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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Any OT there could give some advice: To naively consider improving DS's vestibular sensory issue by getting pogo stick/balancing board and etc.?

11 replies

Return2thebasic · 19/02/2022 22:44

I've got a feeling that I'm going to get told off here by asking such a stupid question. Blush But I'm feeling very much uncertain what to do with DS1.

He's 9 years old and a smart loving person. But he's been held back by lots of issues which are just within the borderline so wouldn't been taken seriously by the system (tried to talk with school before SENCO dismissed our concern even though several of his previous/current teachers implied he falls "just" within the normal range).

He's displaying lots of ADHD symptoms but not as bad as to be seen as disruptive to the class. But he's suffering at a personal level without even realising. He still has no sense of personal space. In the earlier years, he'd roar right in front of other children's face. He still frequently cut in when other people are talking/engaging in activities so as to drop a line of silly jokes. Very off putting for other people. He has hard time to engage in a back-and-forth conversation with his peers, as he always turns the entire focus on his own experience and goes on about it. He seems to be unable to ask any meaningful question of other people's life, as he's just lack of awareness of what's going on around him. He struggles with articulate/elaborate his thoughts and always leaves out key details to make himself understood. All in all, he falls behind his peers in term of speech and maturity. He only has had one close friend since reception year and that child is playing less and less with him now. I really feel sad for him.

Only after I have had DS2 who's 2, I realised how poorly I had fulfilled DS1's sensory needs in the earlier days - simply because I didn't know anything and worked full-time with little energy/time left to know better. (probably a bit stubborn too...)

I've always thought he's lack of sensory input. That explains lots of his behaviour like play fighting, constant fidgets and etc. He also had lots of balancing issues when he was little. I remember he was getting tripped over frequently until around his 4th birthday. We've been holding back to teach him using shoe laces up to now, as it's beyond his motor skill at this moment. We've done Retained Reflex Therapy for over 2 years before the pandemic. I can't honestly tell if it made any substantial difference.

Lately, I realised DS2 doesn't like swings and resist seesaws or anything which rocks/swings him. This leads me to do some more research about the vestibular sensory. It brought back the kind of hope I put on the retained reflex. I start thinking if helping to stimulate more of his vestibular sensory would make any changes.

It's rather naive and too much of an attempt to simplify a complex problem. I know...but DH is very reluctant to go down the route of diagnose DS1 on ADHD. I just feel want to do something to help him at a manageable level...

Anyone who has experience with stimulating vestibular sensory to improve behaviour? I'd love to hear from any OT if my thoughts make any sense at all...

OP posts:
LunchWithAGruffalo · 19/02/2022 22:53

Different set of issues here, but I found this site really useful for activities we could do with DS www.ot-mom-learning-activities.com/sensory-integration-activities.html

Return2thebasic · 19/02/2022 23:01

[quote LunchWithAGruffalo]Different set of issues here, but I found this site really useful for activities we could do with DS www.ot-mom-learning-activities.com/sensory-integration-activities.html[/quote]
Thank you so much, @LunchWithAGruffalo! I will look into it.

DS1 does have a weighed blanket and he wouldn't sleep without it whilst I tried once and found it unbearable! A sign of under-responsiveness...

OP posts:
NrlySp · 19/02/2022 23:03

What about a private ot appointment- they can give you some work to do at home.
Also a diagnosis doesn’t change who your child is - rather it helps to see where their strengths and challenges are and then what can help going forward. To not want that is like saying a person who is shortsighted should not have an eye test and then glasses.

Return2thebasic · 19/02/2022 23:12

@NrlySp

What about a private ot appointment- they can give you some work to do at home. Also a diagnosis doesn’t change who your child is - rather it helps to see where their strengths and challenges are and then what can help going forward. To not want that is like saying a person who is shortsighted should not have an eye test and then glasses.
I'm struggling to decide on an assessment. My biggest fear is his reaction. I don't know how he would take it and if it would let him indulge in self-pity and loss of self-esteem, as seeing it like a disability. - I myself subconsciously felt being different all my life and have been diagnosed ADHD after I turned 40. Yes, it helped to explain lots of things but on the other hand, it also made me feel shameful and inadequate...as if it's my own fault.

I don't want to risk to make him feel the same...

OP posts:
2TheMoonNBack · 19/02/2022 23:38

Sorry I'm not an OT either but my DS sounds very similar to yours. We had a private OT assessment and he was diagnosed with coordination development disorder (dyspraxia). The report gave very specific actions for school and parents and also helped DS understand himself a lot better. My DS was diagnosed when he was 8. He is 12 now. His self esteem improved vastly since getting this diagnosis. He had started to blame himself for being stupid and bad at sports. The diagnosis has really helped him deal with dissonance between his intentions and how he is actually perceived/performing.

Please don't let your fears prevent your DS from understanding himself better and accessing the supports he needs to thrive. Knowledge is empowering.

Lillyhatesjaz · 19/02/2022 23:49

My DS has dyspraxia. One thing that we found helped a lot was dancing lessons. We found a low pressure street dance group where it was just for fun with no exams. The dance seemed to help with mental as well as physical coordination

BogRollBOGOF · 20/02/2022 00:13

DS (11) has dyspraxia, ASD and dyslexia.
He's always done swimming since babyhood. Progress slower than average. Did gymnastics when younger and changed to karate at about 7. Junior parkruns since 4.
His gross-motor isn't too bad, but he struggles to use his two sides evenly. He'll only hop or scoot on one side. Ask him to gallop on the wrong side and he'll fall. Practice is tricky as the ASD side makes him very risk adverse.

Fine motor control is more obvious. He jumbles his dominant side, but isn't ambidextrous. Little interest in writing/ drawing and a lot of fine motor activities. We embrace Lego and War Hammer where he does have interest in these skills.

School noticed the obvious reading/ writing issues but don't notice much else. Diagnosis was via the GP.
It's worth having diagnoses and as early as possible as they explain why someone is different, that it's wiring and processing, not failing. Having support and understanding helps a lot.

HappyDays40 · 20/02/2022 02:07

I'm an paediatric OT but don't specialise in this area. You need someone with Sendory Integration Therapy qualification or experience.

Return2thebasic · 20/02/2022 15:52

Thank you @2TheMoonNBack and @BogRollBOGOF. I suppose I didn't get the benefit from an earlier intervention and have had to bear the burden of the condition for over 40 years. That in itself didn't help with how I feel about it... Given a caring/capable professional, DS could see it as a differently wired brain, less as a defect...

I have lots of concerns on letting the lid open. But truly I would have preferred to know and get help at his age. I'd have been a more fulfilled life - career, friendship and relationship...

Had a chat with DH. He does't oppose me look into an assessment. I will have a good thought about how to approach it, as obviously it would have to be done privately...We would need the support from NHS in the long term though.

OP posts:
WhatTheWhoTheWhatThe · 20/02/2022 16:07

I would look into an assessment with an OT with sensory integration training.

To be honest it sounds like he is over responsive to vestibular input and therefore avoiding it. Rather than giving more activities to activate an already over responsive sensory system and over loading him it needs to be provided in a way that he can tolerate and build up. This is where an experienced OT can help.

Ghostofchristmaspasty · 20/02/2022 16:44

There is a book called the out of sync child which is good.

I would push for a proper assessment thought with a sensory integration trained paediatric OT rather than guessing though.

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