraines, and when she was asked to describe her symptoms again the Dr said yes, it was - but that a migraine wasn't always how people commonly thought of them. I can't remember the definition now, but it did surprise me.

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