Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask what signs made you suspect asd in your toddler

23 replies

ilovemesomecake · 26/11/2021 19:59

Just looking for some advice on what signs first alerted you to add if your child then got diagnosed, or if they got diagnosed with something else.

My 3 year old has a few symptoms that are making me feel that something isn't quite right. She doesn't talk (she has said a few words previously but has since stopped saying them), she struggles with changes of some routines such as bedtimes and mealtimes. She has extreme temper tantrums, sometimes these can be caused by typical toddlers issues but other times just come completely out of nowhere, and they include hitting, biting, head banging and hurting herself. She doesn't like loud noises such as aeroplanes going over head.

However she is good socially, she will play with other children at nursery. But when we go to play centres or other places she will generally play happily on her own.

Anyone got any stories of anything similar?

OP posts:
Bobbybobbins · 26/11/2021 20:07

Lack of progress in speech and speech regression were the main ones for us. Either playing with toys in an unusual way or not at all. One of ours developed very poor sleep and flapping as a stim.

ilovemesomecake · 26/11/2021 20:09

@Bobbybobbins

Lack of progress in speech and speech regression were the main ones for us. Either playing with toys in an unusual way or not at all. One of ours developed very poor sleep and flapping as a stim.
Do you mind me asking in what way they played with toys?

My little one will rarely sit down and play with a toy in the way it is intended to be played with. She will normally play with it nicely for a couple of minutes maximum and then just wants to throw everything

OP posts:
FluffyBattleKitten · 26/11/2021 20:21

From what our health visitors have said it's fairly difficult to detect asd in toddlerhood because a lot of the associated behaviours overlap with normal development.

That said, some people get a diagnosis as early as three so there must be criteria used.

Refer and keep pushing for a referral, but don't forget to enjoy this time as well. It's something I keep needing to remind myself of as it goes so fast.

Remember diagnosis is a tool for provision. It doesn't change who they are. 💞

FedUpFelicia · 26/11/2021 20:24

With toys: doing things like lining cars up by size instead of zooming them around like they're driving.

ilovemesomecake · 26/11/2021 20:33

@FluffyBattleKitten

From what our health visitors have said it's fairly difficult to detect asd in toddlerhood because a lot of the associated behaviours overlap with normal development.

That said, some people get a diagnosis as early as three so there must be criteria used.

Refer and keep pushing for a referral, but don't forget to enjoy this time as well. It's something I keep needing to remind myself of as it goes so fast.

Remember diagnosis is a tool for provision. It doesn't change who they are. 💞

I'm definitely enjoying being in the moment with her but I just feel overwhelmed at the moment. Her outbursts can be so extreme, they can happen up to 20 times a day and include really hurting herself or her sister. Once she has one of these episodes there is no getting her out of it until she suddenly just seems exhausted by it all and bursts in to tears. I have another child as well so I know what is normal outburst for little ones and this doesn't seem like that. I just want to be able to help her
OP posts:
ilovemesomecake · 26/11/2021 20:34

@FluffyBattleKitten

From what our health visitors have said it's fairly difficult to detect asd in toddlerhood because a lot of the associated behaviours overlap with normal development.

That said, some people get a diagnosis as early as three so there must be criteria used.

Refer and keep pushing for a referral, but don't forget to enjoy this time as well. It's something I keep needing to remind myself of as it goes so fast.

Remember diagnosis is a tool for provision. It doesn't change who they are. 💞

And I'm definitely not looking for a diagnosis I just want some help so I know how to make things easier for her
OP posts:
Bingbong21 · 26/11/2021 20:36

No social interest. No joint attention. Not responding to her name. Really really intense meltdowns. Zero play. Zero imagination. Zero speech. No eye contact. Lots and lots of spinning.

Onceuponatimethen · 26/11/2021 20:40

The speech regression definitely is a red flag. Early intervention can be really important at this age. Definitely push for referral to speech and language therapy and to a developmental paediatrician

Kitkat151 · 26/11/2021 20:44

@ilovemesomecake. You say you are not looking for a diagnosis...but sometimes this is the only gateway to getting support.... ask HV to refer to Community paediatric for assessment....ask nursery about whether a referral to to your local SEN inclusion service is appropriate.....has she already been referred tonSALT? It’s not uncommon for children as young as 3 to get a diagnosis ......especially if they have presented with behaviours from a young age.... but you need to be in the system if you are needing support when your child starts school

TheVolturi · 26/11/2021 21:00

Mostly, stimming, which we didn't recognise at the time as he was our first child. We thought he was just quirky. Hv noticed at 2 year check. He didn't play pretend, still, never has. Nearly 9 now and diagnosed asd.

