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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

So which kidney did you have transplanted?

57 replies

askmeanythingkidney · 21/07/2022 15:24

Ok, weird AIBU post and really a question for GPs and medical professionals on Mumsnet

TLDR: would you expect a Gp/medical professional to have a basic understanding that you can live happily with one kidney?

Background. I had a kidney transplant some years ago. I have since had children and am regularly seen by my nephrologist and the team.

The last couple of years (especially with pregnancies) I have had to see my GP/consultant gynaecologists/ anaesthetists etc. My transplant has always come up as part of my medical history. 9 times out of 10 I get asked questions along the lines of

-So which kidney did you have transplanted?

-Which kidney stopped working?

-Which kidney did they replace?

-Which kidney came out?

And many many similar.

Now, I would NOT expect the general population to know this but you can live a pretty normal life with just one healthy kidney. It's not uncommon to be born with just one, to have one removed for some reason etc. If you still have one kidney, then you don't need a transplant. So the answer to all of the above questions is 'eh? Both stopped working??'

I'm afraid I lost my cool a bit today over the phone with a GP who asked me if it was my left or right one that was transplanted? I said, both kidneys failed and that's why I needed a transplant. I was told, no....one of my kidneys would still be working ok, I probably just wasn't told which one they took out and transplanted.... I explained again that they don't remove a kidney when they transplant, they just add the third one in.

The GP then just got a bit frustrated and said he'd check my notes as I obviously wasn't made aware which one. I got a bit angry and said perhaps I should ask Google for help with my question as that seemed more informed than he did. Yes, totally unreasonable of me and I asked to speak to someone else who was infinitely more helpful.

So, as a Doctor or someone in the medical field, would you know that you only have a transplant if both kidneys stop working and if one still does, it negates the need for a transplant in the first place? AIBU to get frustrated with the same constant questions?

OP posts:
finished31 · 21/07/2022 18:26

I've also had a transplant (not kidney) and I remember when I was on the waiting list my dentist asking when will I get my transplant?

I replied, when sadly a person dies and saves my life. I was in tears when I walked out.

I've also had people ask was it because I drank a lot.
I put it down to pure ignorance and have to explain not every liver disease is related to alcohol.

MajesticElephant · 21/07/2022 18:31

I 100% know where you are coming from OP. I donated a kidney and the confusion from medical professionals is unreal!

Augend23 · 21/07/2022 18:33

I know that and I'm not a medical professional... I didn't know they added a third one but I knew you only had a transplant if both failed.

askmeanyrhingkidney · 21/07/2022 18:37

MajesticElephant · 21/07/2022 18:31

I 100% know where you are coming from OP. I donated a kidney and the confusion from medical professionals is unreal!

Well I hope they at least recognise your awesomeness for doing so regardless of their lack of knowledge about the subject!

Upontherooftops · 21/07/2022 18:45

MayThe4th · Today 15:38

They did a live kidney transplant on channel5 a few years ago when they explained that they insert the new kidney but don’t remove the old one. In fact they said that they had done transplants for people who essentially had 4 or 5 kidneys due to transplant and then subsequent rejection.

Ok, I knew the other stuff here but I always assumed a rejected transplanted organ had to be removed because the rejection caused problems. Do they really leave the rejected transplanted ones in there?

Also OP, not to excuse the GP's attitude or ignorance but I wonder if they see more people who've had kidney cancer than people who've had a transplant and therefore assume people have had one removed. I don't know anyone who's had a transplant afaik but I know 3 people who have only one kidney remaining due to cancer so maybe it's more common?

BlackbirdsSinging · 21/07/2022 18:50

I wouldn’t expect a GP to know anything much about transplants.
It would be great if GPs had time to read through the whole of everyone’s notes before they spoke to them, but unfortunately for GPs, they are under such time pressure they simply can’t.

queenofwobbles · 21/07/2022 19:03

Oh wow OP words fail me! Not experienced this but I am waiting for a kidney transplant and if some GP started lecturing me on which kidney still worked I would not be impressed! CKD is not exactly uncommon so I would expect a GP had some basic knowledge about it like survival on one kidney! Maybe we expect too much.

So did they acknowledge you were right in the end? YANBU

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