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Removing breasts and ovaries to reduce cancer risk?

30 replies

RemoveRemoveRemove · 03/06/2022 19:24

I wondered if anyone knows anything about this, if they have considered it or known anyone who has?

My Mother has ovarian cancer and we have breast cancer in our family also. She had a genetic consultation and the Dr advised her daughters had surgery to remove ovaries at menopause.

I haven't started reading up yet, and thought discussion with other women and hearing various opinions might be a place to start hence posting.

OP posts:
RandomMess · 03/06/2022 21:24

Our ovaries change loads throughout each cycle so yep makes scans totally unreliable for screening.

MatchaTea · 03/06/2022 21:31

@SickSadWorId do you know which ones they tested? And when were you tested? Even just a few years ago, genetic testing was in the order of hundreds pound for some genes and thousands for others such as the NF1 gene . Genetics a few years ago would carefully select which to test for. Now the cost has dropped so much, the whole cancer panel is just few hundreds US$

@MrsSkylerWhite so stressful. I would suggest you consider a consultation with the Longo Foundation www.fondazionevalterlongo.org/en/ to adopt preventative measures since surgery isn't an option yet - which I find disgusting to be honest.

SickSadWorId · 03/06/2022 22:24

It was about 6 years ago and I don't know exactly which ones were tested for, the BRCA ones were definitely included but not sure beyond that.

MatchaTea · 03/06/2022 23:41

6 years? Massive, massive difference in lab cost. From roughly US$ 1.800 - 2.000 per gene to US$ 250 for a whole panel . It is cheaper than an MRI.
You could ask a review maybe? Ask also to have a copy of your gene testing result. You are entitled to them.

SickSadWorId · 03/06/2022 23:47

But I'm happy with current situation with annual screening.

Are you in the US @MatchaTea as you quote costs in US dollars?

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