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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask for successful prolapse repair surgery stories? Really struggling.

62 replies

Inghean2 · 03/10/2022 16:39

I'm 35 and have been diagnosed with a large rectocele and also uterine descent.

Exhausted physio and pessaries and now I've been given a date for surgery soon.

When I look it up, all I seem to find are cases where other prolapses appear after, or where surgery only lasts at most a few years then the repair fails and it comes back Sad

I'm in so much discomfort, and have such issues with bowels because of it, sex is a big problem. My quality of life is bad and looking up the stats and surgery stories is getting me down so much.

Sorry for the AIBU traffic-posting, I am just so scared and could really do with hearing some success stories where repairs (non mesh) lasted more than a few years.

Can't help but think if men had these issues there would be a cure by now..

OP posts:
Whoneedsleep · 16/11/2022 08:00

@Bridget944 can you get a second opinion? I’m on the list for a private specialist because the NHS is a joke.

Wherediditallgo · 16/11/2022 20:04

@Bridget944 You can self refer to womens health physio. They are fantastic and know more than the doctors anyway. It’s a good starting point. I thought I was doing my pelvic floor exercises correctly but they were looking for a whole other level. They said if women had intervention early and correctly, it could help delay or prevent the need for surgery. Sadly I was too late. I would go privately if the waiting list is too long. Don’t be fobbed off with seeing a regular physio because it’s not the same.

Wherediditallgo · 16/11/2022 20:06

@Bridget944 - sorry just realised you’d seen a gynaecologist. Definitely get a second opinion

SewingWarriorQueen76 · 16/11/2022 20:22

There is an excellent Facebook group called Pop fitness which has lots of women with prolapsed. Full of good resources and support

OldFan · 16/11/2022 20:35

I know it's nothing compared to having a prolapse and might not be easy (maybe do at home depending if you have any continence issues) but for about a year my pelvic floor started being a bit odd, tampons falling out, having to push to wee etc. I started doing a bit of cardio and it happened to stop the issues virtually straight away. So a bit more low impact exercise might help.

Rainbow2116 · 13/06/2023 17:57

@Bridget944 did you go ahead with surgery? I’m in the same situation :(

Olderandolder · 13/06/2023 18:38

I had prolapse from DD1 when I was 34.

NHS told me to wait for it to get worse
i had surgery privately aged 46 and it helped at lot.

now I’m 53 and getting prolapse again. Nothing like as bad as it was before surgery.

Wendyhoop · 29/09/2023 23:16

Kindly needing advice on this ladies. I have noticed my prolapse as 4 years. After pestering the doctor to get referred, I finally did. Seen 3 different gynae doctors. They all said physio would solve it all and off I went for months. Here I am still in same position. I have been discharged from them and my last appointment they said it had improved so much they wouldn’t have to see me again. F*cking bull. It’s still same if not worse. I still have to insert my finger and pushing the bulge when I have to do a number 2. It breaks my heart that I’d possibly have to do this forever. My sex life is terrible too. I voiced this also to the doctor and she just told me I was paranoid. Erm no. I barely feel any grip if u know what I mean. @Ridingthegravytrain i am very interested in the surgery you had. Did u go private? I am 35 and done having children so I’m very open to surgery. This wasn’t suggested to me. When I suggested it they said they barely do it now as the success rate isn’t high and it has to be redone continually.

HotCoffee22 · 30/09/2023 08:28

Wendyhoop · 29/09/2023 23:16

Kindly needing advice on this ladies. I have noticed my prolapse as 4 years. After pestering the doctor to get referred, I finally did. Seen 3 different gynae doctors. They all said physio would solve it all and off I went for months. Here I am still in same position. I have been discharged from them and my last appointment they said it had improved so much they wouldn’t have to see me again. F*cking bull. It’s still same if not worse. I still have to insert my finger and pushing the bulge when I have to do a number 2. It breaks my heart that I’d possibly have to do this forever. My sex life is terrible too. I voiced this also to the doctor and she just told me I was paranoid. Erm no. I barely feel any grip if u know what I mean. @Ridingthegravytrain i am very interested in the surgery you had. Did u go private? I am 35 and done having children so I’m very open to surgery. This wasn’t suggested to me. When I suggested it they said they barely do it now as the success rate isn’t high and it has to be redone continually.

That sounds miserable.

Have you seen a woman’s health physio?

Wendyhoop · 30/09/2023 09:46

@HotCoffee22 i did. I seen 3 of them as well. I was very disappointed at my last appointment when she told me she was discharging me. I expressed my concern and she said for me to go back to them if any other problems arise, I would have to go through the whole process again.
I am so disheartened. It makes me very upset. The process to get seen was so long and tiring. I’ve cried to the booking line ladies, I’ve cried to the gynaecologists, I’ve cried to the woman’s health physios. But yet they just let me go how I came.

Wendyhoop · 05/10/2023 19:17

Anyone…..?

TheProvincialLady · 05/10/2023 21:39

Can you afford a private gynaecologist? I paid about £180 5 years ago and the repair operation was about £3k. Worth every penny. But I was very fortunate to be able to be able to do that I know.

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