Patients do have to take some level of personal responsibility for speaking up for themselves as well, and if they’re unable to for whatever reason then they should bring an advocate with them, because as patient you could feel pressure to agree to anything in a healthcare setting for many reasons and it’s important for us a HCP to know that when you’re consenting you actually do want to consent and it’s not just because you feel too scared to say no or show that you’re hesitant.
Anyone tried to do this apart from me?
Its harder than you think - even prepandemic. How do you insist on this if you are staying overnight in hospital for example?
With respect to anyone suggesting this as an option, don't talk out of your ignorant backside.
Even with it written all over my notes in big letters that I suffer from severe health anxiety and trust issues with HCPs, there have been occasions where this has been utterly ignored with people who have failed to read my notes. There was one occasion where this caused an incident which led DH to put in a formal complaint because I was so distressed about it (and didn't feel I could do it myself). My complaint was upheld - and it turned out the person in question was already subject to an investigation about their conduct with patients.
I have found the pandemic to be utterly terrifying from this point of view. There are reasons where I probably should have gone to the doctor but because you are not allowed and advocate (and trying to get an exception is nightmarish). Its led to me avoiding health care settings.
Its fine to an extent now, but going forward it could be more problematic.
My anxiety was caused by poor practice to begin with so isn't just a fantasyland 'oh you should get councilling' thing.
I want it taken seriously that consent matters and is a priority not an afterthought. I want it so that you can have a blanket opt out, so you don't fear the rigmarole of everytime having to 'defend yourself' and be assertive. I want it identified that there are certain vulnerable patients who should never be put in the position to be effectively taken advantage of in a system that doesn't recognise certain traumas. This is a modern health service for gods sake - if its blind to the mental health impacts of this, it shows just how fucking far its got to go.
There is an institutional level problem with this where its not seen as legitimate to recognise there is an issue with ensuring there is safe consent giving, and adequate thought given to patients saying yes because they feel they have to, not because they want to.
I have expressed this in writing. And I've still had situations where they have ignored it or had HCPs speak to me in a way that has been problematic and they have subsequently admitted was fair comment.
It frustrates me deeply that its a battle to even get it acknowledged rather than getting condescending, patronising, dismissive and sometimes down right cruel comments about how you should just suck it up. I have a diagnosis. I have a recognised anxiety over this. The advice I've been given is that i need exposure over a period of time, to let me regain trust in the system. And its worked to a point - only for individuals with poor attitudes to go and fuck it all up again.
I am better than I was. But my recovery actually depends on people actually doing things properly and not assuming consent or telling me they will be doing something rather than seeking my consent. Its literally my trigger. And I very very much doubt that I am unique. I'm just the one articulate and bloody minded enough to be able to write this down. In person, it all completely crumbles, i get forgetful and have a problem with going completely mute.
So yeah. It matters.
And utter ignorant shit saying 'oh just take someone with you' is so disconnected with reality that its actually painful to read.
Get your heads out your arse and bother to recognise that health anxiety is real, it leads to health care avoidance and that in turn leads to poorer physical outcomes. Its recognised as a medical problem - a form of anxiety - that you can just snap out of. The system is structured to not understand this and it makes everything a far bigger battle than it should be.