to not know why a joint would click in and out in a child?

[ScaredANDalone123]

I know I’m posting in AIBU but I’m at the end of my tether
This has been going on for a long time with my 13 year old DD
NHS basically said physio waiting list was 9 months so I went private - no obvious problem found so back to the NHS to ask for an ultrasound which has come back clear.
They won’t do an MRI but will refer for a private one?!
Still waiting for the NHS physio 8 months on.
Her ankles literally give way in front of me where she has to click them into place to feel relief and like she can walk again.
The pain can wake her from sleep it gets so bad.
I must be missing something as even the doctors seem to not know what’s causing it?!
blood tests clear and no signs of hypermobility - at a loss!

but for me i was a late walker and my mum would hear me clicking when she was pregnant with me,

This varies so much. Many kids with hypermobile EDS (Hypermobility isn't a separate diagnosis, it's a symptom) are early walkers as they don't crawl easily. My DD was up & running around at 9 months. She never crawled. This seems fairly common

I am also a 0 on the scale, but an MSK podiatrist diagnosed me recently due to the way I can move my ankles. I've now got custom made orthotics and can feel improvements in just a few weeks.
Hopefully you get to see the right specialist soon.

Both of my dc were early walkers (9 months and 11 months respectively) and have EDS. Neither crawled properly, doing a weird slug/commando hybrid. Both present very differently as teens/preteens.

We were really lucky with the NHS. Our GP has EDS as a special interest and our local hospital rheumatology, physio and biomechanics have been superb. And cardio as well actually who helped with a comorbid POTS diagnosis at the same same time as the EDS.