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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think emulsifiers should be banned or at least reduced

65 replies

MumofCrohnie · 02/04/2022 23:52

My daughter became seriously ill aged 10 with cramps, diarrhea, weight loss. Within a month or two she could barely walk 100 metres without getting a stitch, was breathless, routinely ran high temperatures and began vomiting randomly. She would wake at night crying in pain from her legs aching or her back hurting. She stopped growing and her skin went grey.

After 2 GP trips, 2 A and E visits within a month, and an emergency gastro appointment she was finally diagnosed with severe Crohn's disease. This disease was once virtually unknown in children but since the 1970s has grown enormously in children. It is now not particularly rare in children and increasingly common in adolescents and young adults. It is incurable and my daughter is now on 4 separate medications daily, quite probably for life. She has a 70 percent chance of in the future needing operations to remove sections of intestine, risks strictures, blockages, and fistulas in her intestines. She will probably go through early menopause.

There is increasing evidence that the Western diet contributes to the development of Crohn's in genetically susceptible people (her great grandma developed Crohn's in her 70s, back in the 1980s). Specifically, it seems that emulsifiers, carageenans, and maltodextrins may be a significant factor in developing Crohn's. In animal models there is pretty good evidence for emulsifiers. Emulsifiers bind fat and liquid and are used in bread, ice cream, sauces, baked goods etc almost ubiquitously in the UK. They are considered "safe", despite animal evidence showing they probably aren't. Since emulsifiers were added to prepared foods, Crohn's levels have increased hugely. This is a serious disease and it ruins lives.

AIBU to say that British food companies should be more wary of emulsifiers and label them in their food, provide emulsifier free alternatives and label items emulsifier free for families with an IBD history? Just like they make gluten free, dairy free and vegan foods?

OP posts:
MumofCrohnie · 03/04/2022 00:01

Here is just one article, in case people think I am making this up.

I am now beating myself up for eating "low fat healthy foods" packed full of emulsifiers to give a creamy mouth feel without fat, and giving them to my family. I probably contributed to my daughter's ill health. But I had no idea.

www.sciencedirect.com/science/article/pii/S2213453018301265#:~:text=A%20growing%20number%20of%20studies,1%2C2%2C43%5D.

OP posts:
FelicityBeedle · 03/04/2022 00:03

Plenty of other articles that aren’t nearly so definite, seems like high fat and sugars are also possible factors, and the most common emulsifier (lecithin) is almost definitely not a factor. I think labelling at this stage of link is an overwrought response, people who know they have the genetic predisposition should just check the labels and avoid as much as they wish to

Chloemol · 03/04/2022 00:12

It’s well known that all low fat, supposedly healthy foods are not as they are full of additives, chemicals etc

That’s why I don’t eat them, encourage family and friends not to eat them and eat proper fresh food in

MumofCrohnie · 03/04/2022 00:15

Ok Felicity, fair enough. But do you not think people with family histories of autoimmune gut diseases and IBD should know more about this possible link, and it should therefore be easier to buy, for example, bread without emulsifiers?
Here's another study
microbiomejournal.biomedcentral.com/articles/10.1186/s40168-020-00996-6
Maltodextrins are the top ingredient in instant gravy.
It's been incredibly hard to find gravy without maltodextrins in. At one point my daughter was more or less only eating mash with gravy.
Now I know better, I make gravy without maltodextrins.

OP posts:
MumofCrohnie · 03/04/2022 00:17

chloemol I don't think it is well known.

I did slimming world for years and years. Ate flora lightest. Go ahead biscuits. Low fat yoghurt.

I had no idea it wasn't "healthier".

OP posts:
HereTodayHereTomorrow · 03/04/2022 00:18

Whilst the link maybe true, surely the bigger cause of the higher numbers of people with Crohns is that they’re surviving, and passing on the genes? I have nut allergies which people love to tell me didn’t exist when they were kids - except they did, but the people with them were dead!

Stompythedinosaur · 03/04/2022 00:22

I mean, egg yolk is an emulsifier and so is mustard. So I won't support a total ban, no.

gogohm · 03/04/2022 00:26

@MumofCrohnie

I knew about the risks 20 years ago, my kids only had real butter, real sugar and homemade food at home until I could no longer control what they ate (teen years) we did eat out but chose fresh cooked places eg grilled meats at the Turkish place.

I object to vegan diets because so many of the touted products are full of artificial stuff eg spread.

It's tough but possibly to avoid food by reading labels and meal planning scratch cooked foods

MumofCrohnie · 03/04/2022 00:28

Rephrasing: not a ban then, only a ban on the dangerous emulsifiers, carageenans, gums? Or at least options to avoid?

I do realize egg, honey etc are slightly different and the jury is out on some lecithins.

People have historically not got Crohn's in childhood, Heretoday. As I said, my daughter's great grandma obviously had the genes, but didn't get ill until her 70s. So I don't think it's that everyone used to die.

OP posts:
MumofCrohnie · 03/04/2022 00:30

Exactlygogohm - I didn't know. I wish I had.
Vegan diets, baked gluten free foods too..so much artificial stuff.
I have learned my lesson.

OP posts:
sessell · 03/04/2022 00:34

@gogohm erm you do realise that you can avoid processed crap in a vegan diet as well as a non-vegan diet...

FelicityBeedle · 03/04/2022 00:43

Perhaps there does need to be more awareness of the effects they have in some individuals, but a ban is not the answer when it’s perfectly fine for most people.

Also if you want to ban gums you are going to drastically affect the availability of most gluten free items, as they need commercial emulsifiers to replace the gluten

Soontobe60 · 03/04/2022 00:45

@MumofCrohnie

Rephrasing: not a ban then, only a ban on the dangerous emulsifiers, carageenans, gums? Or at least options to avoid?

