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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Terrible confession

223 replies

Adventurine · 22/03/2022 14:22

I'm about to say something terrible. And I only say it here because you don't know who I am.

I have a DD who has a neurological condition which can fluctuate. Some days she can walk. Some she cannot. She has tremors, clonus, spasms, dystonia, tics, incontinence, fatigue and complex pain.

This came out of nowhere for her a couple of years ago. Like- boom- now you can't be "normal."

I get how hard it is for her. I really do. But she is so so demanding and I swear she sees me as little more than her personal servant. What really pissed me off this week is that I have Covid, I'm really struggling, my other two kids have Covid, DH has been away for work. She's been off school after a recent spell as an inpatient trying to manage pain around her spine. She is sending me messages like "Mum, can you come and help me move to a more comfy position" and "mum, I'm hungry, can I have noodles" and "can you bring me a cold drink?" But if I don't respond within a few minutes she'll do this relentless whimpering that's so loud you can hear it anywhere in the house. On every outward breath. And she can keep it up for hours.

She can get herself to the loo. She can get herself up to get some chocolate or to plug her phone in or get her laptop. That's no issue. But everything else she seems to want to be served, regardless of how active or inactive her condition is. And this is round the clock. When it's terribly bad, of course I am there, but I don't see that I need to be stuck to her like glue and indulging every demand when it's not!

Today I have said to her that if she makes that kind of whimpering "I'm in agony" noise when she's just being mildly inconvenienced, she runs the risk of not being believed when she is in agony, since people will be so used to hearing it it won't spark any concern. I also told her to be respectful of the fact that I have three children who all need my help at the moment and that I am pretty bloody ill myself, so please dial down the whimpering and the demands, it's not fair, especially when I can literally see she's done stuff for herself like getting chocolates and ice lollies etc.

She didn't send me a message all day and was getting herself about, then just now she's messaged me saying she's in unbearable pain but she's trying to keep it under wraps so it doesn't inconvenience me and her siblings, and she's starving so can I please make her some lunch. She's made herself a sandwich half an hour ago and she seemed fine then. I KNOW when she's in pain. I feel like she's maybe taking out her frustration of her bodily limitations by getting me to do everything? I don't know. She soon snaps out of her infirmity when friends come to visit! Obviously not on terrible days, she wouldn't be able to, but on all the other days where she communicates a sheer inability to do anything so that I have to do it all.... if a friend comes, suddenly she's capable of getting up, doesn't make the whimpering noise, will happily go and get drinks and snacks etc, will do makeup and things.

It's pissing me off and I don't know how to address it properly because she does have a condition that requires an awful lot of support and she attends a school equipped to give it. No learning difficulties, just physical ones. I can't see how to tell her I'm not her goddamn slave without upsetting her and potentially making more work for myself as huge relapses in her condition are often brought about by stress.

AIBU to feel pissed off and really worn down by it?

OP posts:
StopGo · 22/03/2022 16:52

@SexiestDogWalker I walked in your shoes for decades with a severely disabled family member.

I got so bone tired that I developed what I think is know as compassion fatigue. What helped me was approaching Social Services for a whole family assessment and being honest in saying I couldn't cope.

You and DD may both benefit from a care package so you can be DM and DD once again and not her 'staff'. Flowers

WonderfulYou · 22/03/2022 16:54

YANBU

I work with teens like this and they’ll pull the disability card whoever they get the chance.

The fact is is that one day you want her to be as independent as possible and that means her doing things for herself.

If you KNOW she can do something but is just being lazy then definitely get her to do it and explain you’re doing it for her own good.

A teen is a teen though and they’ll always be lazy and think it’s unfair that you don’t do every single thing for them.

Pawtriarchal · 22/03/2022 16:56

@bluedodecagon

You have to admit it’s a little bit ironic that you want sympathy for having a week long flu virus but your sympathy has dried up for your daughter whose life has been destroyed by a long term condition.

You’re complaining about a cough that will be gone in a week and she can barely walk… for the foreseeable future.

