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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to feel like I could be really unwell?

105 replies

feelingrubbish22 · 18/04/2022 22:16

So I don't think i'm actually dying as this feeling has come and gone over a few years, but more recently i've been feeling so unwell, that if I was told I am dying, I don't think i'd be surprised. Its just no quality of life.

I work full time, and I don't even know if I can continue to if I can't sort this out. I worked 8 hours today and felt so spaced out and like I could pass out at times. So tired, and my muscles, in particular my arms, feel like weights, I could barely lift something up onto a shelf. Even standing and walking about I felt off.

I am only in my early 30s, and I know this is isn't right. But doctors keep telling me i'm fine! Blood tests keep coming back 'fine'.

I've tried to explore different routes, taking vitamins, vitamin D, iron tablets from over the counter when my ferritin was low. (its now fine apparently) B12 always been fine. I've had my thyroid tested multiple times and been told 'fine' and tsh is within range. I have however been told my thyroid doesn't 'feel' right when a doctor felt it, and I should be having tests done soon.

I'm also not diabetic, as been tested a few times. I have on couple of occasions had low blood pressure, but more recently when doctors have tested it, its been fine. I've even tried to block out the idea that I feel so ill and just carry on and work through it but that hasn't helped either.

The weird thing is, there are times this comes on and I can feel this way for about a week or two, but then I can have another few weeks where I feel much better, but not at the level of energy I expect I should have. This made me wonder if it could be hormone related? But if so, what? My periods are every month as normal.

When I'm having one of these week long 'episodes', I notice the only things which make me temporarily feel better is to eat sugary foods, and/or take aspirin, paracetamol and caffeine. After a couple of hours though, I'm back to feeling horrendous.

Has anybody got any idea what the heck is wrong with me? At this point I would go private but with the cost of living rising, I really can't afford to!

I'm just miserable.

OP posts:
Anxiouslikenoneother · 20/01/2023 16:43

@feelingrubbish22 do you mind me asking if you ever got to the bottom of feeling so unwell? How are you doing now?

Goodyetalso · 20/01/2023 23:03

Anxiouslikenoneother · 20/01/2023 16:43

@feelingrubbish22 do you mind me asking if you ever got to the bottom of feeling so unwell? How are you doing now?

I’m not the OP but I also posted in this thread about 9 months ago. I was extremely unwell and getting nowhere as my bloods were mainly normal.

long story short, I ended up with an emergency rheumatology appointment as I rocked up at the doctors with a classic malar rash on my face (which, incidentally, I saw them about years ago and was fobbed off). I paid for a private appointment, had an ANA test which came back with an extremely high positive, they tested some other stuff and it turns out that I have Lupus. I have been practically begging doctors to consider that I have an autoimmune disease for the part 10 years and been treated like a hypochondriac every time. Keep pushing, everyone - you are not crazy and it is not all in your head. Unfortunately my medication isn’t working yet but I’m hoping that it will help soon.

CrunchyCarrot · 21/01/2023 10:19

So sorry to hear of your diagnosis @Goodyetalso, I've a friend with Lupus. Best wishes for your treatment and that you will get it under control.

Goodyetalso · 21/01/2023 10:39

CrunchyCarrot · 21/01/2023 10:19

So sorry to hear of your diagnosis @Goodyetalso, I've a friend with Lupus. Best wishes for your treatment and that you will get it under control.

Thank you 💐

Willowweb · 09/05/2025 13:12

Having parathyroidectomy in the next few weeks. Top specialist surgeon. Still scared especially of general anaesthesia and maybe my voice being affected. Nervy and tearful all day. I'm in my 60s but generally fit and well. Hate needles etc. looking for reassurance

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