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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be really worried the NHS will say no more glasses for my DD?

106 replies

DontTakeThemAway · 22/10/2022 12:42

DD is 8 and got glasses in November 2021. She has an eye condition which was picked up by the health visitors at her 10mo check and she’s been under a consultant ever since. She had surgery in December 2020 to try and help the condition (she’ll never get rid of it) and it helped a bit but not a lot, so the consultant said glasses was the next stage to try before another operation.
The prescription itself is tiny (+0.75 in each eye) but there’s a special coating on the lenses that apparently really helps the eye condition - I think it's the extra thin plus anti glare/reflect.

It’s worked, because I have a completely different child with glasses than without. No more silly accidents in the school playground, no more falling over as we walk to school or anywhere, no more having to take the car everywhere as she can be trusted to walk and look around and see things! She’s also gone up 6 bookbands at school and is well on her way to being pulled off the scheme completely. Her confidence has also improved as well, so much so she put herself forward for school council this year (didn’t get it but it’s a massive improvement for her to actually go for it!)

She was without her glasses for 2 weeks in the summer when they broke and she was back to falling constantly; lots of grazed knees and bruised hands from falls. She had a nasty accident at holiday club where she fell down 3 concrete steps trying to walk between rooms (held in a different school to hers with portacabin classrooms and she needed to go from one portacabin to the hall and fell down the stairs) she was thankfully ok but an ambulance had to be called and she spent the night in hospital for a concussion and a broken arm. Again since having her glasses she’s completely fine and never had a repeat.

We had a checkup for her condition earlier this week and her consultant said her eyes have improved since having the glasses that she will now have to “justify” such a small prescription to NHS England. I told her all about the falls and the difference in my DD since getting her glasses and the consultant said “I know, if it was up to me she’d keep themwe just have to hope they agree".

I am literally at the point that I will do anything to have my DD keep her glasses. She loves her glasses, she tucks them into the case at night and says goodnight to them, if anyone says anything negative about them she replies “But at least I can see”. She also looks incredibly smart and grown up in her glasses.

Is there anything I can do to make sure she keeps her glasses? Or is this going to be something else I’m going to have to pay for? I will pay for it privately if needed but I'm a single parent so it will mean it comes from somewhere else to pay. I know the glasses are expensive to the NHS because we take the prescription to an optician and we always have to wait as it goes to the NHS for approval (usually wait 3-4 weeks instead of the standard 2 for her glasses).

OP posts:
Keyansier · 22/10/2022 12:45

I'm not an expert and don't know if this would help, but could you record her day-to-day struggles without her glasses on your mobile and if it does get rejected, email the clips to the NHS and appeal?

SquashesPumpkinsAutumnBliss · 22/10/2022 12:47

Hope you can. Perhaps evidence the ambulance trip, medical treatment and hospital stay. Much more costly than glasses.

Fluffluff · 22/10/2022 12:47

Can you get school to write a letter.
The prescription is so so so small I don't understand how it's helped without knowing the eye condition.
I'd have thought just quoting the eye condition to nhs England by the consultant should be all that's needed.

DontTakeThemAway · 22/10/2022 12:49

Fluffluff · 22/10/2022 12:47

Can you get school to write a letter.
The prescription is so so so small I don't understand how it's helped without knowing the eye condition.
I'd have thought just quoting the eye condition to nhs England by the consultant should be all that's needed.

@Fluffluff Apparently it's to do with helping her spacial awareness and depth perception. I don't really understand it myself all I know is that I have a completely different child in a good way since she got her glasses. She started with a prescription of +2 in each eye which was apparently a bit more justifiable.

OP posts:
Simonjt · 22/10/2022 12:50

Is it me or has an identical thread been posted before?

BodenCardiganNot · 22/10/2022 12:52

How much do the glasses cost?

frangz · 22/10/2022 12:55

Just buy them if they aren't free on nhs. Nhs can't fund everything that people want.

MarshaMelrose · 22/10/2022 12:56

If you do have to pay, I get mine from Asda, £45, and it includes being made thinner and all different coatings. I think children's might even be cheaper.
Hope you get them on the nhs, though. The nhs waste so much money on equipment, that I don't see why they shouldn't pay for this.

Worthyornot · 22/10/2022 13:03

Knowing this is such a critical issue for your dd, surely you can save towards this? You've known about it for a good 8 years. How much are the glasses?

