Good morning,
I’m posting here for traffic as I don’t really get a response in the other thread - it’s really long winded and completely outing so NC.
My 24 month old son has had some issues since he was born, he’s always been late on his milestones and still cannot walk or talk. It’s strange because at just turned 1 he could say around 15-20 words and now he can only say 2 which are dada and tah and that’s it.
As a new born he seemed very much in his own world, he never responded to his name - he does now but it’s not consistent however he does maintain some eye contact and smiles.
In November at 22 months old we saw a paediatrician who advised us he has low muscle tone, severely delayed and has GDD and wasn’t sure if he was on the spectrum so the plan was to refer to physio, refer to speech and language when he turned two, invite the portage team round and reassess in six months to see if he does need a ASD referral.
They took bloods which I assume was all clear as no one has been in contact.
We had the physio via video call and the physiotherapist said that his muscle tone is normal and he absolutely will walk in his own time and discharged him which was a bit like oh okay but it’s been 11 weeks and there’s still no improvement and I’ve noticed he can’t sit up or get up from lying on his back and he can’t hold his own weight, his legs literally buckle under him and he’s never been able to hold him up (he’s massive as well, he’s in 3-4 year clothes so I think that hinders him a little).
The speech and language waiting list is 24 months so no help there, nothing can be done about that which I appreciate.
The ADD potential is getting worse to, he barely eats and when he does we have to separate his food into separate plates so if we have Spag Bol, he needs the sauce in one bowl, the pasta in another and the veggies in another etc it’s literally a deconstructed meal and the washing up is horrendous haha but even that’s not full proof, the other day he had two packets of quavers for tea as he wouldn’t eat anything else which is having an affect on his bowels - from May until November every time he pooed it was diarrhoea and now it’s constipation which really painful bowel movements - poor lad doesn’t get a break.
I’ve made a list of what I want to discuss at the next appointment which is lines toys up and plays with wheels, stims - rocks back and forward, flaps his hands, flicks his fingers, doesn’t want people in his space, doesn’t really play with other children unless it’s on his terms, not really affectionate unless on his terms, makes unusual sounds, can’t speak, food aversion - we need to separate food and sometimes that’s not enough, has a melt down when he sees people he should know such as grandparents etc,“Spaces out” a lot, was scared of wrapping paper on his birthday and Christmas, covers his ears and closes his eyes a lot, does respond to his name but not consistently, stuffs his mouth full of food, doesn’t like change in routine, hyper focuses on tv, has bowel issues - constipation and diarrhoea, doesn’t pretend play consistently, can’t follow instructions such as “can you pass daddy the nappy’, gets very upset if he does not like a certain taste, smell or sound, won’t maintain eye contact but can give eye contact, withdraws in public spaces, repeating same phrases, seeks out sensory things - pressure, fiddling things, withdraws from social situations, still can’t walk or talk and I’ll keep adding or removing until the appt but it’s another four months away and his behaviour is challenging and I don’t know what else to do?
Any suggestions please.