She’s letting off steam and maybe asking for advice in a relentless situation. She is allowed to have feelings. Women and mothers are expected to be saints and not even have unsaintly feelings.

The OP is ill and worthy of compassion regardless. It’s not irony. And she doesn’t ‘have to admit...’ anything. I hope your post fulfilled some need for you, as it likely made a person in a hard situation feel worse.

irritablehead1 · 22/03/2022 16:58

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irritablehead1 · 22/03/2022 16:58

I am shocked how many judgemental people are on this thread

sparepantsandtoothbrush · 22/03/2022 16:59

@bluedodecagon

You have to admit it’s a little bit ironic that you want sympathy for having a week long flu virus but your sympathy has dried up for your daughter whose life has been destroyed by a long term condition.

You’re complaining about a cough that will be gone in a week and she can barely walk… for the foreseeable future.

Oh shut up. What a load of crap. OP is still doing what needs to be done even while feeling really unwell. The point is the DD isn't doing things when she's well enough to do them but is then perfectly ok when her friends come to visit or she needs to walk to get a bar of chocolate. She's a piss taking teenager sometimes which is the issue
SpaceshiptoMars · 22/03/2022 17:01

@irritablehead1

I am shocked how many judgemental people are on this thread
There's a Report button. Use it!
Adventurine · 22/03/2022 17:01

@Pawtriarchal

Is it worse when you or others are ill? I mean, is she more demanding when some of the usual attention is (naturally) going elsewhere?
Good question. I can honestly say that I'm not sure. I know I find her more challenging when I'm unwell but I can't say if that's because she is or because I have less capacity to cope!
OP posts:
Gizacluethen · 22/03/2022 17:01

It sounds so hard, yeah she's taking advantage. But even on good days she's also mentally exhausted from the struggle of the bad day. I can see why she's feeling like she just wants to rest even when she's not in agony. But she also needs to understand how much you do and that you also need to rest. I think what you told her is fair and I think you should say no to things that you feel she's able to do. She's not going to die without the TV remote and it's only as far away as she was able to go in the first place.

WiddlinDiddling · 22/03/2022 17:03

Of course the OP should be able to let off steam in a safe place - the fact the OP's daughter has a chronic condition does not mean the OP's own illness simply vanishes or isn't unpleasant and hard to cope with!

OP - I think you need to explain to your daughter that she needs to start being independent where she can - for example, she's perfectly capable of being in hospital by herself for some periods, she does not NEED you sleeping in a chair by her bedside 24/7, and if her chronic illness is lifelong she will need to get used to navigating hospital visits and stays - as scary as that is and as harsh as it may sound, hospitals can actually be a pretty good place for practicing being independent (she will also find that lying there whimpering and bossing folk around gets her nowhere!).

Quitelikeit · 22/03/2022 17:08

Sorry to hear of your situation - you quite rightly seem exhausted and fed up.

I have no idea really but in your shoes I would not be jumping every time.

Only certain things that were urgent would get urgent attention.

Other requests they could wait.

Could you ask for the whimpering noise to stop? Explain it triggers a headache (white lie)

Sorry this has happened to your family

WarmSausageTea · 22/03/2022 17:08

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tkwal · 22/03/2022 17:09

bluedodecagon
I suppose you think the people hospitalised by covid are laying it on with a trowel and attention seeking?

Adventurine · 22/03/2022 17:10

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Malibuismysecrethome · 22/03/2022 17:10

Even if you were able to afford a full time nurse for your daughter they would not be there for her every whim. They would have a routine for her care and not be running around all day long at her every behest.

