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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Medical history/diagnoses

28 replies

JetTail · 19/04/2022 13:02

I'm just wondering whether anyone is under different hospital trusts for different conditions?
My local hospital trust covers 3 London Hospitals and sharing within that trust is readily available between the hospitals (blood results/attendances at A&E/admissions).
However, I am also under a different hospital trust for exploration/monitoring of one diagnosis.
Obviously the GP can see all letters, but they are not necessarily proactive about joining the dots.
My concern is that on my list of diagnoses at the local hospital trust, one diagnosis is not recorded (as it was diagnosed following an admission to the other trust as the ambulance brought me there as nearest hospital was on divert) and they are indeed not aware of it even being investigated.
I wonder how things operate on that basis if anyone else is in a similar situation? I'm thinking along the lines of the importance of all diagnoses being available at A&E should I ever be unconscious on arrival?

OP posts:
JetTail · 22/04/2022 12:37

MrOllivander · 22/04/2022 11:46

So settings, health, medical ID, and make sure it says sharing Lock Screen
That means people can access it but it's not saved on your Lock Screen
Then in notes I have everything typed up so I can just wave my phone at hospitals rather than talk through it all!

Thank you.

OP posts:
KyieveMii · 22/04/2022 12:44

We’ve had difficulty in London with this and epilepsy. Being admitted on blue lights to resus multiple times fitting becomes ‘mum witnessed a suspected seizure’ at another hospital. No record of admission, and worse no belief of my word. I feel like it’s gaslighting sometimes.

JetTail · 22/04/2022 14:54

KyieveMii · 22/04/2022 12:44

We’ve had difficulty in London with this and epilepsy. Being admitted on blue lights to resus multiple times fitting becomes ‘mum witnessed a suspected seizure’ at another hospital. No record of admission, and worse no belief of my word. I feel like it’s gaslighting sometimes.

I've had similar happen but didn't want to give too many details. Not with a condition for which warning bracelets are offered for though. I've crashlined (I think that's the term) a couple of times since January and still they do not know of every occasion!

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