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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Toddler OCDs, to think this is not normal?

37 replies

grandiosegoose · 19/06/2022 11:21

I have a 4 year old who can exhibit some full-on meltdowns when things are not executed in the exact way they “should be done”. They have a mad ritual around most everyday things like dressing up, toothbrushing and so on and come up with new rules, demands all the time. This also extends to other people, like dictating how to put on granddad’s glasses etc. If the ritual is not respected then a complete meltdown follows often with violence.

Very often there are never-ending public meltdowns too about having to execute things in a certain way even if it’s dangerous, doesn’t make sense or near impossible. No distraction, bribery etc usually works (maybe a very major distraction).

It feels like I’ve tried everything and nothing worked. In the end I end up giving in because the situation only escalates.

I’m thinking this is not just normal toddler stuff? There are so many of these OCDs and demands, it’s difficult to live like this. What would you do?

OP posts:
Tandora · 20/06/2022 16:30

DontLikeCoffee · 20/06/2022 14:48

Based on what I’ve read he didn’t really fit the description, no lack of imaginative play, no speech delay, motor skills are fine, just a lot of problems with behaviour.

My autistic DC have a great imagination, advanced speech and my eldest walked early. They also make great eye contact and the youngest loves a cuddle and is very empathetic. Still autistic.

If you don’t mind me asking, what were the indications of autism in his case? Sorry if intrusive, just interested for educational purposes really x

Tandora · 20/06/2022 16:33

Tandora · 20/06/2022 16:30

If you don’t mind me asking, what were the indications of autism in his case? Sorry if intrusive, just interested for educational purposes really x

Apologies, I just realised you already answered up thread x

FatEaredFuck · 20/06/2022 16:35

Marvellousmadness · 20/06/2022 16:08

Your kid is not a toddler
Nor behaving symptoms of ocd!
Your kid likes rules and routines and doesn't like them changing.
Amd them throws tantrums
This could be many things.
Most important is to see how the kid is at say, kindy or something like that

And pp stop assuming asd straight away. Some kids just like structure. Some kids are very manipulative. Some kids are brats. Not all kids that like rules/structure are asd thankfully

No kids are 'brats'. They all have different needs, temperaments, parenting etc.

FloorWipes · 20/06/2022 16:41

It sounds like elements consistent with OCD, ASD and also maybe PDA. But only a professional can disentangle all this. You need a referral. Speak to your health visitor who can make a referral.

FloorWipes · 20/06/2022 16:43

Apologies I just saw your health visitor laughed it off which is awful. In that case GP and ask for a referral.

grandiosegoose · 20/06/2022 16:43

@teleskopregel thanks for the advice. Yes, it’s hard for the parents too.

OP posts:
DontLikeCoffee · 20/06/2022 16:49

Not all kids that like rules/structure are asd thankfully

Thankfully? Hmm

FluffyDogMother · 20/06/2022 17:18

As I said @grandiosegoose - keep a log, ABC forms. This will give you the documented evidence of his behaviour at home where you can show possibly the patterns.

See if you can self refer to CAMHS in your area.

Also take a look at www.autism.org.uk

Particularly at how to support your DS with visual aids (pictures), Now and Next board, Social Stories so he knows what will happen and the expectation. This many help manage his anxiety.

For a diagnosis they will look at all areas of his life incl any trauma, because sometimes trauma can be the cause of some behaviours. I remember being asked about pregnancy and birth, feeding/sleeping/milestones.

There is also the option of Early Help which may be another route into getting a diagnosis if one is needed and/or extra support. learning.nspcc.org.uk/safeguarding-child-protection/early-help-early-intervention

HTH!

FluffyDogMother · 20/06/2022 17:23

Oh, other things, sensory overload or maybe sensory seeking experiences. Noises, touch, taste, smell - anything unusual? Eg my DC says they can hear electricity, sudden noises cause meltdowns, want to touch and stroke hair (anyone's hair!), is fixated on certain bland foods, does not like some foodstuffs on the same plate or touching, wants sunglasses a lot or the curtains closed, wears ear defenders. Also check for reciprocal conversation with their peers - is it give and take or do they just talk at someone and don't pick up the non-verbal cues eg someone walking away mid conversation but they follow them and keep talking.

Carrieonmywaywardsun · 20/06/2022 17:29

Don't use the term 'OCDs' it makes no sense and your child's behaviour has nothing to do with OCD.
Look through old threads about early signs of ASD on here, there are a lot and new ones are started very often. When you know more, keep a log of behaviours your child exhibits and go to a new GP to show them your findings

Ameliarosethistle · 20/06/2022 17:40

Carrieonmywaywardsun · 20/06/2022 17:29

Don't use the term 'OCDs' it makes no sense and your child's behaviour has nothing to do with OCD.
Look through old threads about early signs of ASD on here, there are a lot and new ones are started very often. When you know more, keep a log of behaviours your child exhibits and go to a new GP to show them your findings

Whilst it is true that 'Obsessive Compulsive Disorders' being used to refer to what the OP has thought might be compulsions, is obviously an accidental misuse of the label OCD, please be kind to the OP as she's clearly going through a lot.

I actually wonder whether the planning the day and using stickers (suggested up-thread) might work quite well, even if your DC does have ASD, ADHD or even OCPD (separate to OCD, OCPD is a personality disorder where people are very strict about rules and order). Also ensuring that things like snacks at the right time, your DC gets down-time (e.g. breaks in the day where things are quieter), avoiding busy, noisy places might help.

Oodlesofdoodlescockapoodles · 20/06/2022 18:14

@grandiosegoose my daughter is very similar by the sound of it, she is 3.5

I've spoken to HV and nursery too. None of their suggested strategies have helped sadly and I have frequently felt pushed to the absolute limit of what I can cope with. It is so, so tough.

A friend in fb shares articles about pathological demand avoidance, PDA, which I think fits with my daughter.

She hasn't been diagnosed and I'm no expert, but lots of it rings true. Have a Google and see what you think. Good luck, it's very hard on you both.

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