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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Thyroid and can’t loose weight

38 replies

Angelica122345 · 02/01/2022 12:01

I have underactive thyroid . Take tablets each day to help it . But I can’t seem to loose weight ? Does anyone know what will help

OP posts:
Angelica122345 · 03/01/2022 16:19

I’m going to get blood test to check levels again this week . What sort of level should they be in order for me to loose weight ? I was really skinny before but now on meds I’ve put on so much weight 😞

OP posts:
Onlyrainbows · 03/01/2022 16:25

I'm on 100mg a day of levothyroxine. I was able to lose 4st, all through exercise and counting calories.

Poppoppogo · 03/01/2022 16:34

Thing is with an under-active thyroid is it’s lifelong. So any diet/calorie deficit etc would have to be maintained forever. To me that sounds a little miserable and unsustainable.

Totally agree with others about ensuring that you’re on the right level of thyroxine, but as others have said, might not be linked with thyroid. Getting older, lockdown, enjoying delicious food could all be culprits too.

I like to focus on overall health and wellbeing. Health at any size is the phrase I think. Eating well and balanced, fun excersize that I enjoy, finding love and acceptance for my body. There are some really great instagram pages and books about this kind of thing.

Angelica122345 · 03/01/2022 16:47

I take 200 of levothyroxine daily

OP posts:
Whatthefucketyfuck · 03/01/2022 17:00

When you get your bloods done get your T3 & T4 done as well as your TSH.

Each area has it's own "levels" for what is "normal" - and this just depends on where the bloods are analysed but as a rough examplemore info here. www.endocrineweb.com/thyroid-what-are-t3-t4-tsh When you get your blood results the ranges are normally indicated in the results list too.

Many GPs just look at the TSH level as a guide for if you are on the right medication. Or will just see that your T3/T4 are within normal. However the "normal range" can be quite large and if you are mid-range yes, you "tick the box" as far as the numbers are concerned. The results will say "no action required". The GP receptionist will say "they are normal" and you will be filed as "done". But this does not mean you are at the right level for you - but it means you will need to follow it up if you think you need to. I would recommend it is worth a thought if you results are "mid-range-normal".

Over the years I have been able to tell when my levels are too low. Peri menopause has had an affect, ageing, diet.

Symptoms wise I begin to get a few of the old niggles back (heavy periods, tireness, coldness, slightly constipated and yes, weight gain when nothing else has changed). Nowhere near as bad as pre-medication - but just hinting towards it.

As an example my T4 (I think it is T4) range is in our area 16-21 ish where my bloods are done. When these symptoms start to come back...no suprises, my bloods are within "normal" but are about 17/18. If however I increase my dose, even just slightly (I take 100 on 5 days a week and 125 on 2 days a week) then they symptoms disappear and my bloods are at 19/20. And I feel great. And my weight is maintainable (and/or I can lose weight with normal calorie controlling/diet rather than extreme).

If I increase too much (and so bloods are at eg the 21 level - then actually, I start to feel a bit anxious/jittery and unpleasant. Too much.

So, sorry - long story - really check your levels. And if you are mid-range with your results say to your GP, "I really am having some symptoms again, please could we do a 3 month trial of an increase to see if the symptoms disappear" and suggest a small increase. And if they protest ask what would make them happy to allow it? Especially as the the NICE guidelines say. Reiterate patient choice. Ask what are the risks? NICE does say:

Aim to maintain TSH levels within the reference range when treating primary hypothyroidism with levothyroxine. If symptoms persist, consider adjusting the dose of levothyroxine further to achieve optimal wellbeing, but avoid using doses that cause TSH suppression or thyrotoxicosis.

and

Even when thyroid function tests are within the reference range, changes to treatment may improve symptoms for some people.

Whole guidelines here: www.nice.org.uk/guidance/ng145/chapter/recommendations

You cannot use too much Levo as a weight loss treatment - not good for heart, too much feels awful, awful, awful, but too low a dose really can mean weight gain and/or make it nearly impossible to lose weight. In addition, if you gain weight, you potentially need more Levo (your weight is how the starter dose is calculated) .

Whatthefucketyfuck · 03/01/2022 17:02

Also, think about when/how you take your levo - calcium/iron can inhibit uptake. So if you take it with a breakfast of cereal, milk, a milky coffee and your multivitamin (with iron) at the same time you may not be getting the full benefit.

I take mine absolutely first thing (sit up in bed, take levo, stumble to bathroom). Gives it 30/40 mins to absorb before my tea and egg hits my stomach. And I take my multivitamin at supper time.

FlasherMcGruff · 03/01/2022 17:17

I’ve also got an under active thyroid and am not overweight and never have been. If you’re on the right dose but can’t shift the weight, could it be another reason?

YetAnotherWalk · 03/01/2022 17:18

Intermittent fasting/16:8 works quite successfully for me

FlasherMcGruff · 03/01/2022 17:19

^ ps by that I mean that I think getting the dose is spot on is key. My consultant suggested taking an extra dose every other day rather than daily as I was in between doses. It really helped.

Iamkmackered1979 · 03/01/2022 17:26

I have no thyroid at all and find carbs do not agree so I go low on those and sugar as much as I can. Also exercise helps but if you’re really tired it isn’t always easy. I’m a nurse, single parent so quite busy trying to fit it in/have energy can have a Knock on effect for a few days I’ll feel really shitty. My sister also has no thyroid (cancer) she did really well on slimming world - doesn’t work for me. Do get regular blood tests. They won’t prescribe me t3 it’s fairly unusual but I hope it becomes more common as it those I know on it feel much better. (2 who pay privately one just a knowledgeable gp)

Whatthefucketyfuck · 03/01/2022 17:28

@FlasherMcGruff

^ ps by that I mean that I think getting the dose is spot on is key. My consultant suggested taking an extra dose every other day rather than daily as I was in between doses. It really helped.
Yes - it doesn't have to be an increase for every day - so as above I am on 100 for 5 days and 125 for 2 days. I did try a 3/4 split - (4 days higher) but was too much - didn't even need blood tests - could tell).

My DS is also on a 5/2 split - paed endocrinologist said for him to have the higher dose at the weekend as is easier to remember. As it is something that "builds up" in your system it doesn't have to be exactly the same each day.

And the difference just 50mcg a week (ie 7mcg a day) can make is quite scary....all small differences - but mean you have niggles...or not

Denise1975 · 24/07/2023 11:06

Did you manage to lose weight with the 800 calories per day? I’m so upset, I’ve been calorie counting and doing 500 calories exercise per day and I’ve gained 5lbs!!! It just doesn’t make any sense?! I was searching for how many calories you need with hypothyroidism online and came across this thread. People who say 1200 and not to go under it have no idea about hypothyroidism. I think you’re right, I think my baseline calories I need is 1300 as I’ve been on around that for the last few years and not lost 1lb! I literally feel like just not eating to lose the weight but after seeing your post, I’m going to attempt it again but with 800 calories. It’s just soul destroying isn’t it….:-(

minipie · 24/07/2023 11:44

Low carb (especially avoid high GI carbs like sugar, bread, mash, white rice), higher protein and good fats

Exercise to increase metabolism- especially strength training

I have hypothyroid and PCOS. I had to cut down my calories drastically in my 30s after putting on weight, but have been able to eat a lot more since getting into regular exercise and especially building muscle through weight training. Still need to be careful on carbs but not super strict

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