Anyone else absolutely done with their disability?

[Yorshiregass32]

25 years of cronhs disease. On every med available to me and I'm sitting in work in pain, nauseous and bleeding when I go to the loo. I'm so thoroughly fed up of it. Too ill to work, not ill enough for benefits. It's fucking sucks.

@Yorshiregass32 my friend and her daughter both have Crohn’s, it’s a truly horrible condition, so wish a cure could be found for it.
I’ve a milder condition but it’s still brought my life to a standstill. I can control the pain with painkillers, tens machine, gels and creams, pain patches but the chronic fatigue is off the scale. Hot weather makes it worse , but then so does very cold weather, and rain….

Another person here who is wishing all the crappy bits would fuck right off.
I have spinal arthritis. It's Not Very Nice. I've always known that damp days make it flare. However I'm learning the hard way that heat makes it flare just as much.

I like walking and I would like to keep on walking thank you very much. My bathroom door is approx 20 paces from my bed which is where I am right now. I am trying to decide if I really do need to go now or I can wait because the effort of walking is going to take whatever I have left.

The cfs (which my husband calls constantly fucking sleeping for good reason) can also fuck right off. At least when I am asleep I am not in pain. Shame I can't do stuff like cooking, washing, housework and the school run while I am asleep though.

Yep i hear you.

Systemic Sclerosis( scleroderma) pulmonary fibrosis, Raynauds, pretty much constant iron deficient anemia.

The fibrosis got much worse after i had grade 3 breast cancer 2 years ago. Put on high strength immune suppressants. Im sick ALL THE FUCKING TIME. So far this year i have had-

Shingles that lasted 15weeks. Still badly scarred and in pain.

Mumps.

4 sinus infections.

Covid that is still going strong after 5 weeks. Had a hospital stay and had to cancel a long awaited operation.

This is all on top of the delightful symptoms i live with on a daily basis.

Consultant said i take the immune suppressants or the fibrosis kills me.

I dont live- i survive, and fuck me, its the blackest of black holes.

Unless you are in the situation you have no idea how hard it is. You either get totally ignored, or given treatment thats worse than the illness.

I would really suggest to watch the Selma Blair documentary about chronic illness. Its amazing. Just hearing someone articulate all the things I had been thinking was very empowering to me.

Yep, I'm right there with you on all of those.

I play a daily game called What Am I Medicating Today? and I spin a wheel: naproxen, Buscopan, heartburn tablets, antihistamines, CBD balm/gummies, or Voltarol back pain gel. Not forgetting my pile of splints/supports for my wrists, knees and ankles. Or my plug-in heat pad. It's a laugh a minute around here!