Meet the Other Phone. Protection built in.

Meet the Other Phone.
Protection built in.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Brain ' growth' or trauma

9 replies

balanceisoff · 25/05/2022 10:03

So this is the diagnosis my partner has been given after weeks of hospitalisation Amd
Tests including
Many LPs,MRIS, CTs, brain angio and many many bloods and X-rays .
He had a stroke which affects his left side/ facial nerve palsy/ blurred vision/ ptosis/ poor gait etc.
Many lesions showing on diagnostics ... each changing all the time.
There seems to be a growth in the midbrain.
Too deep to resect and
No talk of radiation .
His symptoms come and go.
AIBU to think that there is no hope?
He had an injury to that same area in terms of a crash the day before the symptoms presented . The DRs think it may be trauma ,either .
Any experience or idea of
Prognosis here . What's going on ?

OP posts:
TheVanguardSix · 25/05/2022 10:10

So he recently had a traumatic head injury then presented with symptoms/had a stroke and was hospitalised where he's been for several weeks.
And imaging shows a mass and several lesions?

Sorry, just trying to work out the pattern of events.

What is the diagnosis they've given? Sorry to be a pain but you haven't actually said what that is.

balanceisoff · 25/05/2022 10:16

They are stumped.
Thanks
For response firstly.
No diagnosis but they said it's eall ther a brain growth or trauma.
They have genuinely tried so many tests and investigations but cannot understand why the symptoms are coming and going. There is talk of a ' creeping' type mass???
Never heard of this but there is no plan for treatment as the growth is too deep in the midbrain and no talk of radiation either

OP posts:
TheVanguardSix · 25/05/2022 10:25

I'm assuming he's being after by a good neurology team?

I think, at this point, if they can't diagnose, you'll have to talk about management of symptoms. I'm assuming there's no talk of radiation because they don't know if it's a tumour they're dealing with (which is what radiation would be used for- killing cancer cells/shrinking their growth).

It's frustrating and terrifying being in the dark.
Have they offered some sort of care plan?

balanceisoff · 25/05/2022 10:31

We're waiting on that.
For the moment it's discharge , come
Back of any more symptoms
Amd
Ct In six weeks

OP posts:
balanceisoff · 25/05/2022 10:33

They have involved lots of neurologists from Different hospitals . I
Can't fault them although he is taking up a bed for nearly five weeks just
Lying around awaiting tests so they tried to discharge him
A
Couple
Of weeks ago but I refused to accept discharge. He developed facial
Neuropathy a few days later

OP posts:
bigbluebus · 25/05/2022 10:55

Why did the crash happen? Is it possible this lesion was already in his brain and a medical event caused the crash?
Sorry you are going through this stressful and uncertain time. Hope you get some answers soon.

balanceisoff · 25/05/2022 10:58

No we were ploughed into.
He banged that part of his skull in the crash. Too much of a coincidence I think but the growth has thrown
Me
Amd the way the symptoms have come and gone and continue to do so

OP posts:
balanceisoff · 25/05/2022 10:59

Thanks

OP posts:
balanceisoff · 25/05/2022 11:00

I find it hard to understand the rationale behind discharging him without a diagnosis treatment plan and discharge plan .
AIBU

OP posts:
New posts on this thread. Refresh page