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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

DDs eating disorder

17 replies

CrowsHaveEyes · 30/06/2022 11:07

For feeling angry, sad and resentful?

She is a bright, funny and loving but this illness is taking her away. We are seeking help but while we wait its hell. She is 11.

I'd be grateful to hear any positive outcomes from anyone who has been through this themselves or with a child.

OP posts:
CounsellorTroi · 30/06/2022 11:34

I have no advice, just wanted to say how sorry I am. There is something deeply wrong with society when children as young as this get anorexia. I hope some useful advice will be forthcoming.

StillNoFuckingEyeDeer · 30/06/2022 11:37

The Opposite of Butterfly Hunting is a beautifully written but difficult to read book by Evanna Lynch which you may find helpful

Theoldwoman · 30/06/2022 11:53

We are in the depths of it right now. Very tough on everyone.

CrowsHaveEyes · 30/06/2022 12:20

Thank you for your messages. I'm sorry for those who are in a similar position. I don't find it easy to talk about but needed to reach out

OP posts:
Mybagshavebags · 21/07/2022 16:14

My 16 year old daughter has ASD, and severe clinical depression. She has recently developed psychological issues around her eating, believing she does not deserve food, and it is somehow selfish to be hungry and ask for food. And when she manages to eat, she feels incredibly guilty. She is constantly anxious and crying, and has dropped 2 dress sizes in a month. I have called CAMHS several times, and they say they’ll send an email to the psychiatrist she’s under and mark it urgent. Four times in two weeks they’ve said this and still no phone call. I’m tearing my hair out worrying, in between consoling and reassuring my daughter and dealing with her equally ASD siblings. Anyone in or have been through something similar? Any advice would be welcome as the professionals have yet to respond!

Louloubelles · 21/07/2022 16:19

There is a section on here in ‘talk’ with about 5 threads on eating disorders and supporting someone with an eating disorder. You’ll find lots of advice there from people who understand. Good luck.

CrowsHaveEyes · 21/07/2022 20:05

So sorry you're going through this. It may be worth going back to your GP and getting an urgent referral? Little help but you're not alone 💐

OP posts:
Moomoo75 · 22/07/2022 08:20

My 16yr old dd is happy, healthy, funny forward looking and chatty. This was not the case when she was 13. She developed anorexia ever so gradually. It was hell. Early intervention is soooo important. Straight to the GP. CAMHS. While waiting go onto the body whys website. She can a will recover. I feel for you I really do .I never thought my daughter would recover. It was a horrendous time for the whole family. But you must persist with treatment. The 1st thing the clinic told us to do was to stop all our daughters exercise activities. I mean everything even walking anywhere. Then you must take charge of re feeding her. That is very hard and she will prob need to hear a professional tell you that for her to accept it. Its basically feeding her snack between meals. So she will be eating every 2hrs during the day.
She has to eat it and you have to be strong, the rules are she does not leave the table until its eaten. Even if that takes hours even if she misses school outings, events. Stays up all night. This is the way it has to go. Its awful at the start. We had screaming matches, things said and done that would never be normal in our house before. As her counsellor said to us at the time..your in the trenches now. Persevere. We did and we are through the other side. The 1st 6 months were the worst the whole process took about 2 yrs. But she can and will recover. I am hoping to encourage you with my post while being realistic also. For my daughter she was very much goal oriented. Is there something your dd really wants to do or go? Something she can't do unless she is well? For mine it was a school trip away.
The best of luck OP.

Miffycat14 · 22/07/2022 08:34

I feel your pain but want to agree with others that there can be positive outcomes. 4 years ago we were just starting to get help with our 11 year old. It was traumatic and very hard, and did affect the whole family. We had good support from CAMHS, GPs and school fortunately. We had to stick rigidly to an eating plan, there were tears, screams and battles but it worked. We were fortunate and by the time she turned 12 was much healthier. At 15 she is well and eats normally. Wishing you luck.

