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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To try and get a diagnosis for my mum

18 replies

Themidnightcat · 26/06/2022 13:20

Hi all,

I know this isn't the right place to post it but I wasn't sure exactly where it belonged so if someone can tell me, I'll report it and get it moved.

It is really long so please bear with me but I'm hoping someone can shed some light on what diagnosis I should seek for my mum or if I should go to the doctors with general information and see if there's help available but hopefully my post will explain more. I apologise in advance if I use incorrect language as I'm very new to all of this.

A bit of background on my mum - she was in a care home from 14-18, she was neglect and abused by her family sadly she met my dad at 18 when he was 50 so there was a weird dynamic of their relationship and he hid her vulnerabilities and sort of kept her "hidden".

My dad died last March so there's a lot that's come to light that I hadn't realised.

I'm going to try and explain some of my mums behaviour which makes me think they may be a learning disability or autism or something I don't really know.

She's always been very childlike, DH says we're more like sisters than mother and daughter because of how immature my mother is. She just doesn't act the way a 49 year old would be expected to, her mental age seems to be of a teenager.

She cannot read or write well, it had to be very basic words but even then she spells them I correct but is pretty good at maths.

She doesn't like a change to a routine or plan so if you say oh we'll take you shopping at 4pm Thursday and you're not there at 4 or you've had to change it she will have a melt down like she can't cope and it can take a while to calm her down.

She has a gambling problem, she's very fixated on playing bingo on the computer or buying scratch cards. I have had to take over her finances for this reason - for example I found out she spend £2000 at the top shop over a three month period.

She's a compulsive liar and comes out with really out there stories and if you pop holes or know she's lying she'll become very defensive and will argue until she's blue in the face almost like a child would.

She doesn't know how to dress, she'll wear the same clothes days on end and inappropriate clothing for example when it was really hot last week she had her coat on. It's really hard to get her to bathe and she has mullet and she refuses to have her hair cut.

She's a fussy eater, won't eat proper food but eats take aways, McDonald's, crisps etc

She sleeps most of the day, I can ring her at 11am or even 3pm and she'll be asleep.

She struggles in social situations, she can say somethings and you genuinely have no idea what she's talking about, she'll repeat herself constantly, she makes inappropriate comments (she told a neighbour he had gotten fat) and she doesn't understand sarcasm.

She can fly off the handle very quickly she has no emotional control and will scream and shout for no reason.

I can't think of anymore off the top of my head and honestly I've never had much patience for her as throughout my childhood she was abusive and neglectful but now I'm older I am realising that there's a problem that she can't help but not sure what to do.

She is currently under social services and the enablement team are coming out on Tuesday but I know without a diagnosis help is limited but I'm not entirely sure what to say to the GP about a referral especially with it being an adult whose almost 50.

Has anyone had any experience or advice on how to handle this going forward?

Thank you

OP posts:
Themidnightcat · 26/06/2022 13:23

Oh sorry just to add another one if she goes out I have to go with her as she has no sense of danger or direction and can get lost very easily unless it's in her home town but she's lived there for 23 years and a few neighbours look out for her and ring me if there's issues.

OP posts:
TheFormidableMrsC · 26/06/2022 13:33

She sounds very typically autistic to me, I'm an ASD parent so I am familiar with many of the traits you have listed. I'd seek a referral from the GP if you can. It sounds as if you need some support, there are lots of courses out there that you can do to help understand the condition and management strategies. Good luck Flowers

pantsandpringles · 26/06/2022 13:37

Another one saying autism. There's so many things you've said surrounding self care, social interactions, being unaware of danger, dressing and bathing etc that do sound like typical traits in someone who is neurodiverse.

GarethKeenan · 26/06/2022 13:38

It very much sounds like there are some unmet needs there. I think that she might benefit from an autism/ASD/learning disability assessment and she could access some help.

Also, I'm sad for her with regards to your dad.

Themidnightcat · 26/06/2022 13:49

Thank you everyone, sorry I realised I've made loads of spelling and grammar mistakes but I was rushing it as I don't know why but I find it upsetting to talk about.

So in the GP appointment shall I just do the same as I've done here, give a bit of background and then explain the behaviour I think is concerning?

OP posts:
TheQueensCousin · 26/06/2022 13:55

I'd write it down and give a copy to the GP as physical evidence. It also means that you're not openly discussing your worries in front of you DM. I actually did this at a GP appointment with my DM.
You'll have time to think about every point and won't risk missing anything out.
Flowers to you.

MenaiMna · 26/06/2022 14:05

I cant gelp with your mum but oh! OP I'm not surprised you find it difficult to write about/talk about. While reading that I was very sympathetic to your experiences being brought up by her. (I am ND in a ND family). So just sending you hugs etc and just want to remind you how kind you are to try to look after her while the child/parent roles have been reversed. Be proud of what you have achieved for yourself and think about whether therapy would help you unpack and sort out your own childhood. x

11Hawkins · 26/06/2022 14:12

I'm autistic and I can register that your mum has a LOT of autistic traits.
I think her being neglected as a child probably contributed to some of her behaviour also.
Please try and get her a autism assessment.
Sending you both big hugs, I'm shocked that your dad never picked up on this.