TheSoapyFrog · 22/10/2022 13:07

If she still had the glasses, but without making the lenses thinner, and taking away the anti-glare coating, would she still be OK?
I ask as these are usual optional extras for aesthetic purposes or for when you are severely short sighted and your lenses are really thick and heavy.
I used to add them to my glasses until I financially couldn't afford to do so, and have them without.

2bazookas · 22/10/2022 13:09

NHS funding works on an approved protocol, which can be appealed. It sounds as if you have the Consultants backing.

DH needed a dental treatment ; NHS dentist knew it exceeded the cost limits so might be refused by area NHS funding and it was.

Backed by NHS dentist, DH appealed the refusal, it was reconsidered, approved, and funded.

Alocasia · 22/10/2022 13:12

What is her eye condition?
Realistically a +0.75 prescription is unlikely to make much difference for most 8 year olds, and having the lenses thinner doesn’t change the optical properties.
Are the glasses prescribed by the consultant or by an optician?

Ineedsleepandcoffee · 22/10/2022 13:15

People expect glasses to be just for short sight or long sight but there are other conditions that benefit from filters or prisms in the lenses.

TeapotsLoveYouLots · 22/10/2022 13:15

Sounds like nystagmus with the poor depth perception, issues with glare etc.
If she has a diagnosed medical condition that means these symptoms are part of her eye condition then part of the NHS should continue to fund even if her prescription does change to 20/20, as its not just the vision but the acuity and perception that needs to be taken into account.

LoveMyCats1 · 22/10/2022 13:17

My sons vision is awful he has bottle topped lenses and I have to pay for anti-glare and to get them thinned it was £80 for his current 'free' NHS glasses just for that as he picks free frames. How much would it be?

JackieCollinsExistentialQuestionTime · 22/10/2022 13:18

It’s a difficult one with glasses. The NHS have a tiered contribution for prescriptions that are hard to negotiate.

My daughter has very poor vision and has required varifocals since she was 6. Even then, the highest contribution from the NHS is a couple of hundred so we have to pay another £100ish on top to ensure the best type of varifocal, for people who can’t afford it the field of vision in the lenses isn’t so great.

I’m so grateful we can afford it because having to sit there with your child and say ‘we can only afford for you to see a bit’ would be rubbish. So yeah, it’s a tough one even when your child’s eyes are very bad - so you might need to prepare to pay for them yourself unfortunately.

LoveMyCats1 · 22/10/2022 13:21

I'm a single parent but I'd never not pay it as it's what he needs.

bellac11 · 22/10/2022 13:21

Could you claim DLA for the disability caused by the condition and use that money to pay for the glasses?

Soontobe60 · 22/10/2022 13:22

When we are in the middle of an economic crisis, why are people suggesting she just saves up?
OP, your DD should not have to pay for her glasses!
get her school to write a letter showing what progress she has made since having them, and what happens when she doesn’t have them.
If I were stood next to you right now, I’d pay for them for you.

DoubleBuggyDriver · 22/10/2022 13:22

Are the lenses that she needs not able to be bought privately or something? Can you not just buy them yourself if it came to it? Maybe I’m missing something here

LoveMyCats1 · 22/10/2022 13:22

Op how are you getting thinning and anti glare funded? I need it funded 🙈

Finerthings · 22/10/2022 13:22

I don't know but first and foremost, she could continue with the glasses she has for a while. Also opticians vary wildly in price, so it is well worth shopping around. I know the cheaper places won't always do the more exotic prescriptions but you only need to find one. But hopefully with the consultant in your corner it won't come to that.

Vikinga · 22/10/2022 13:23

That's rubbish op. Maybe speak to your GP?

Sirzy · 22/10/2022 13:24

While under the consultant surely her writing the prescription will be enough? We just take that to Specsavers and that’s that.

i would imagine it will be when she is discharged it may be an issue. But if she has a low stable prescription she shouldn’t need them replacing too often hopefully

good luck

sicklycolleague · 22/10/2022 13:24

Not really sure what answer you’re after OP. She currently has the glasses so surely unless they break again this isn’t an issue? What if her eyes improve so much that she actually no longer needs them? Agree with PPs that you stand a decent chance of getting them on the NHS with consultant backing, and there are low-cost options (Asda, GlassesDirect) if you can’t