I do realize egg, honey etc are slightly different and the jury is out on some lecithins.

People have historically not got Crohn's in childhood, Heretoday. As I said, my daughter's great grandma obviously had the genes, but didn't get ill until her 70s. So I don't think it's that everyone used to die.

But they’re not dangerous to the majority of the population. There’s plenty of scientific evidence that shows carrageenan to be safe. The research carried out on rodents and cells were done at a molecular level. The product wasn’t taken orally. Therefore it is impossible to ascribe any findings in this type of research to oral consumption in humans.
silentpool · 03/04/2022 00:56

It seems that some are more harmful than others, see this article. But I avoid all of them. I find there are choices on the shelves that don't contain them. Generally speaking, it would be better to avoid shelf stable foods wherever possible.

ixcela.com/resources/this-hidden-ingredient-could-be-sabotaging-your-gut-health.html

Antarcticant · 03/04/2022 01:08

Don't berate yourself, OP. We have been conditioned into eating all sorts of things which, if presented out of context, we would not recognise as food. Corporations spend vast amounts on persuading us that this is acceptable.

Cook from scratch, using as much fat as you need - but choose unprocessed fats such as olive oil, butter, lard etc. Avoid anything that is branded as low fat because it will be full of rubbish to compensate for the removed fat. Fat, as long as it isn't processed, is not your enemy.

Potatoesdonthavefaces · 03/04/2022 01:09

I had no idea OP, thanks for the warning. So sorry about what has happened to your daughter. It is not your fault. I am the type of person that is generally well informed on health issues and had never heard of this link, I don't think it's common knowledge at all.

maddening · 03/04/2022 01:44

I think that despite all the advances the gut remains in some ways a mystery, I have IBS , which really means " we don't have a fucking clue what is wrong with you, try a couple of diets and peppermint products", it is frustrating.

Cardboardboxingring · 03/04/2022 01:55

I'm with you OP, if not an outright ban I'd much prefer if there was more awareness of the potential effects of emulsifiers and better labelling of products which contain them. I went through a period of getting awful cramps, lightheadedness, sweating and actually vomiting from the pain after eating and it took me ages to realise it was guar gum that was causing it. While others say to just read labels and avoid it, it's not that simple: it's in everything from ice cream to salad dressings.

ClumpingBambooIsALie · 03/04/2022 02:19

Instead of asking for a ban on things that other people benefit from (see PP's point about the fact gluten-free bread alternatives need many of these ingredients) and that haven't been shown to be dangerous to the majority of people, campaign for better labelling? You know, like coeliacs and people with allergies and other dietary needs have spent decades doing, without asking for bans on wheat or sulphites or phenylalanine. If you did that you'd have my support; on the other hand, if you campaign for a ban on ingredients that help make gluten free bread vaguely palatable, you'd have my strong position. It's best not to alienate potential allies.

ClumpingBambooIsALie · 03/04/2022 02:20

*strong opposition 🙄 bloody phone.

urbanbuddha · 03/04/2022 02:37

I agree with you OP. I'm sorry to hear about your daughter and I hope her condition can be managed, and that medical science comes up with improved treatments.
Don't beat yourself up about this. There is so much clever marketing and conflicting advice it's not always clear what's healthy and what's not.

MumofCrohnie · 03/04/2022 05:03

@ClumpingBambooIsALie

Instead of asking for a ban on things that other people benefit from (see PP's point about the fact gluten-free bread alternatives need many of these ingredients) and that haven't been shown to be dangerous to the majority of people, campaign for better labelling? You know, like coeliacs and people with allergies and other dietary needs have spent decades doing, without asking for bans on wheat or sulphites or phenylalanine. If you did that you'd have my support; on the other hand, if you campaign for a ban on ingredients that help make gluten free bread vaguely palatable, you'd have my strong position. It's best not to alienate potential allies.
If you read my updates you will see that I accept that my initial post was badly phrased. Better labelling and harmful emulsifier free options would be fine.
OP posts:
MumofCrohnie · 03/04/2022 05:15

"But they’re not dangerous to the majority of the population. There’s plenty of scientific evidence that shows carrageenan to be safe. The research carried out on rodents and cells were done at a molecular level. The product wasn’t taken orally. Therefore it is impossible to ascribe any findings in this type of research to oral consumption in humans."

Soontobe60 - wheat isn't harmful to most people, but they provide wheat free items. Dairy isn't either, but likewise.

Research has been carried out on humans. Obviously it's ethically difficult and recently been hampered by covid.
Examplekclpure.kcl.ac.uk/portal/en/theses/foodadditive-emulsifiers-and-the-low-emulsifier-diet-in-crohns-disease(81ccfe21-1eb1-457f-8c2f-46e8aceae7f6).html

www.ecco-ibd.eu/publications/ecco-news/item/diet-in-the-treatment-paradigm-of-crohn-s-disease-new-evidence-new-strategies.html

OP posts:
MumofCrohnie · 03/04/2022 05:28

Soontobe60
Carageenans are not at all shown to be safe with plenty of scientific evidence. Quite the reverse. Loads of references in this paper
www.ncbi.nlm.nih.gov/pmc/articles/PMC5410598/

OP posts:
ClumpingBambooIsALie · 03/04/2022 05:41

I was responding to your most recent mention of the question of bans, which was this: Rephrasing: not a ban then, only a ban on the dangerous emulsifiers, carageenans, gums? which is still calling for a ban. Your family's needs are not more important than other people's. Lots of people have to read labels.