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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

So scared please tell me your experiences

53 replies

theillustratedmummy · 02/08/2022 20:41

Hi all,
.I suffer migraines on and off. Nor too regularly thank goodness. I normally lose some vision and some processing ability but nothing too serious apart from the pain.

Anyway today I felt one coming on. Unfortunately I was on a mini holiday with my dc. I was due to drive home this eve. I was ok when I set off but part way through the journey I lost the ability to follow directions and recognise where I was going. I obviously pulled over when safe but I could not recognise anything around me even though I had travelled that way before. I rested but had two little dc in the car. I just wanted to get home. Even when I eventually set back off when I felt better and got to local places I couldn't find my way home and drove round for over an hour trying to find my way home. I usually know these areas and I'm normally fine with directions.
I got there but was in tears. My poor dc were terrified. I have never been so scared.

Its definitely not anything more sinister as I have had tests etc its just the severe migraines and they seem to be getting worse.

I'm yet to find any treatment that works without worse side effects. Does anyone have experience of this or suggestions of treatment to try.

Just venting and trying to calm down.

OP posts:
GetOffTheRoof · 03/08/2022 09:11

FairyBatman · 03/08/2022 07:34

You really need to push your GP to send you for a referral to a. Neurologist or headache clinic, there were loads of treatments that you can try, but you need a specialist really.

No neurologist will accept a referral when they've only been on one preventative that's failed. The GP needs to get OP on alternatives.

SaintHelena · 03/08/2022 10:05

I assume you don't have a satnav - it would have lead you home or could you not follow the instruction?

rightonthyme · 03/08/2022 10:29

I can recommend Sumatripan (you stick it up your nose and inhale) - my mum went from being bedbound multiple times a month to VERY rarely having migraines nowadays (and even then, they can be headed off with quick use of the Sumatripan). Do not give up - persist at the GPs, sometimes you will need to fight as they'll try and fob you off. Insist on trying Sumatripan. You poor thing x

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