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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask has anyone had a thyroidectomy? I'm so scared!!

70 replies

ILoveHuskies · 23/11/2021 16:06

I'm booked in on Saturday, I'm shitting it. The reason is because I have thyroid nodules that have gradually caused my thyroid to go overactive. This also makes my neck look slightly swollen which I hate. I'm actually having to go private due to being on the nhs wait list for over a year and I just couldn't carry on waiting indefinitely

Although I've had a chat with the surgeon etc and he was very reassuring and is very experienced, I guess I'm scared of something going wrong, and on a more shallow level i am worried how my neck will look (I do have health anxiety though)

So I'm hoping for some positive thyroid removal stories to reassure me if possible please ? Tia x

OP posts:
INeedtobealone · 23/11/2021 16:09

I had my thyroid removed in 2017 due to it being overactive. It was absolutely fine.

I have a the thinest 'scar'. You genuinely wouldn't know unless I told you. Never think about it at all.

You'll be fine.

Totez · 23/11/2021 16:54

Please don’t be scared.

I had mine removed last month. My situation is a bit different than yours as I had developed a very large tumour and my thyroid basically wasn’t producing any thyroxine at all. I also had a large number of nodules.
(I knew going into surgery that they were removing a tumour- it wasn’t something I only found out afterwards).

I was terrified. Absolutely terrified. My BMI increased in the last while (thanks to lack of metabolism!) and I was worried about being under anesthesia.

I was so nervous on the morning of surgery that they had to give me Xanax to bring my heart rate down.

I was in surgery for 4 hours and came-to really quickly afterwards. Pain was minimal- I was told morphine was an option, but I didn’t need anything stronger than Panadol at any stage.

I stayed in hospital for one night and was very much fine to go home the next day.

When I woke up, I was bandaged across the neck. I was able to remove the dressing after ten days, and the stitches are dissolvable.

Before removal, I was having breathing and voice issues as the growth was pressing on my trachea and vocal chords. Before and after the surgery, they looked at my vocal chords using a small camera that went up through my nostril and down my throat. Not a particularly pleasant procedure, but there was local anesthetic and it was bearable. To be fair, they weren’t able to get the camera down as far as the needed pre-surgery due to the level of blockage.

Prepare for your voice to be affected. For a good week or ten days, I could barely speak above a whisper. Four weeks on and my voice is nearly back to normal but there’s a touch of hoarseness that’s improving every day.

I also found swallowing a bit tough for the first while. I drink a lot of water and am used to gulping it back but couldn’t do that for about two weeks after surgery, so would recommend having a few straws available. Or sports drinks with those sports caps. I felt dehydrated as I wasn’t getting as much fluids as I was used to, so sports drinks helped.

For the first few days, I stuck to very mushy foods like yogurt, and soft mashed potato, then built my way back up very slowly to my usual foods. Just because of swelling, I my throat felt quite restricted so I would gag a bit.

I also found it difficult to get comfortable in bed at times but just had a selection id pillows and adjusted as needed. Instead of just turning over at night, I found it easier to sit up and then turn, just to prevent straining my neck. But I think that’s just me being a restless sleeper.

Four weeks on and I’m back to my normal food and drink. My scar is obviously very new and quite visible, but it’s not looking bad at all. It’s very thin so I’m confident it’ll heal well. Because the mass I had removed was exceptionally large, my incision is bigger than normal. I did develop an infection at about the two week mark but antibiotics are kicking in- look up seroma, it’s can be fairly common when a large mass is removed from the body (seroma doesn’t always mean infection, I was just unlucky).

I started Elthroxin the day after surgery and will be on that for life. I’ve done some research and learned that it’s best taken in the morning, 30-60 mins before food, and with a full glass of water. I’ve had no side-effects.

Just be warned that, with the thyroid gone, you’ll have hypothyroidism until the medication kicks in and stabilizes. You may experience exhaustion and some other symptoms like intolerance to cold, or constipation. For me, the exhaustion is very severe.

Pre-surgery, my neck was very unsightly due to the lump but that’s all gone now and I’m feeling much better about myself and delighted I had the operation.

Best of luck with your surgery. I know everyone says that the thoughts of it are the worst but that was 100% the case for me. In the weeks leading up to the operation, I kept thinking “oh I wish I could fast-forward a month and be out the other side”, that’s where I am now and I’m delighted with how it’s all gone.

Iamkmackered1979 · 23/11/2021 16:58

My sister had one, it wasn’t great but what @Totez says is accurate. Sister had cancer so a bit different and had drains in too. You can’t see her scar now really. She’s now 10 years in and doing well. Takes some adjusting to taking medication every day though. (I have no thyroid as I was born without one so take thyroxine too)

Wishing you well and a speedy recovery. Take care op

wtfisgoingonhere21 · 23/11/2021 16:59

Had mine removed 7 years ago.

