Should I disclose my suspicions?

[Wingedharpy]

Posting here for traffic.

Should I tell my DH's family that I think he had an hereditary condition even though it hasn't been formally diagnosed?

They wouldn't have any health risks from this condition but could be carriers and may have passed the gene on to their children, who may also be carriers.

25% chance of 2 carriers having a child with the condition which would become evident quickly and is treatable - although it would need lifelong drug treatment.

YABU - say nothing. Why worry other people when you have no diagnosis.
YANBU - of course you should tell them what you suspect.

Just to clarify, DH has sadly died so is in no position to tell them himself.
The condition did not cause his death.

Romantic Catholics @Minimalme !

Thank you @Dibbydoos .I am truly heartbroken.

What you describe was my way of thinking.
Forewarned is forearmed and all that.

There is genetic testing available for this condition but if you don't know it may run in the family, it won't be on your radar.

Yes I would definitely tell them - they deserve to be in full posession of the facts and your thoughts, and they can then make their own decisions based on that.

Also my condolences OP, I'm sorry you're having to deal with this after your loss

Yep, tell them. My husband has an inherited condition and because we know about it, he’s screened regularly and we were offered ivf with PGD on the nhs to avoid passing it on to our son. We are really grateful to know.

Also, I am so sorry for your loss.

I would, but get medical advice first.

My DSS has a hereditary medical condition. If untreated it can be serious, but he has treatment and lives a full sporty teen life.

Other DSC don't have it.