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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Brain ' growth' or trauma

9 replies

balanceisoff · 25/05/2022 10:03

So this is the diagnosis my partner has been given after weeks of hospitalisation Amd
Tests including
Many LPs,MRIS, CTs, brain angio and many many bloods and X-rays .
He had a stroke which affects his left side/ facial nerve palsy/ blurred vision/ ptosis/ poor gait etc.
Many lesions showing on diagnostics ... each changing all the time.
There seems to be a growth in the midbrain.
Too deep to resect and
No talk of radiation .
His symptoms come and go.
AIBU to think that there is no hope?
He had an injury to that same area in terms of a crash the day before the symptoms presented . The DRs think it may be trauma ,either .
Any experience or idea of
Prognosis here . What's going on ?

OP posts:
TheVanguardSix · 25/05/2022 10:10

So he recently had a traumatic head injury then presented with symptoms/had a stroke and was hospitalised where he's been for several weeks.
And imaging shows a mass and several lesions?

Sorry, just trying to work out the pattern of events.

What is the diagnosis they've given? Sorry to be a pain but you haven't actually said what that is.

balanceisoff · 25/05/2022 10:16

They are stumped.
Thanks
For response firstly.
No diagnosis but they said it's eall ther a brain growth or trauma.
They have genuinely tried so many tests and investigations but cannot understand why the symptoms are coming and going. There is talk of a ' creeping' type mass???
Never heard of this but there is no plan for treatment as the growth is too deep in the midbrain and no talk of radiation either

OP posts:
TheVanguardSix · 25/05/2022 10:25

I'm assuming he's being after by a good neurology team?

I think, at this point, if they can't diagnose, you'll have to talk about management of symptoms. I'm assuming there's no talk of radiation because they don't know if it's a tumour they're dealing with (which is what radiation would be used for- killing cancer cells/shrinking their growth).

It's frustrating and terrifying being in the dark.
Have they offered some sort of care plan?

balanceisoff · 25/05/2022 10:31

We're waiting on that.
For the moment it's discharge , come
Back of any more symptoms
Amd
Ct In six weeks

OP posts:
balanceisoff · 25/05/2022 10:33

They have involved lots of neurologists from Different hospitals . I
Can't fault them although he is taking up a bed for nearly five weeks just
Lying around awaiting tests so they tried to discharge him
A
Couple
Of weeks ago but I refused to accept discharge. He developed facial
Neuropathy a few days later

OP posts:
bigbluebus · 25/05/2022 10:55

Why did the crash happen? Is it possible this lesion was already in his brain and a medical event caused the crash?
Sorry you are going through this stressful and uncertain time. Hope you get some answers soon.

balanceisoff · 25/05/2022 10:58

No we were ploughed into.
He banged that part of his skull in the crash. Too much of a coincidence I think but the growth has thrown
Me
Amd the way the symptoms have come and gone and continue to do so

OP posts:
balanceisoff · 25/05/2022 10:59

Thanks

OP posts:
balanceisoff · 25/05/2022 11:00

I find it hard to understand the rationale behind discharging him without a diagnosis treatment plan and discharge plan .
AIBU

OP posts:
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