To be thoroughly sick of Tourettes?

[Tourettes123]

Im sure you all know by now that I have tourettes and I advocate to raise awareness for it.

Anyway, to be quite honest at the moment I am thoroughly sick of the tourettes.

I can't stop ticcing racist and offensive shit. Among all the other ones too. Its so painful and tiring and I hate being stared at and threatened and shouted at.

Im just sick of it. If I could take a magic pill that would get rid of it I totally would.

There is so little understanding and compassion for tourettes in public. This just makes it so much harder to live with.

I just dont get that people dont have more compassion and understanding, for people who have tics. From people who have mild tics to severe tics, no one has any understanding for it.

I hate it so much. I don't want to shout and say this shit. Do you really think I want to shout the n-word, or heil hitler or whore or slut or fatty. Or all the other weird shit my brain makes me shout and say.

anyway, that is my rant for today.

Yanbu at all. Rant away here if it helps.

I'm sure you are well up on all the latest research but I heard a program on Radio 4 this week about an electrical stimulator which massively helped reduce tics. It sounded really hopeful.

best wishes.

www.nottingham.ac.uk/news/spin-out-company-launched-deliver-wrist-device-control-tourettes

I was looking at acupuncture, maybe this could help?

www.healthcmi.com/Acupuncture-Continuing-Education-News/1749-acupuncture-controls-tourette-s-syndrome-over-drugs

You poor devil. I have a DC that has developed stress related physical and verbal tics, and gosh, it gets her down. Even before that, though, I was aware of tics and tourettes, and assume that if there is something like that, that this is what it is.

YANBU at all.

One of my kids has it and luckily it's been quiet for years. He is ticking at the moment but it's little grunts rather than words.

It's utterly miserable. There is fuck all understanding. Fuck all help. People still think it's hilarious to joke about it. The 'treatments' available are few and far between. There has been so little money and research put into it - when he was diagnosed he could barely walk due to multiple physical tics. He had to lurch against the wall with every step to keep his balance. He couldn't read as he shone his head so much. He was 8 at the time. All that was said was 'he might grow out if it'. It was heart breaking. We felt so alone and as though life would never be ok for him. His class teacher described him as a 'strange little man'.

Its shit OP. I have nothing to say than to offer you a hug and hope that there is something around the corner to help. Can you get on any trials? I know sS Thomas's in London are doing research in conjunction with European hospitals and Yale. Not sure if it's just for kids though.

Does cannabis help? Could you petition to get the medicalised version if it does? Tourette's is a life changing and really difficult to manage. People treat it like a joke or a freak show.

Sending you a hug.

I have heard about the trial, some of my friends are on the trial. Id love to try it out but its about an 8 or so hour drive from me unfortunetly.

Thanks guys.

I just hate it so much. People always joke about it, in public, on forums, everywhere. Its bloody ridiculous. Its not a fucking joke, its fucking awful.

i hope tics have calmed down a bit, my dd has Tourette’s she’s 19 and when she has a flare up it’s so sad to see her struggle.
hugs x