Themidnightcat · 26/06/2022 14:17

11Hawkins · 26/06/2022 14:12

I'm autistic and I can register that your mum has a LOT of autistic traits.
I think her being neglected as a child probably contributed to some of her behaviour also.
Please try and get her a autism assessment.
Sending you both big hugs, I'm shocked that your dad never picked up on this.

Thank you, I'm gonna try and book an appointment this week and hopefully get the ball rolling.

I think he did but because he was 50 when he met her (he was born in the 40s) his attitude to mental health and disabilities was to hide them so that's what he did unfortunately, he just simply ignored it and unfortunately it was a power dynamic she was young and vulnerable which meant he could do whatever he wanted.

OP posts:
Thighdentitycrisis · 26/06/2022 14:21

Have you discussed this with your mum?
m what does she feel about having additional needs?
Does your mum have a caseworker in Social care? They or GP could refer for a LD assessment but your mum would have to consent to any referral unless she has had a mental capacity assessment

Themidnightcat · 26/06/2022 14:24

Thighdentitycrisis · 26/06/2022 14:21

Have you discussed this with your mum?
m what does she feel about having additional needs?
Does your mum have a caseworker in Social care? They or GP could refer for a LD assessment but your mum would have to consent to any referral unless she has had a mental capacity assessment

I have discussed it with my mum and although she wants to go to the GP with me. I've explained as simply as I can what it would mean for her and she seems happy to go ahead.

She has a case worker but so far they've just arranged for the enablement team to come round but it's partly my fault as I didn't explain her behaviour in full so next time she calls I will ask if I can discuss it with her.

OP posts:
Minimalme · 26/06/2022 14:34

Just a word of warning op. Since your Mother was abusive to you as a child, please be careful not to have your adult life marred by becoming her carer.

There is so little support out there that if you fill the gaps, SS will step back and disappear.

Let them take the lead.

Fwiw (although I am not a professional) your Mother sounds as though she has a low IQ and possibly a personality disorder.

ItWillBeOkHonestly · 26/06/2022 14:39

There could be a combination of things going on. I would agree it seems there are hallmarks of autism there but it may also be that she has a personality disorder too. Personality disorders can often occur because of childhood trauma so there might be a combination effect. You're doing the right thing in sharing with your GP though. I really hope you can get some answers!

thenewduchessoflapland · 26/06/2022 14:45

@Themidnightcat

Your story regarding your parents strikes a cord with me as it reminds me of my aunt and her husband.

My aunt is 57,she was labelled a problem child and sent to a school for children with "learning difficulties" which was the catch all phrase for people with additional needs back then.

Like your mum she has all the hall markers of ASD and she was also taken advantage of.

She got pregnant at 16 by a disgusting creep who was much older and married.He of course bailed.Her family washed their hands of her by marrying off the pregnant unmarried teenage mother to her youngest step uncles BIL who was 10 years older and fat/lazy/unattractive and a massive chauvinistic .

She had her second baby a week after her eldest's first birthday as her husband had to mark his territory.

She's had a terrible life being controlled by her awful husband who takes shameless advantage of her and treats her badly.

She's very naive,has never worked,she can't read or write,she doesn't understand bills,has no friends.

When her husband has been in hospital my mum has had to help her to top up her pre payment card for the gas/electric meter as she didn't know how and take her shopping as she was unable to do that independently either.Her husband is riddled with health issues so I dread to think what'll happen to her when he dies.

thenewduchessoflapland · 26/06/2022 14:48

Also you need to help her apply for PIP and ESA if she's not in receipt of it already.

notgreatthanks · 26/06/2022 15:10

Definitely visit gp, could be asd, gdd, attachment disorder, if alcohol was involved foetal alcohol syndrome.

Nutrinerd · 26/06/2022 15:27

OP I feel for you having to deal with the circumstances in which you find yourself now. I have a family member who had an abusive childhood which left them with brain damage. Luckily they had good care for most of their life, though there were some challenges when people were looking to make cuts etc. and because they’d never had capacity for significant health/life decisions the court of protection had to be involved to get a deputy appointed.

I think you probably need to get professionals to start from the beginning. 30-40 years ago there were various medical conditions and diagnoses that were unrecognised, and I suspect your father successfully masked many of her problems from the world so that no one has really fully assessed her or the help she would benefit from. She needs a team to work out what her capacity is and what she needs to support her. As a PP said she is likely entitled to a number of benefits, but will need support to apply for those. I echo what has been said above - social services and the health system will step back if they think that you are able to provide care or move in.

Themidnightcat · 05/07/2022 18:50

Hi all,

Just an update and a question if someone can help me - we had a GP appointment last Monday and we received a mental health triage call today but missed it so they are calling again tomorrow which I thought was quite quick but I know it's only the start.

When she has the assessment as her full time career will I be allowed to be there with her and she absolutely will not be able to describe her symptoms without me - she has no idea what's going on really?

But thank you everyone for the messages so far

OP posts:
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