Please please please someone help me

[Fedupwithallthis2]

I’m not exaggerating when I say that this is ruining my life. I really need help from someone but I don’t know what to do or where to go.

ive been getting horrendous headaches for the last few months and I actually think I’m going to have a breakdown about it. I’ve been to the doctors and been told different things each time, migraine, stress, tension etc but regardless of what it is, nothing is helping. I’ll describe the headaches below and I’m praying that someone recognises a feature and knows what it is and how to stop it.

1. it started off a few months ago and at first the headaches were occasional and it got worse and right now it’s everyday or every other day.
2. they start around lunchtime/afternoon and get worse throughout the day. By dinner time they are unbearable and by night time it is horrific
3. The pain is almost always on the right. It’s a throbbing ache around my right temple and right eye area. It feels like someone is actually drilling through my eye
4. random things make the pain worse- sneezing is horrific, as is coughing, moving in general but especially bending down or moving my head down eg to tie my laces and then bringing it back up. The other thing that makes the head so much worse is lying down, the light, touching my right temple/eyebrow area or physically passing stools , it honestly feels like my head is going to explode.
5. Nothing helps- I’ve had stuff from the doctor and OTC and I’m currently chewing painkillers like sweets and it barely takes the edge off it
6. I feel sick and occasionally dizzy with them. I’m not always physically sick but sometimes am from the pain
7. im not tired, I’m not stressed, I’m not dehydrated and I can’t think of any reasons this is happening
8. ive been to the optician and I don’t need glasses
9. i get really irritable with them. Little things annoy me and I want to scream and cry or explode all the time
10. lying down and sleeping for a little nap or a few hours makes it so much worse afterwards. But lying down and sleeping for 12+ makes it a bit better but then it starts to come back at lunchtime after I wake up anyway

please, if anyone has any advice or ideas I’m actually desperate this is ruining my life. My doctor won’t do anything and said even if I do get a referral it will take well over a year anyway and I can’t afford private. I’m really struggling and honestly feel like I could smash my skull with a hammer to get relief

please someone help me😢

I have this. It’s Ideopathic Intercranial Hypertension. I had an MRI, CT with contrast, blood tests, lumbar puncture and appointments with ophthalmology to diagnose. Can be controlled with medication.

Hormonal migraines. I get these and they come in clusters.

Try a painkiller with a muscle relaxant (eg the version of Syndol that has dozylamine in) and take it at the very first sign of a shadow of a headache. Sometimes that gets rid of them for a month until the next hormonal surge.

Keep a diary of dates and times and everything else like food, water intake etc

Breaking the cycle of pain is important. Two paracetamol+two ibuprofen together at the first signs can also stop it in its tracks. I find once I've let it get to the throbbing/nausea stage it lasts a few days on and off

You need to stop being so apologetic about this. You are in pain, a lot of it, a lot of the time. And honestly you need to get as pushy as you can. Just because you're getting blown off, it doesn't mean you're right to be blown off. I had this for quite a while with much milder symptoms than you, mostly just horrendous fatigue and was then diagnosed with a Grade 4 Glioblastoma. I don't remotely think this is what you have and am not saying that to scare you at all. Yours is completely different to mine but what I am saying that since then I now completely push for anything I think is wrong. You need to be your own best advocate. Do not play down symptoms, do not think oh I shouldn't go to A&E because it isn't an emergency. If you're suffering this much something needs to be done properly. And waiting a year for a scan is ridiculous considering you have already tried to address this several times.