Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to be scared I’ll have long Covid forever?

33 replies

CovidConfused123 · 29/01/2022 12:29

I’ve tried everything for the tiredness and the pain
I’m now having oxygen therapy that’s going to cost hundreds I don’t have as I’m now set to go onto no pay at work
It’s all such a mess
Anyone that’s come out the other side?
I’m 4 months into this and can’t see an end 1 I feel I’m getting worse not better

OP posts:
PrittStickier · 09/07/2022 11:21

@HundredMilesAnHour

the CoQ10 200mg 3x a day recommended by the cardiologist. What was that for pls?

HundredMilesAnHour · 09/07/2022 11:42

PrittStickier · 09/07/2022 11:21

@HundredMilesAnHour

the CoQ10 200mg 3x a day recommended by the cardiologist. What was that for pls?

No idea for which specific symptom (I have many!), sorry.

HundredMilesAnHour · 09/07/2022 12:14

The concentration required to perform at a barely even acceptable level left me exhausted and I was having several naps during the working day and using flexi-time to shorten my days. I'm also finding that social interactions or just a chat on the phone tire me out.

@MarmiteWine This really resonates with me. This was how I was during my phased return. I slowly improved though and if I'd had a more routine less pressured 9-5 job (with a lunch break!), I might have been okay and not relapsed. I sacrificed everything in my life so I could try and hang on to my job. I basically rested/slept and worked. It was still too much for me unfortunately. I tried to stick to the advice I was given which was not to do more than 70% of what I felt capable of. But it's very hard to judge and I would inevitably get it wrong and pay the price 24-48 hours later. I was, however, slowly improving and this encouraged me to hang in there.

Unfortunately I ended up with a particularly bad work week that was 12+ hour full-on days and included my first Steering Committee presenting to some very tough clients in an investment bank (in a business area that was new to me - not usually an issue but Covid brain meant I was much slower to get up to speed and I couldn't turn on a mental sixpence like I used to be able to do). At one point, someone else took over for a few mins and I used that time to cry my eyes out at my desk (at home thank God!) as I was so frustrated at my performance. I spoke to my client afterwards and he thought I did okay but he only knows me post-Covid. My pre-Covid feedback from much tougher clients in the same business is that I'm "brilliant". My days of brilliance seem to be long gone. 😥A lesson in humility for me perhaps.

During that same week, in addition to my client work, I was also leading/managing the content team for a half day conference (for 90 people) that Friday as well as being the opening speaker (no notes allowed of course). When the planets aligned in my diary like this, I knew I was fucked and no amount of rest and sleep would compensate for how this workload was going to affect me. I got through the conference - actually got the great feedback that it was the best of these (annual) conferences ever! And got rave reviews for my own presentation with my management announcing that this meant my long Covid was "fixed". Morons. Of course it wasn't fixed. I knew I'd overdone it (by a long way!) and was about to crash and burn badly. And I did. But it was unavoidable if I wanted to keep my job. Huge relapse. I have literally gone backwards by 6 months. Brain fog is horrendous. I can't concentrate. I can't remember simple things. I make mistakes all the time. I'm exhausted. I cry at the drop of a hat. I can't handle simple phone calls like booking a doctor's appointment.

The only thing keeping me going right now is the knowledge that it will improve as it's improved before. And that finally I've found a medical professional who is taking it very seriously (if anyone is in London and wants to know who my consultant is, just PM me). It helps finding people who understand. The majority of people have no clue (my employer especially) but I guess we're all learning as it can be different for each of us.

I went to the gym this morning wearing a blood pressure cuff and the wires and monitor hanging round my neck while I deadlifted. Dammit I will not be defeated by long Covid. I am determined to get my life back. I just realise it's going to take a lot longer than I hoped. Unfortunately patience has never been one of my virtues and it seems sheer bloodymindedness just makes it worse.

Hang in there everywhere. And apologies for the long post. I hope my mistakes can maybe help others to not make the same ones while trying to recover.

TimeFlysWhenYoureHavingRum · 09/07/2022 12:18

My DP has had it since May 2020 so well over 2 years now. Starting to improve but still a long way to go. Thank god we can both WFH as otherwise we would have lost the house.
Not much advice as it seems to affect everyone so differently but good luck with your recovery OP.
It's a shame so many people STILL don't take covid seriously. There are a lot of people suffering from long covid and it's hardly talked about in the media or by politicians. It feels like we're a shameful secret that society would rather ignore so they can enjoy their "freedom".

justbesensible · 09/07/2022 14:55

@TimeFlysWhenYoureHavingRum

I have very similar experience and outlook to you.

Others I know would have lost their homes. We have a small financial cushion which has saved our home.

We are a very long way down from the great financial position we were in, in March 2020.

It certainly seems that Long Covid will be the price many pay for the majority’s ‘freedom’.

Intheparkonthebeach · 09/07/2022 15:14

My thoughts go to you all that are suffering long term X.
I contracted 'something viral' on 26/12/2020 and I've never been the same since. I've got lots of ongoing symptoms, but, two are bizarre. One is, if I do too much today I have a sore throat and feel rock bottom the day after. By rock bottom I mean I wake up thinking "I should just kill myself", "why was I ever born, I'm no good to no one", "I'm a failure", "I'm thick", the list goes on...
Has anyone experienced similar?

justbesensible · 09/07/2022 23:19

@Intheparkonthebeach

that sounds awful- how Long does it go on for?

Jibbajabba1 · 09/07/2022 23:27

Yes I can relate to those symptoms, severe anxiety and depression - everything starts looking so bleak and I have those ‘I give up’ thoughts. I remind myself it’s a temporary state of mind.

New posts on this thread. Refresh page