To think this a fucking disgrace- 3 months wait for disability payments- why?

[HumiditySucks]

Son diagnosed with Type 1 diabetes last week. He needs tech that we have to fund ourselves.

Apparently when you apply for DLA, they don’t pay out for the first 3 months after diagnosis- can anyone explain why?

Its not like it’s going to go away within that timeframe and won’t be needed!

We can just about afford the initial £160 a month for his monitor but plenty of families probably won’t be able to, especially in the current climate with cost of living increases/fuel price increases.

This is tech that NICE guidelines say should be prescribed but they’re only guidelines. He will also need an insulin pump which will take it up to £400 a month.

Bad enough that you get a shocking life changing diagnosis for a child living but you have to shell out for essential equipment from your own pocket too.

Ah OP, you’re in shock and have clearly been through some heavy stuff lately.

Please, if you can, listen to the T1s and parents of T1s here, because actually this wait is useful to your son. Please take some time (months) to properly live with the manual management before going over to tech. Honestly, you will be grateful at some point if you do.

This is very good advice.
A friend's ds was diagnosed aged 9 and did eventually receive a pump. But there have been crises and what was needed was a calm head and a lot of experience at managing the condition manually.
OP - my friend's DS is definitely living his best life in spite of T1 - he's a regional level athlete, plays masses of sport and is doing well at school. He has loads of mates and appears the typical teenage boy.

@krazykatzlady do u live with diabetes? Because diabetes changes every single day no 2 days are the same my son who is 5 lives with it! It’s not about having unstable diabetes! Even a child with stable as u put it diabetes has to carb count everything they eat take into account exercise weather food everything that impacts blood sugar.

@CrossStichQueen diabetes has been recognised as a disability since 2010! U absolutely horrible people on this thread! I take it most of u have never had to inject ur child multiple times a day? Stay up all night correcting with insulin every 2 hours because their blood sugar is high? Or trying to feed them in the night when they want to sleep because they are low!!!
telling then they can’t run around with their friends u til their sugars come back up! Nope didn’t think so! Any of u stupid uneducated people that think a child needs dla because their diabetes isnt controlled needs their heads testing! Diabetes changes every bloody day. Go and educate yourselves u nasty vile people! My 5 year old son can’t inject himself because he can’t yet read so could inject too much insulin! He also cannot carb count his own food he relies on an adult 24/7

It's ironic this thread has come up.again my son collapsed a few weeks ago.with a necrotic pancreas ,he has no pancreas function ,he's been diagnosed with type 3 c diabetes ( it's a rare form of diabetes caused by damage to the pancreas ) he's insulin dependent plus had to take other medication ,as he's 16,could be claim PIP.or do.most adult diabetics not meet the criteria ?

@x2boys moat children with diabetes are eligible for dla disregard what uneducated idiots have said on this thread. As you know diabetes is t straight forward like people have said on here and can be very complex. As ur son is 16 I believe he will have to claim pip but I would definitely put a claim in if he has a lot of help with his day to day life go for it xx

Yes I'd imagine he would be but PIP doesn't base it on diagnosis it's based on how whatever your condition (diagnosis or not) affects you day to day. What you are capable of doing regardless of diagnosis

Thanks ,my youngest son gets Ful.rates DLA for other reasons ,so.i.know how it works lim.just debating wether ,he would meet the criteria or not I know it differs from DLA.

Knowing older teens with Diabetes it's unlikely unless he needs huge amounts of extra help to manage, eg your assistance with his blood tests, dexcom etc your intervention to stop him eating food that would be dangerous, or your intervention to eat to stop him being low.
Your intervention checking sugars overnight..
They will ask how he manages in school without you, does he have a PA? Does he have an Individual Health Plan (wales) EHCP (England/Scotland) which evidence his needs?
As you know from your other son the forms are lengthy, the PIP form somehow seems easier when my son transferred from dla to pip. HTH

Yes that's what I thought the PIP.form is more about what you can't do (I believe ) independently,i.e. Travel.,cooking meals etc,etc,so I I think it's doubtful he would meet the criteria for PIP.

there is a Facebook group for type 1's applying for PIP with lots of useful documents and help and support. It isn't the norm that type 1s get PIP but some certainly do so it is always worth applying.