TurnUpTurnip · 26/11/2021 21:01

No speech at all

MoreRainbowsPlease · 26/11/2021 21:11

My ds never responded to his name. He didn't like certain noises (I had to send him to my dm's when I wanted to hoover), but he made lots of noise. His speach was late and his words were very unclear, but he made up his own words for things which I understood, but other people didn't. He barely slept, but had loads of energy. He didn't play like my friends children, he seemed to have no concentration span at all. Until he discovered Thomas the Tank and then he became absolutely obsessed with trains. He still is and he is now 16.

My ds wasn't diagnosed until he was 10, However my dn who showed all the same traits was diagnosed at 3.

lazylockdowner · 26/11/2021 21:18

Nothing at all when my dd was a toddler she was extremely social, loved being the centre of attention, met all her milestones etc, it only really became apparent when she hit her teens and the anxiety kicked in

Hospedia · 26/11/2021 21:19

One autistic DC - everything had to be "just so" and if it wasn't then their reaction would be hugely OTT, hours long "tantrums" (which I now know were meltdowns) where nothing could placate them, they were stubborn to the point of absolute rigidity, it was their way or no way. Food issues and a diet that consisted of just 3-4 items, any other foods caused massive upset and were flat out refused. Hugs and affection had to be on their terms, if they wanted a hug then it was wonderful bit if you tried to hug them outside of this it was like hugging a stick as they'd stay stiff and unresponsive. Lots of shutdowns where they'd reach the point of overwhelm so would simply lie down wherever they were - living room, bathroom, supermarket, street - close their eyes and go completely unresponsive. Refused to wear clothes most of the time, very sensory avoiding. Played with toys but not in usual ways, like to have the toys but not for them to be operated or used, the toys were for placing around the room/house and for carrying but for actually playing.

Other autistic DC - total opposite. Sensory seeking so into absolutely everything, utterly exhausting trying to keep them safe as they needed constant supervision. Always on the go, always needing hugs, always climbing, always jumping, would talk to anyone and would think nothing of wandering off with total strangers. Loved toys but again not to play with, just to have. Would tip the toy box out, scatter them around, and then fill it back up just to empty it again as the end goal was simply to empty it rather than to play with any of them.

Both are really socialable but not always in socially acceptable or age appropriate ways, they are both also very empathetic but again not in an appropriate way, it's like they feel everything and can't filter out what's worthy of the emotional attention and what isn't. Both make eye contact although those is variable depending on mood, how many distractions are around and who is speaking. Both like to share their interests, at length, whether you want them to or not, and both are very skilled at turned a completely unrelated discussion back around to subjects they do want to discuss.

A turning point for both was when they got to around 4-5yo and I started to realise that my friends with similarly aged DC were getting to sit down with a coffee at softplay or at the park and I was still having to follow my DC around to supervise them, manage their interactions with others, and help them manage their emotions. I then gradually came to realise that my DC weren't like their DC and that my DC were developing differently. Once I could see it, I couldn't unsee it and it snowballed from there until they were diagnosed.

Feilin · 26/11/2021 21:20

Follow Laura Cleary on instagram or facebook her son Alfie has recently been diagnosed and she has some useful videos detailing their experience. My DD is suspected awaiting assessment. At your DDs age mine lined things up spoke with echolalia and repeated things lots. She was quick to walk and single minded in her play . Did not like things like jigsaws or games they resulted in massive meltdowns as she couldnt cope with how the thing was supposed to work as opposed to how she thought it should work. Speech was later but when it came as I said very singsong and repetitive and that has improved . For a long time she was lacking an accent because it was so sing song that has passed and she now has a sterling Belfast brogue emerging Grin

cheapskatemum · 26/11/2021 21:21

No speech, didn't respond to his name, used to run round in circles, no creative play just climbed up everything. Would get upset about small changes such as having a different place mat. Liked spinning things eg the wheels of toy cars. Diagnosed at 2 years 4 months

TravellingSpoon · 26/11/2021 21:24

Speak regression - from 2/3 word sentences to no speech. No interaction, no playing - he just used to sit on the sofa and rock. repetative noises and stimming (opening copboard doors over and over for hours, no crawling/cruising, no pointing and not responsing to his name.

MrsTerryPratchett · 26/11/2021 21:24

Mine had similar to a few of these and it ended up being ADHD.

My friend's had none and it was ASD.