CrowsHaveEyes · 22/07/2022 22:25

Thank you for sharing your positive stories, they help so much. The battles you've fought all resonate with me but I'm hopeful at the end a healthy, happier girl will emerge

OP posts:
Loopylou39 · 22/07/2022 22:52

I have never replied to a post before but felt I had to for this. We have been where you are and it is so incredibly tough. Sadly for us our daughter fell through the net as her weight was never low enough for her to receive support from the NHS. We were incredibly fortunate to be able to afford private family counseling and followed th refeeding method. What has been an incredible source of information is Eva musby book called anorexia and other eating disorders. Your child can't help where they are and will need an incredible amount of support but she can come through to the other side. What I would add that distraction after mealtimes is so important as this is when her eating disordernvoice will be so loud. Banana grams, Uno , card games , TV anything to distract her from her thoughts. It's been an incredible tough 10 years for my daughter but she is finally on a good place. My thoughts are with you and your family.

poppy2021 · 22/07/2022 23:08

The important thing to remember during the shouting, screaming and tears is that it's the disease that's talking and not your lovely DD. It will be difficult to hear that she hates you (she will say that but deep down she really won't mean it). The anorexic thoughts are so strong but you need to be stronger. Your partner, family, friends etc all need to be in the same page and the rules must be consistent wherever she is
My daughter was in her very early teens and it was hell for 18 months. But eventually chinks started to appear and we got there.

She is a fabulous well balanced 22 year old now who has just graduated from university and is about to start her new career

Good luck. My thought are with you xxx

Miffycat14 · 23/07/2022 09:32

Please continue to reach out. It is really important to be able to do so, and there are lots of us who understand. I had sympathetic friends and family, but I don't think many realised the extent of how it changed our lives. Although I will probably always be keeping a watchful eye on her, we really are back to 'normal' life now. You can do this.

ThisIsNotMyNameOrAccount · 23/07/2022 09:53

@Mybagshavebags and others. I'm so sorry you're going through this. I've also suffered with eating disorders off and on since I was a teenager and now after proper treatment am so far fully recovered. It absolutely is achievable. If possible it's so helpful to get specialised ED support rather than well meaning GPs/psychiatrists etc. I didn't go via this route but know a friend who used insight eating in Leeds (you can google it) for her daughter as they have people who specialise in eating disorders combined with ASD/ADHD. They did it online as she's not Leeds based but was very positive. Obviously it might not be suitable if your daughter requires a higher level of care and is private so not an option for everyone but if you can possibly afford it I would 100% recommend paying for immediate treatment.

nolongersurprised · 23/07/2022 10:41

Our oldest DD developed an eating disorder 2 years ago, when she was 14. It was during a covid lockdown and she became anxious and then fixated on how often she was going to get food.

She is naturally very slim and tall and went through puberty early so it took us a while to notice that while she hadn’t lost that much weight, she also hadn’t put on the weight she should’ve.

We live in Australia and were lucky enough to get into a private psychologist who specialises in disordered eating quite quickly. We supervised her meals and decided how much she should be eating. Plates were broken, there was shouting and tears. We let her go on school camps and trips but a teacher supervise her meals.

It took 6 months for her not to panic if she’d “overeaten” and, 2 years on, she’s much better. She eats very little sweet food but will have a plain burger or pizza when out with friends and will eat to her appetite at home. She is still slim but looks healthy, she’s probably 6kg up from where she was.

Things that helped were restricting her internet use and checking it as she was looking at terrible YouTube videos from randoms promoting the latest “clean eating”. We also emphasised physical complications such as bones and fertility and cognitive issues such as poor focus. She still sees the psychologist but more for monitoring now, during the last session they apparently mainly talked about the Vampire Diaries 🙄.

She is still very rigid about not eating foods that aren’t “safe” but these are reducing in quantity and safe foods now include homemade baking and pretty much anything we cook. She’s a bit wary about meals about but this is getting better. Last night she and I went out and she had wedges and pizza and didn’t angst afterwards.

I know it’s different in the UK but the earlier you can get specific eating disorder help the better, before the disordered cognition becomes entrenched.

CrowsHaveEyes · 23/07/2022 20:53

Thank you all for your advice. I felt so alone and tried to "hide" it as I was embarrassed and felt like a complete failure. I have now started to share with others and it feels a little better. I also feel more positive about a good outcome having read your experiences, thank you.

OP posts:
catwomando · 23/07/2022 21:06

Hi OP. We went through this (and other stuff) with DD. She's now a fully functioning (and eating!) young adult.

It was tough, stressful and I was ridden with anxiety- so worried about doing /saying the wrong thing and making it worse.

You'll need strength, togetherness and resilience to help her through it, but you can do it.

I now have a wonderful (if tense at times) relationship with DD. She will always carry the scars of her ED, and we still hide the scales, and tread carefully when talking about weight, food, eating etc but she's so much better .

A PP has signposted to other threads for specific support. It's very hard but be easy on each other and you will get through it.

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