Adventurine · 22/03/2022 17:14

@Malibuismysecrethome

Even if you were able to afford a full time nurse for your daughter they would not be there for her every whim. They would have a routine for her care and not be running around all day long at her every behest.
I think that's partly why she needed me in hospital. And I feel awful saying it because a lot of it is that she was scared and she wanted her mum and also because they aren't allowed visitors still, but I think partially it was because she didn't think she'd be helped when she needed it. Which then fed into the asking for help when she doesn't need it because why the heck not? She's at that age where she doesn't see me as a flawed human being with a need for rest and my own emotions. Just an unwavering provider
OP posts:
overnightangel · 22/03/2022 17:14

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Pawtriarchal · 22/03/2022 17:14

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whataboutbob · 22/03/2022 17:15

@StopGo compassion fatigue is exactly what I developed looking after my father who had a very restless and aggressive form of dementia, for 5 years. The compassion, past a certain point, stopped me from being effective in the million and one things I needed to do to keep him safe. I just had to become quite business like or I was going under.
I have no real advice @SexiestDogWalker but in my role as a health care professional I have come across some cases of super dependent and emotionally manipulative ( of their parents) young adults with complex disabilities. I would think that now is the time to set some boundaries ( easier said than done) and seek professional help in doing so if necessary.

SpaceshiptoMars · 22/03/2022 17:17

I think you have to deal with the constant demands with humour. Point out that you are not a robot vacuum cleaner etc etc. If you can do that in an amused tone of voice when you are not at wit's end, and keep doing it - might help.

impossible · 22/03/2022 17:18

I'm so sorry you're going through this OP. Your DD is having to adjust but it would be best if she could learn to do what she can for herself and ask for help when she needs it (though I wonder if she really knows the difference). My own DCs as teens often wanted reassurance and it was difficult not to just leap in as a servant and comforter when their lives were a struggle. I can't imagine how hard it must be to get the balance right when your DD is living with these health conditions.

Ask the team who care for your DD if there is someone you could talk to, ideally a counsellor. If they can't help keep looking - you need someone to help you make sense if this situation and figure ways forward. Other parents in a similar situation might also be useful. And I would recommend you get some family therapy for you, DH and DD so you can try to figure things out in a safe space.

You sound like a great mum and although covid is making things harder I imagine life is generally very difficult. Please look for help for yourself - you are the linchpin for your family and your mental health is important. Your DD has counselling - you need support for you and separately for your family unit.

Good luck.

Annette32123 · 22/03/2022 17:19

You do need to create and maintain some boundaries with your daughter, which will be difficult for you. But this is a long game and you will make yourself unwell unless you develop strategies to protect your own physical and mental well-being. And she needs consistency which you won’t achieve if you run around accommodating her until you reach exhaustion and then you need a break - that is just inconsistent from where she is sitting.

Would strongly recommend you seek a few sessions for yourself, with a clinical psychologist who specialises in chronic illness, to help you establish some appropriate strategies. If you keep giving and giving and giving to the level you are, it won’t help you or her or the rest of your family in the long term.

You sound exhausted.

Adventurine · 22/03/2022 17:20

@whataboutbob thank you for your perspective, both as a healthcare professional and as an unpaid carer.

I can't work. I can't do anything for myself. I joined a gym a year ago. Signed up for the whole year because I was so determined to do something for me. I've been about six times, although I've been through the door about thirty, walked into the gym or got changed for swimming and had a call from school to come collect her or bring in medication or another change of clothes or something so had to abandon it.

I don't blame her for what she's going through, she didn't choose it and god knows she wouldn't. But nor would I, and it's thankless and draining and I wish someone else would have her for a night or two so I can actually relax. I've been holding myself ready for action for two years. I find myself zoning out a lot in the day, or autopiloting tasks and it worries me. Unfortunately, all family seem to think it would be far too much graft to have her stay over for a night

OP posts:
georgarina · 22/03/2022 17:21

OP I sympathise! I've been diagnosed with moderate ME and it's so important not to get attached to the victim identity. For her as well as for you. She might (subconsciously) feel that ordering you around is the perk she gets for feeling shit, but it actually isn't helpful for either of you. There needs to be a shift to her doing as much as possible, and you being an independent person with your own tasks and needs. It's not wrong for you to be busy, or say no - especially if it's something you know she can do herself.

It will make her feel better to take back some control, and it will help you as well.

Doubledenimrock · 22/03/2022 17:21

Has she tried CBT OP? There is a very interesting connection of perceived pain by building up an expectation of it. This needs addressing. I'm not saying she is making it up but quite possibly she is setting herself up for more pain by pre meditating it...whimpering etc.