The surgery went fine. I have Graves' disease which caused the thyroid issue and still have graves which can really mess with hormones etc.

Make sure you rest and remember it will take a while for the thyroxine to level out in your system.

Expect to feel over active and under active at times because the fluctuation of your Norma hormones will change things.

Never underestimate what a thyroid does/did.

kimlo · 23/11/2021 17:05

I've had a hemi. Initally it was very painful, by the time I was back on the ward that was under control. A few days on cocodamol and then nothing. I still need to sleep more propped up than usual and I'm very tired.

But over all it wasn't as bad as I was expecting. Having my tonsils out was worse pain wise.

ParkheadParadise · 23/11/2021 17:09

I had a total thyroidectomy when I was 23. I had graves diseases.
It was ok I was in the hospital for a week with drains in.
The only problem I had was my scar never healed properly and I've been left with a notable scar. I did go back and have treatment on it but it didn't help.
That was 20+ years ago and I've never had any problems with taking thyroxine 150mg. I get a blood test every year.
You'll be fine.

CtrlU · 23/11/2021 17:11

My mother had it done a few years back and I remember being terrified she would be so weak after surgery and wouldn’t be able to speak. Needless to say she was fine and was back to normal within a week.

PoppyMonth · 23/11/2021 17:12

Not me but my niece has just had half of hers removed. One night in hospital, about 3 days bed rest and she’s perfectly fine.

ILoveHuskies · 23/11/2021 17:17

Thanks so much everyone really appreciate the posts. X

OP posts:
JustMarriedBecca · 23/11/2021 17:17

Graves disease here. My thyroid had attached itself to my calcium whatnots which caused a bit of a complication in surgery (as in, it took them longer not complication owing to the fact I almost died or anything)
Did it to get pregnant as previous drugs bad in pregnancy and I didn't want iodine if we were going to be trying for a baby.
They said hormones would be all over and might take a few years. Was pregnant in two weeks.

ILoveHuskies · 23/11/2021 17:22

@Totez wow you really went through it didn't you 😞 Bless you. I am so glad to hear that only a month on you're feeling so much better.

I am really hoping mine is straightforward.
I've been having scans every few years since 2005. and although I have a few nodules that are slowly growing they aren't anything worrying other than they affect my thyroid function. I've not had a scan for two years though so I'm hoping nothing has changed.

I guess I'm worried if it is anything more complicated or if I need to stay any longer how it will work as I'm paying private. I've literally cleared my savings out to pay for it so it would be credit card time 😫😫

OP posts:
ILoveHuskies · 23/11/2021 17:24

@JustMarriedBecca

Graves disease here. My thyroid had attached itself to my calcium whatnots which caused a bit of a complication in surgery (as in, it took them longer not complication owing to the fact I almost died or anything) Did it to get pregnant as previous drugs bad in pregnancy and I didn't want iodine if we were going to be trying for a baby. They said hormones would be all over and might take a few years. Was pregnant in two weeks.
Oh wow my surgeon warned me this could be a possibility. And that if they remove the calcium thingy (technical term 😂) I would have to take calcium
OP posts:
Dmsandfloatydress · 23/11/2021 17:25

I had a hemi four months ago. I actually really enjoyed the general and the week in bed afterwards ( break from childcare). Virtually no pain and no after effects. I have a small scar which is rapidly fading. The painkillers they give you afterwards are utterly delightful!

ILoveHuskies · 23/11/2021 18:17

@Dmsandfloatydress

I had a hemi four months ago. I actually really enjoyed the general and the week in bed afterwards ( break from childcare). Virtually no pain and no after effects. I have a small scar which is rapidly fading. The painkillers they give you afterwards are utterly delightful!
Oh that's good I'm glad you found it ok. I'm a bit scared of the general anaesthetic- never had one before at the grand old age of 42

What is a hemi please ?

OP posts:
kimlo · 23/11/2021 18:21

a hemi is when they remove half the thyrood rather than all of it.

ABCeasyasdohrayme · 23/11/2021 18:25

This is my scar 13 months after having my thyroid taken out (sorry it was really hard to take a photo)

The operation was OK, the recovery was tough for a couple of weeks, I didn't realise how much I actually use my neck, I couldn't even pull myself up after slipping down my seat for over a week so I couldn't be alone really.

I was eating fairly normally after 2 or 3 days.

I had my op during a lockdown so was out the hospital by 6pm after my op at 8am, thankfully I had loads of pillows in the car to support my head because the drive home was pretty sore. I felt every bump in the road.

All in all it was pretty OK.

