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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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To be sick with worry than DS (12) may have diabetes!

266 replies

HumiditySucks · 23/08/2022 10:13

Please help calm me down until I can get a GP appointment this afternoon.

DS 12 has started drinking a lot more water, saying he feels thirsty. Started about 3 weeks ago while abroad. Obviously it’s hot but this is more than that.

He’s also lost a lost a lot of weight on his stomach. That may be him shooting up in height but he wasn’t over weight before.

Also saying he feels more tired but that could be due to being up until early hours of the morning 😡and sleeping rhythm messed up.

Noticed last night his breath has a chemical smell like acetone.

No Type 1 diabetes in families. MIL was diagnosed in her late 60’s with Type 2.

GP had no appointments by the time I got through this morning so have to try again at 2pm. Aarghhh!

OP posts:
Hobnobswantshernameback · 23/08/2022 18:08

Fuckwits that post dangerous medical advice should be banned
DKA can kill
it often involves a HDU Or ICU admission
well done op
and girl mom you should fucking stick to posting about shit that can't kill people 🤬

girlmom21 · 23/08/2022 18:09

Hobnobswantshernameback · 23/08/2022 18:08

Fuckwits that post dangerous medical advice should be banned
DKA can kill
it often involves a HDU Or ICU admission
well done op
and girl mom you should fucking stick to posting about shit that can't kill people 🤬

Chill your tits. Look at my original response. It's exactly what the OP did.

Hobnobswantshernameback · 23/08/2022 18:10

Chill your tits
god how pathetic
shown yourself up a treat on here haven't you

girlmom21 · 23/08/2022 18:12

Hobnobswantshernameback · 23/08/2022 18:10

Chill your tits
god how pathetic
shown yourself up a treat on here haven't you

You're the one showing yourself up.
All I said was not to turn up to A&E without speaking to 111 or a pharmacist first. That's it. None of us knew if it was diabetes. That's what OP rightly suspected

You being aggressive and having a pop after the fact and once OP's DS is getting proper medical treatment is unnecessary and immature.

Hobnobswantshernameback · 23/08/2022 18:14

Immature
Ah god the irony

Flutterbybudget · 23/08/2022 18:16

Well done OP. You did absolutely the right thing. You knew the signs and got your DC the medical intervention that they needed. Having a T1 child isn’t an easy road, but you can do it.
If you’re on Facebook, there’s a really helpful page “The Insulin Gang” which will give you a great deal of support.
Sending you huge hugs, because I know what a shock it is, and how scary, but you can get through it, and so will they

Starrystarrynight456 · 23/08/2022 18:22

@girlmom21 please stop posting when you clearly know nothing about type 1 diabetes and how dangerous it can be. Your comment about a parent of type 1 diabetic not being an expert clearly shows your ignorance..type 1 diabetes is relentless and involves constant monitoring, you become an expert or you/your child becomes ill.

I am not getting into the semantics of where the OP got urgent care, the important thing is she did, no thanks to you. None of us knew it was diabetes, you are correct but enough people recognised the signs to realise there was a pretty good chance it was. This wasn't wasting A&E time, this was potentially life saving. Please resd up on DKA.

Op, so glad you've got a diagnosis and your son can get treatment. It's not an easy road ahead (fellow T1) but it is manageable, and a lot easier than it used to be.

girlmom21 · 23/08/2022 18:25

@Starrystarrynight456 I know all about type 1 diabetes. I know how dangerous it is. I've not once disputed that. OP did fantastically getting her son the care she did.

Butterfly44 · 23/08/2022 18:39

@Ducksurprise Undiagnosed T1D is a medical emergency. GPs/111 will refer a caller to A&E if it's suspected as they will need to be admitted. If left to late they can go into DKA quite rapidly where organs begin to shut down. The number of those diagnosed too late ending up in ICU in this country is really high. It's not 'just diabetes' and not the same as someone diagnosed with T2. You've got a lot of people on here who know what they're talking about trying to educate you.

BackToGoingOnHoliday · 23/08/2022 18:49

This just shows how bad the NHS has become- so obvious there was a high risk of Type 1 Diabetes in a child, and the mum has to fight for him to be seen. It’s just awful.

To OP - I’m sorry your son has this, but you are on it and you will take the best care of him, and will help him learn to look after his own health and to advocate for himself in later life.

Butterfly44 · 23/08/2022 18:51

@HumiditySucks So sorry to hear about your son's diagnosis. I'm sure you'll all be feeling completely overwhelmed. Take things a day at a time, find support groups, and well done for getting your son seen. A mother's instinct knows when something isn't right.

babysoupdragon2 · 23/08/2022 18:53

Deep breath. It's a new world and it's a scary one but it is incredible how quickly adolescences adapt.

