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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Could the school nurse help? Who to speak to?

109 replies

UndertheCedartree · 28/02/2022 19:02

I am so upset. My 9yo DD has post-Covid syndrome. The doctor said she still has inflammation in her stomach. She is often suffering with stomach ache and nausea, as well as tiredness and muscle aches. She has had quite a lot of time off school due to this, which upsets her as she likes school.

So, this morning she was in pain but wanted to give school a try. By the time we arrived she was crying. One of the pastoral care teachers came up and I explained. She asked DD if she would like her to take her in and see how she went and if necessary they would phone me. I agreed that with DD. About 11.30 the office phoned me to say her stomach was hurting her. The lady asked whether she should suggest she tried to stay another 30 min. I said please can you ask my DD if she wants to try another 30 min or if she wants me to come and get her now. She phoned the class and then told the member of office staff told me she would try for another 30 min. After 30 min I rang back and was told she had been crying but had now perked up a bit.

When my DD came home she was really upset and clinging to me. Apparently her class teacher had her ready to come home but the message given to her that she passed onto DD was that 'Mum said you need to try to stay at school a bit longer'. Obviously, that went against what we had agreed and DD was completely bewildered and started crying. She was still in a lot of pain but didn't say anything else as she didn't think there was any point. So she stopped crying and the teacher thought she had 'perked up'.

Not only was thinking s bad enough but due to circumstances my DD is very sensitive to being 'abandoned'. This was why she appeared to 'perk up' as she just pushed it all down to cope emotionally.

What is worse is a comment was made by a TA insinuating that she was making it up, perhaps as a response to them thinking I refused to pick her up. But I find it so disheartening. DD loves school - she's not making this up!

Now, her teacher and pastoral care know all about the post-covid syndrome and all the background. Obviously, the receptionist does not and I think she got involved inappropriately. She should have followed mine and the teachers instructions. Also TA probably doesn't know so also shouldn't have got involved.

I'm now feeling really uncomfortable about letting her back to school and she's feeling if she is in a lot of pain noone will believe her/I won't pick her up. So now she is less likely to want to try if she is in pain in the morning.

When I emailed the school about the situation I did ask if the school nurse could help. I'd like a proper plan of how to deal with this. For example is there somewhere she can lie down quietly if her stomach is hurting or she is feeling sick. I didn't get any response to this.

So what would be best? Try and contact the school nurse myself? Speak to someone at school? Sorry this is so long and thank you for reading!

OP posts:
ThackeryBinks · 03/03/2022 20:52

I'm sorry your DD is so poorly post covid. My DD had terrible back pain post covid that no one seemed to be able to help us with. I'm at the local hospital most weeks for an unrelated issue and my nurses thought the bottom of DD's lungs could have been inflamed. I was advised obviously off the record to double her dose of zinc daily. I got really nice vitamin gummies and she has improved. Hope your DD is better soon.

UndertheCedartree · 03/03/2022 20:52

@Imitatingdory

Yes, it could. The nature of the alternative provision depends on the child’s individual needs. If online doesn’t meet DD’s needs it isn’t suitable and the LA must provide something else. For example, I know a child who currently attends school 9.15-12 (would similar timings be better for DD so she receives the core lesson teaching and also isn’t there over lunchtime in case eating triggers her stomach pain?) Monday and Thursday and receives 1:1 home tuition 10-12 Tuesday, Wednesday, Friday (as they cover content much quicker 1:1 they don’t need the 22-25 hours you would if attending school full time.) 2 of my own DC have done similar in the past, and gradually increased the time in school/decreased home 1:1 tuition as they reintegrate into school.

If DD cannot attend full time the onus shouldn’t be on you to provide, supplement or facilitate education, the LA should be providing it.

I think the later start will really help as she will get more sleep. Her teacher commented to me last week that she isn't really awake properly first thing in order to do her best work. I also wanted to make sure she wasn't just going to school for Maths and English, but that she would get a variety of lessons as well as social time. Also her play therapy is in the afternoon. It is a good point about lunchtime as food can definitely flare things up. Hopefully in this case a lie down and painkiller if appropriate would manage it. But yes, it is something to keep an eye on.
OP posts:
UndertheCedartree · 03/03/2022 20:55

@caringcarer

Might it be worth keeping her home for another week to catch up on sleep and relax? Just thinking if your dd is in pain she won't be learning anyway. My sister took ages to recover from Covid and 5 months later still sleeps one whole day over each weekend just to get through the week. She has been to Long Covid Clinic and they told her to add in rest breaks into every day and at weekends get extra sleep.
It's awful isn't it? I had Long Covid for the best part of a year. I found Vit D helped. Thank you for the information. I hope your DS is on the mend soon.
OP posts:
UndertheCedartree · 03/03/2022 20:57

[quote PermanentlyDizzy]@UndertheCedartree Thank you for asking. Ds is still at home, about to start studying a foundation course in the subject he would like to take at uni. He can still only manage very short study sessions and has to work from his bed.

The hardest thing is maintaining friendships. Prior to the pandemic, we used to try and set up a gaming and pizza afternoon a few times a year for ds and his closest friends, to make sure they stayed in touch and he didn’t become isolated. Then covid hit and he’s only seen the, once in two years now, but they keep in touch online. Next year, when they all go off to uni, will be harder. He in involved in online groups relating to his hobby though, so not completely isolated.[/quote]
Oh bless him. Despite his difficulties it sounds like he is doing brilliantly academically. But yes, the friendship side sounds very hard. It's good that have kept in touch online.

OP posts:
UndertheCedartree · 03/03/2022 20:59

@ThackeryBinks

I'm sorry your DD is so poorly post covid. My DD had terrible back pain post covid that no one seemed to be able to help us with. I'm at the local hospital most weeks for an unrelated issue and my nurses thought the bottom of DD's lungs could have been inflamed. I was advised obviously off the record to double her dose of zinc daily. I got really nice vitamin gummies and she has improved. Hope your DD is better soon.
I'm sorry your DD has been struggling too. DD also gets back pain, although not as bad as the stomach pain. I'm going to go through all the information on supplements and try one at a time to see if they help.
OP posts:
Imitatingdory · 03/03/2022 21:01

If food can flare the stomach pains up have you kept a food diary? It isn’t uncommon to develop an intolerance or coeliac disease following a viral infection. Also has GORD been ruled out.

ButterflyBitch · 03/03/2022 21:05

[quote MrsMo21]@UndertheCedartree

Teacher here - request to see the SENCo as your DD needs a healthcare plan (different from an EHCP before anyone thinks that’s what I mean) whereby it is shared with every member of staff and has a list of symptoms and a clear action plan of what to do.
We have them in the staff room for children with allergies, epilepsy, tube fed children etc so we make sure we are all on the same page, dealing consistently with their care.[/quote]
This. She has diagnosed medical
Needs so there needs to be a plan in place for her care that all staff are aware of and can implement in the case of her feeling unwell.

UndertheCedartree · 03/03/2022 21:35

@Imitatingdory

If food can flare the stomach pains up have you kept a food diary? It isn’t uncommon to develop an intolerance or coeliac disease following a viral infection. Also has GORD been ruled out.
Thank you for the advice. We have just started a food diary as dairy appears to be causing problems. No GORD has not been ruled out. She does get heartburn although that isn't the primary gastro pain she gets.
OP posts:
UndertheCedartree · 03/03/2022 21:40

Also has anyone's child had problems with leaking urine after Covid?

OP posts:
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