To feel really worried (pregnancy and bicornuate/ heart shaped uterus)

[JasmineAppleBlossom]

I have endometriosis and have had countless transvaginal scans/ ultrasounds over the years and also had a laparoscopy in October.

I'm 14 weeks pregnant and have had 4 scans in total so far, two private and 2 NHS. Today was my NHS 'dating scan' all good with baby and then Sonographer casually asked if I'd ever had an ultrasound before, I laughed and said yes, countless and she asked if I'd ever been told that I have a heart shaped/ Bicornuate uterus. I said no, no one has ever mentioned anything, in fact in all of my pregnancy scans so far, every sonographer has said how healthy and normal everything, including my uterus(!) has looked.

I had no idea what this means so was worried and she said 'oh don't worry, it'll just mean the baby will be stuck in one part of your uterus and that it might end up being breech resulting in c section.

I got home and did some research/ googling (which I know you should never do!) and obviously got lots of horror stories and stories of people miscarrying in their second trimester due to it/ having really prem babies etc.

I rung my midwife up and told her what the sonographer said. She was confused as to why I'd just been told that but no details (I.e how severe mine is etc) and sent on my Merry way! She said I needed to ring the antenatal unit up at the hospital and ask for a consultant to ring me back to talk through my ultrasound report.

So I did and a midwife went and spoke to a consultant and showed him my scan report. He wants me to go in in 2 weeks time at 16 weeks for a scan and consultation with him and then every 2 weeks after until I think 20 weeks?

I'm sat here now so worried, I was so happy a few hours ago thinking everything was great and DH and I were so excited and looking forward to this baby. I feel angry that if I hadn't of pushed the issue, we'd have just been discharged and wouldn't have been seen again til 20 weeks.

I get there's probably nothing they can really do at this stage but for whatever reason I'm now consultant led and he wants me to come in now every 2 weeks. None of that would've happened if I hadn't of listened to my gut and rang my midwife.

Has anyone else had a heart shaped uterus and had a successful pregnancy?

I'm sorry you've had this info dumped on you and just left to get on with it. Well done listening to your gut and getting some extra care.

I found out last year at the age of 46 that I have a heart shaped uterus. My only child is now 25 and no-one ever mentioned it when I was pregnant with them. The only possible issue that arose during pregnancy was around 32 weeks my bump was measuring small so I was sent for an additional scan, at the scan they were happy that the baby was the correct size for the stage of pregnancy. He was very squashed in there and didn't seem to have a lot of space to move around, his bum was straight up and could be seen wriggling back and forward. One of his feet could be seen to the side and when he was born this foot was bent right back. It looked awful but just a few weeks of some gentle massage rectified the issue.

When I was told last year about the heart-shaped uterus I was asked if I'd ever been told before abs said no. They gave me no further info and I'm still none the wiser. I didn't really push any further as I'm old now and not planning any more children.

In your shoes, keep pushing for info, being asked to see the consultant is a good thing, I would think they are going to scan frequently for a couple of months now just for peace of mind, but don't be afraid to keep asking questions and make a nuisance of yourself if you need to.

I have a bicornuate/septate uterus and it did result in a breech premature baby but mine is very severe (two total separate sections) and even then the consultants were fairly sure it wasn't going to be an issue.... so if I were you, I would trust ALL the information you've had before that it isn't 'that bad' (or someone would have said) and it is going to be okay. Talk to your midwife for further reassurance but really, I wouldn't worry.

(Also, my baby did come early and was breech - and it was okay. Honestly. She's currently doing a puzzle at my feet. So it isn't the end of the world. Promise.)

Thank you both, I really appreciate the replies.

7th March for my first consultant scan/ appointment can't come soon enough tbh. I just want to know how severe mine is and whether I'm high risk for MC in second trimester as I'm now in my 2nd trimester which I was so looking forward to after a crappy 1st trimester and now I'm just sat here expecting the worst to happen at any moment because my cervix can't cope or something

Note to self in future, stay off Google!

Me three! I've had 2 children who was perfectly fine, now teenagers, and I only found out last year! I think that if the radiologist signed off the images without any concern, you should stop googling now.

A copy of the results should've been given to your GP, so you could always talk to them?

I knew about mine pre pregnancy and it was noted on my docs, because of this I had an appointment with the consultant at 28 weeks and a growth scan at 34 weeks. On my first scan they commented that baby was in the bigger part of my uterus and all was fine. I've found that baby lies on the bigger side, but she is currently head down and ready to go as normal :)

Had this but only found during c-section (despite having countless previous ultrasounds for endometriosis and infertility!). Had a breech slightly prem (36weeks) baby but that was due to pre-eclampsia. She was very small but healthy and was definitely on 1 side of my uterus only throughout pregnancy- always looked a little lopsided. Was told any future pregnancies would count as high risk due to combination of pre-eclampsia and uterus shape. Agree if radiologist has signed off and not referred on to consultant try not to worry

Stumbled across this whilst on pregnancy no 5. Was told at my previous miscarriage that I also have a mishapen uterus but they haven't done any further checks. Currently at 4 weeks but have never gone past 8 with previous pregnacys. Seeing this has given me hope

Hi OP, long time sufferer of endometriosis/adenomyosis here but have had a hysterectomy, managed to conceive two children.

Just before my hysterectomy 2 years ago, they found I had a sub septate uterus (so a 10cm septum) not quite like what you have but similar.

I carried my babies until full term, but my first was breech all along and my second was sideways and they never moved. I had to have c sections, because there were other issues, but I dread to think what would have happened otherwise.

I was told that as the babies were growing they can push the septum out of the way or grow somehow around it and obviously I never knew I had one at the time.

Im not sure if I’m any help but I hope this can reassure you somewhat and help you to remain positive. Wishing you all the best.

A friend of mine has a heart shaped uterus. She has 3 healthy boys. The only difference it made was that she did have c-sections rather than vaginal births.

I think it all comes down to how severe it is. I knew that I had a heart shaped uterus before I was pregnant. Had two children both born at just over 38 weeks. Both vaginally births. First I lost a fair amount of blood but possibly because I didn't have the injection to speed up getting rid of the placenta. I was told afterwards that I should have definitely had it because the placenta may not come away so easily due to the shape of my uterus. Second time round had the injection and no issues.

got a bicornate uterus had my first born ten years ago at 31 weeks spent 6 weeks in nicu .but iv just had twin girls and lost them both at 24 weeks had to have c section first twin weight 540g passed 8 days old 2nd twin 580g 4 weeks my heart is broken 💔 it really worries me trying again in the future but we really would like to start a family again .I'm 35 bit worried im running out of time to as any one had any simler experiences but again even ten years later lots of research two earli pregnancys one ending in loss iv neva bin told full details of how severe or not severe my uterus is .an I was told this time I wud have more scans and only had two on the nhs right up until 24 weeks .so please do push for information and scans I wish I did its so easy to put ur trust in these people I feel I was let down after my history with my first I feel I shud of bin seen more an if anything was seen less .scares me so much trying again the future . I really hope u get the answers u need .but I have read loads of success stories an full term pregnancys so it does give us sum hope 😀