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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

End of life care

4 replies

Whatistheanswer2023 · 09/01/2023 07:32

I think here there was a fundamental breakdown in communication but in reality what the Nursing Home did was in the best interests of Antonia. I say this as a Granddaughter who is watching my Grandmother‘s capacity mentally and physically lessen. She’s been in and out of hospital and is now in a dementia care home. I genuinely feel if more of the wider public saw inside this homes, not the case. My grandmother is washed and fed. She has a comfortable room.

But the quality of life, there are people lying in bed all day. Confused people wondering around. These were people like my Nan who probably led full lives before this cruel disease took hold.

last April when my Grandmother was in relatively decent way and had capacity she talked about now now in her late 80s she had lived a good long life. She knew how she would deteriorate. She did not want her life prolonged. But here we are prolonging it.

I know measures would have to be put in place to prevent foul play so to speak.

I feel heartbroken thinking of my Nan.

BBC News

OP posts:
zingally · 09/01/2023 10:57

My grandma was in the same situation when she passed. She was in a dementia care home. Happy enough, mobile, talkative. But then she had an unexpected fall and broke her pelvis.
Because of her dementia, she couldn't remember that she needed to be careful, lie still etc. So she got distressed and her mental state worsened rapidly because of the pain and confusion. She stopped eating and drinking, so developed a UTI, and that was basically the end of her. From her fall to her passing was less than 2 weeks.

Although it was obviously sad that she'd passed, she was in her mid-80s, and her quality of life was pretty low. I think there was some relief that she'd gone.

Whatistheanswer2023 · 09/01/2023 13:44

@zingally i anticipate but of course do not want that to happen to my Nan. But she’s had falls in the home prior to entering the Nursing Home. She walks with a frame in the home. She does sit out of her room most days.

I just think it’s unfair. I wouldn’t want to live like her, she gets confused and tearful.

OP posts:
user1471505494 · 09/01/2023 13:49

I totally agree wit you. A dementia ward in a nursing home is not somewhere I want to end up in even with excellent staff. What I find very worrying is that this family want to have cameras in the rooms so relatives can watch. What ever happens to privacy for the vulnerable

bloodyeverlastinghell · 09/01/2023 17:43

I work in a care home at the weekend, housekeeping, there is no way they will start putting cameras in the rooms. Can you imagine allowing any vulnerable group of people to be filmed being hoisted and having incontinence pads changed. Or being washed whilst sitting on a commode.

People die, it is sad but at some point death comes to us all. There is little point pumping antibiotics into old people whose quality of life has deteriorated tremendously. It’s much kinder to manage pain through end of life care than to drag it out.

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