Huge complaint to your GP practice manager when you get the energy/ headspace.

jamimmi · 23/08/2022 19:02

This will currently be the last thing on your mind, but when your ready a complaint to GP is in order. As the wife.of a type1 and an HCP those symptoms shouted diabetes which is life threatening if not urgently controlled. You have done fabulously well to catch it. With you on his side he will get there and be living a normal life soon. Just with some extra help / monitoring. Push for a libra sensor or similar. They are wearable monitoring that helps with controlled and to.quote DH are life changing

Thehonestbadger · 23/08/2022 19:04

I would definitely class parents of T1 kids as ‘experts’ I mean my mum is like a walking encyclopaedia on T1 😂
You wanna know about some obscure study they’re doing in some Scandinavian country…my mums read that entire research paper GUARANTEED.
My adult brother still occasionally rings my mum to be like ‘so here’s what I just ate and here’s what I think I should inject…sound right?’

Parents of T1 are experts through necessity

hewouldwouldnthe · 23/08/2022 19:05

girlmom21 · 23/08/2022 12:07

Yes a&e. I am a nurse there. Don't hang about Simple finger prick test will tell you. Local pharmacist may be able to do one for him instantly.

If a pharmacist can do it why would you encourage A&E? It makes no sense.

She may live a few minutes away from a local pharmacy, whereas a trip to A&E might need a bus and a walk and a delay of an hour. Its about common sense. People forget about the convenience of a pharmacist, but if its not convenient you do what's quickest.

hewouldwouldnthe · 23/08/2022 19:05

Hence the word 'instantly' that i added!

BuckarooBanzai · 23/08/2022 19:11

Well done for catching it early. My DSS ended up being very poorly as he went undiagnosed for so long. It's a huge learning curve for the whole family. It's so overwhelming in the beginning but trust me it gets easier.

CoopsMalloops · 23/08/2022 19:21

Learn everything you can about type 1. Diabetic nurses are scarce to none and the lack of knowledge of general nursing staff on how to treat a DKA for example is utterly frightening.

glad you got him seen and sorted.

LemonDrop22 · 23/08/2022 19:27

You are a wonderful Mum op - switched on, knowledgeable, responsible and proactive.

Your son is lucky to have you as his parent.

LakieLady · 23/08/2022 19:35

Well done for getting it checked out, OP, and I think the surgery's refusal to see him was appalling, when there was so much cause for concern.

My DSS was diagnosed T1 just a couple of weeks before his 14th birthday. DP and his ex were concerned about his weight loss, and thought he might be on drugs, then I raised the possibility of T1 when he was constantly thirsty. And his maternal uncle is T1, so I'm amazed it didn't cross their minds.

He adjusted to it really well, and very quickly got used to checking his bloods. He's also developed the most discreet way of administering his insulin (does it under his top without anyone even noticing) and has never had any problems arising from his diabetes in the 18 years since his diagnosis.

It sounds like your DS is taking it all in his stride in similar pragmatic fashion, so hopefully he'll do as well.

bumbledeedum · 23/08/2022 19:54

Thehonestbadger · 23/08/2022 19:04

I would definitely class parents of T1 kids as ‘experts’ I mean my mum is like a walking encyclopaedia on T1 😂
You wanna know about some obscure study they’re doing in some Scandinavian country…my mums read that entire research paper GUARANTEED.
My adult brother still occasionally rings my mum to be like ‘so here’s what I just ate and here’s what I think I should inject…sound right?’

Parents of T1 are experts through necessity

I walked in the diabetes field for a long time, mostly introducing new products to the market and this is so very true.

Maytodecember · 23/08/2022 20:03

You did exactly the right thing. I was taught that once you detect the “pear drops” smell its straight to A&E.
I taught a few children who had T1 diabetes, the youngest were 2 ( unrelated but diagnosed within weeks of each other) 4 year olds, then another couple of older primary children and a teenager. They all had a few hiccups in early days, one of the 4 year olds kept trying to pinch chocolate biscuits etc from other kids, but overall they did well.

Tamworthian · 23/08/2022 20:05

Hobnobswantshernameback · 23/08/2022 18:10

Chill your tits
god how pathetic
shown yourself up a treat on here haven't you

Ha, don’t know about tits but I’d say your arse got a chill when you showed it Wink

Willyoujustbequiet · 23/08/2022 20:06

Ducksurprise your initial advice was shocking and dangerous. You clearly have no knowledge of diabetes.

Untreated Type 1 is life threatening and absolutely a medical emergency.

Tamworthian · 23/08/2022 20:09

The really scary that about your GPs surgery is not only that they didn’t help you when you suspected diabetes but that they should be in the position of recognising those concerns in patients that might not know it’s something that dangerous. You might have taken their word for it.

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