to ask for any experiences of Neuro-Physiotherapy?

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Good or bad?

My daughter has recently been diagnosed with Functional Neurological Disorder (FND)

We were discharged from Neurology with a link to a website and advice to “re-train your brain”

Our GP recommended neuro-physiotherapy for some of her mobility issues and we’ve got an appointment for an assessment in a few weeks.

However, DD has all her hopes pinned on this being the answer to all her issues and is going to be the magical cure for all her symptoms. I’m trying to be cautiously supportive, without pouring cold water on everything, but I don’t really “get” what it is or how it’s going to help in this instance.

From my basic understanding, it can help “rewire” the brain. Her actual brain and its wiring is fine, all test results were clear, the problem is with the way messages are sent and received.

Thank you!

I had neuro physio but it was part of neurology, I've never seen one referred by a GP. He helped with some of my general movement issues but not really my movement disorder. It was very much not a magical cure and tbh he'd never seen anyone with my type of dystonia and was on YouTube the day before looking for tips.

The magical cure thinking is a dangerous place to be tbh. I was well passed that by the time I saw them fortunately.

Thank you!

Our GP didn’t refer us, he just recommended it as something to try. Its a private assessment

I’m desperately trying to keep DD’s feet on the ground, without completely pouring cold water on the whole thing.

It's very awkward isn't it. Thinking back to when I was in DD's position, I think tempering expectations a bit beforehand would be much easier to bear than the crushing of her hopes if she goes in expecting miracles and doesn't get them.

Thank you!

She’s just so desperate to be ‘better’

She’s just turned 17 and is desperate to learn to drive, but she can’t at the moment. All her mates are off having lessons and passing their tests and she just feels shit, so she’s clutching at anything

Sounds mad, but she was actually hoping she had epilepsy as there is at least medication and treatment and some level of hope.

She keeps hearing that it will get better, things will improve, high probability that she’ll grow out of it, but at the moment her symptoms are just getting worse, new ones are popping up weekly, so I’m trying to balance a wee bit of optimism with reality without crushing her completely.

I have seen them a couple of times for MS. They've been really helpful but it's been about managing my condition rather than making it better. They did ask me at one point to set myself a goal so maybe have a think about that.

I too have seen a couple of fab neuro Physio’s for MS who helped break down what I wanted to do into small enough micro- steps that I could progress through them. It’s hard work though and progress may not be fast.

I found mine by searching on here: www.csp.org.uk/

Thank you!

I’ll have a chat with her and see if we can come up with a realistic plan and achievable goals.

I have been recommended someone who we have an assessment with, but thanks for the link.