Eaumyword · 23/11/2021 18:57

Full thyroidectomy here 4yrs ago due to out of control Graves.
I promise you, you will feel so much better once things settle down. 4yrs in and I feel normal (on levothyroxine forever but it's no biggie once you get the dose right.)
My complication was that my parathyroids were damaged and one lost during surgery, so my Vit D and Calcium crashed. That was horrible until they stabilised 3wks later with mega replacement doses. This doesn't happen to everyone though.
I do have a long neck scar but it's just silvery now and I honestly don't notice it.
The general anaesthetic was fine, you don't know a thing!
I found I had very little pain afterwards, you have limited neck movement and can't drive for a few weeks afterwards. But for a big wound, it really didn't hurt (and I'm a wuss!)
Good luck, you'll be fine and honestly, given time you will be amazed how much better you feel.

June2008 · 23/11/2021 19:26

I had mine removed 10 years ago now. You literally can't see my scar unless I point it out and even then its pretty tiny. I had the op due to a benign tumour (although I didn't know that until afterwards) that was moving my windpipe out of place.

I was in hospital for three nights and also had high doses of calcuim immediately afterwards. I was in a reasonable amount of pain to be honest but that was more to do with the size of the tumour rather than the thyroid being removed. (At its widest it was 10cm and had started to go under my collar bone.) I was off work for 4 months in total.

I now take levothyroxine every day, 175mg and have done all sort since the op including triathlons!

Butteredtoast55 · 23/11/2021 19:39

Another hemi here. I was worried about the general anaesthetic too having never had one but it was a total breeze. One minute we were having a little chat about packed lunches and Indian Tiffin tins (!) and the next, I was waking up on the ward. I did struggle with my breathing afterwards but once I had taken my inhaler and had a bit of oxygen it was fine.
I was home the next morning but was a bit optimistic about what I could do afterwards. I went back to work too soon and before my thyroid levels were balanced correctly and I felt horribly tired until it was sorted out.
Beforehand I'd been worried about not being able to shower and wash my hair properly afterwards but I wrapped my neck in cling film and it worked pretty well!

The scar is virtually invisible and you really wouldn't know it is there.

Nocaloriesinchocolate · 23/11/2021 20:08

I had mine about 5 years ago and I sailed through it - to the extent that I had to really think back before posting this. Honestly, it was very straightforward and I had no serious after effects. The only problem I had was when they removed the horizontal tube that was put in my throat to drain the liquid or whatever after the operation. That was absolute agony, but it only lasted a couple of minutes. It would have been easier had I been forewarned, so I hope this will help you.

WomblingKnobhead · 23/11/2021 20:17

My scar. I can't remember the actual recovery but I had it under local (a nerve block) which I wouldn't recommend

Skatastic · 23/11/2021 21:17

Do they remove them just because they are broken?! Mine looks huge and so so ugly I hate it. I've got Hashimotos and do feel better on the thyroxine but hate my neck.

Good luck with the op, OP!

CiderWithLizzie · 23/11/2021 21:24

I hope it all goes well. Can you have only part of your thyroid removed? I ask as I’m hypothyroid (under active) and it was dreadful getting my levels sorted. I didn’t react well to thyroxine but am doing well now on a combination of T3 and T4.

flowersun2 · 23/11/2021 21:24

Had mine done two years ago. Procedure was straightforward- one night in hospital. Sore throat for about a week because of intubation- nothing more than the sore throat you get with a bad cold. I took paracetamol and throat sweets for a couple of days.No pain in scar area. Ate cold things like yoghurt, stewed fruit and ice cream for a day or two then hunger got the better of me! Was very disciplined about washing and massaging the scar- special cream prescribed by doctor then when it ran out I used rosehip oil. You can find videos on YouTube. Cover your scar with a scarf ( or sunblock) to prevent discoloring. Mine was almost invisible after 4 months.
I had no problems adjusting to Levothyrox - have had dosage reduced - here in France we get regular blood tests. See the doctor twice a year to pick up prescription.
Good luck with the operation - it will be fine!

ILoveHuskies · 23/11/2021 21:45

@Skatastic

Do they remove them just because they are broken?! Mine looks huge and so so ugly I hate it. I've got Hashimotos and do feel better on the thyroxine but hate my neck.

Good luck with the op, OP!

The nhs were reluctant to remove mine, I had to really push for it due to me feeling anxious about how it looks, and then covid hit and everything got pushed back and after a year I still had no op date so I decided to pay. Plus I don't want to be in an nhs hospital if I can avoid it atm as I honestly would not feel that safe tbh

Also, as there is a slim chance benign nodules can become cancerous, I decided I am not taking any risks whatsoever with that.

It's awful if yours is making you feel so down, it's not right of them to leave you with a lumpy / swollen neck. So I'd push to get it removed although as I say there will be a wait sadly. Unless you go private.

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