It's difficult even for clinicians.

lazylockdowner · 26/11/2021 21:24

Oh I should add looking back dd wasn't interested in toys at all from crawling age she preferred to climb and loved being outside on her bike or playing in the garden. She also striped her clothes off at any opportunity including trips to the supermarket she just preferred to run around naked, even now at 18 she is very picky over what she wears and in the house she is always in shorts (pj's)

redpandaalert · 26/11/2021 21:25

No imaginative play, hated dressing up, played with same few toys all day at nursery

ilovemesomecake · 26/11/2021 21:29

[quote Kitkat151]@ilovemesomecake. You say you are not looking for a diagnosis...but sometimes this is the only gateway to getting support.... ask HV to refer to Community paediatric for assessment....ask nursery about whether a referral to to your local SEN inclusion service is appropriate.....has she already been referred tonSALT? It’s not uncommon for children as young as 3 to get a diagnosis ......especially if they have presented with behaviours from a young age.... but you need to be in the system if you are needing support when your child starts school[/quote]
Sorry I think my previous comment was a bit rushed, it's not that I don't want a diagnosis, I just feel like I'm being judged a lot as people think I just want her to be labelled. I don't want her to be labelled I just want to find the best way to support her and help her through the issues. Luckily we have already been under the paediatrician, speech therapist and child development team but because she is completely different at nursery we are finding it hard to get the support. It's been described by the occupational therapist as masking her behaviours as her safe space it at home

OP posts:
ilovemesomecake · 26/11/2021 21:34

@Hospedia

One autistic DC - everything had to be "just so" and if it wasn't then their reaction would be hugely OTT, hours long "tantrums" (which I now know were meltdowns) where nothing could placate them, they were stubborn to the point of absolute rigidity, it was their way or no way. Food issues and a diet that consisted of just 3-4 items, any other foods caused massive upset and were flat out refused. Hugs and affection had to be on their terms, if they wanted a hug then it was wonderful bit if you tried to hug them outside of this it was like hugging a stick as they'd stay stiff and unresponsive. Lots of shutdowns where they'd reach the point of overwhelm so would simply lie down wherever they were - living room, bathroom, supermarket, street - close their eyes and go completely unresponsive. Refused to wear clothes most of the time, very sensory avoiding. Played with toys but not in usual ways, like to have the toys but not for them to be operated or used, the toys were for placing around the room/house and for carrying but for actually playing.

Other autistic DC - total opposite. Sensory seeking so into absolutely everything, utterly exhausting trying to keep them safe as they needed constant supervision. Always on the go, always needing hugs, always climbing, always jumping, would talk to anyone and would think nothing of wandering off with total strangers. Loved toys but again not to play with, just to have. Would tip the toy box out, scatter them around, and then fill it back up just to empty it again as the end goal was simply to empty it rather than to play with any of them.

Both are really socialable but not always in socially acceptable or age appropriate ways, they are both also very empathetic but again not in an appropriate way, it's like they feel everything and can't filter out what's worthy of the emotional attention and what isn't. Both make eye contact although those is variable depending on mood, how many distractions are around and who is speaking. Both like to share their interests, at length, whether you want them to or not, and both are very skilled at turned a completely unrelated discussion back around to subjects they do want to discuss.

A turning point for both was when they got to around 4-5yo and I started to realise that my friends with similarly aged DC were getting to sit down with a coffee at softplay or at the park and I was still having to follow my DC around to supervise them, manage their interactions with others, and help them manage their emotions. I then gradually came to realise that my DC weren't like their DC and that my DC were developing differently. Once I could see it, I couldn't unsee it and it snowballed from there until they were diagnosed.

Thank you for your comment it's really interesting to see the difference.

I would say we probably relate to the first description more. She is very set in her ways with routine so will have a major meltdown if her bed time is not exactly the same everyday or if we change a small thing in her routine. She also used to be really cuddly and love cuddles and kisses but now it has to be on her terms, if we just ask for a kiss or cuddle and she doesn't want one she will just punch at our faces until she's calmed down. Similarly she doesn't understand others emotions so if we pretend to be upset she will laugh or hit at our faces until we stop, whereas with my other
Child if we pretended to cry or be upset she would give a cuddle ect

OP posts:
PookieNoodlinPearlyGates · 26/11/2021 21:54

I first suspected at around 12 months when he would just sit and draw perfect circles with legs repeating spider over and over for hours. He has always been very advanced linguistically but didn’t walk until age 2.

Almost never has meltdowns but that in and of itself was a red flag to me as he never had normal toddler tantrums either. For example, if I said no to McDonald’s, he just wouldn’t eat until I did. His record is two weeks.

You know better than anyone if something isn’t right.

New posts on this thread. Refresh page