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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be annoyed at ASD assessment

63 replies

TEH82 · 03/11/2021 19:02

So DS 7 was diagnosed with ASD a few months ago and it takes a few weeks for it to come through. It has come today and in 2 separate places it refers to him as ‘odd’ in the context of ‘child’s eye contact and interaction is extremely odd’
I work in health with children and would never dream of writing this about a child let alone in a report that will follow him for years- but not sure if I am being precious?

OP posts:
eustonwehaveaproblem · 03/11/2021 19:03

Completely inappropriate in my opinion. Wow, I'm really sorry.

Moonshine11 · 03/11/2021 19:04

Wow that is awful! I would be addressing this.
Sorry op Thanks

TheYearOfSmallThings · 03/11/2021 19:05

Atypical would be more usual (and less offensive).

RudestLittleMadam · 03/11/2021 19:05

Not precious at all, I wouldn’t like that either.

SandandSplashes · 03/11/2021 19:05

I'd be annoyed. My youngest has ASD and I've had some quite upsetting things written in reports by thoughtless professionals.

doadeer · 03/11/2021 19:06

I would be annoyed too. I think that's really unprofessional and quite insulting actually

SparklingLime · 03/11/2021 19:06

Surely ‘atypical’ would be more appropriate.

daisychainsandrainbows · 03/11/2021 19:06

YANBU, that's a very unprofessional way of describing what they observed and I'd be quite upset to read that. I also work with children and would never use odd to describe them or their behaviours. Is there any way to put in a complaint? Thanks for you and your lovely boy.

SaltySheepdog · 03/11/2021 19:06

Do you think they meant ODD as in oppositional defiance disorder?

Bettybantz · 03/11/2021 19:08

Wow, yes. My boy has ASD and I wouldn’t like that language. It’s like saying ‘not normal’ or similar, isn’t it? Agree with PP that atypical would be more appropriate wording

Tal45 · 03/11/2021 19:10

Odd is a totally inappropriate term, as pp said I would expect atypical. I would contact PALS and ask their advice on how to handle it. I found them very helpful.

CremeEggThief · 03/11/2021 19:11

YANBU. DS was referred to in his hearing as an "odd bod" more than once by a paediatrician when he was assessed for ASD, aged 6 (there wasn't enough evidence to diagnose or rule out.) That was in 2008 and I remember thinking at the time it didn't seem very professional or appropriate. I am so sorry to hear that these attitudes are still happening, OP. I would have expected things to have moved on.

WeRTheOnesWeHaveBeenWaitingFor · 03/11/2021 19:14

Not only is it offensive and unprofessional but it isn’t very useful information diagnostically. What about his social interactions was not typical? What about eye contact was different? Was he avoidant, was his social eye contact too intense and not braking off at regular intervals.
I would complain.

5zeds · 03/11/2021 19:14

I wouldn’t like that either. “Unusual” not “odd” would be more appropriate surely. Ask them to change it and explain that it hurt your feelings at a time when you were vulnerable.

suggestionsplease1 · 03/11/2021 19:16

That's interesting...I've just been reading an ASD report today that states "her eye contact was fair but her social communication skills are somewhat odd"

I was a little surprised to see the description and I don't think I've seen that particular word used in reports before (I read lots of ASD reports, psychiatric evaluations etc in the course of my work). But maybe some professionals are happy to use it.

trevthecat · 03/11/2021 19:16

Was it odd or ODD?

TEH82 · 03/11/2021 19:24

Definitely odd - one line says ‘His non verbal communication was noticeably odd with very avoidant eye contact and a blank facial expression’

OP posts:
5zeds · 03/11/2021 19:35

@suggestionsplease1 could you feed back that it’s inappropriate?

The3Ls · 03/11/2021 20:07

They are not odd they are just different from neuro typical. Health professional here involved in assessments and we d never write odd. Over the years I've seen some unusual things wrote by pediatrians it's always worth a challenge. "he had quite a big head not unlike dad" charming!

Concestor · 03/11/2021 20:09

Autism assessments are hard to read, they always say stuff like this. Both mine and my daughter's contained comments like that. Don't get upset, the important thing is you have a diagnosis.

LennyMurdoch · 03/11/2021 20:10

I wouldn't be offended by the use of the word odd. Clearly I'm in the minority alone but it's just a word meaning 'different to what is usual or expected' for me that is most likely accurate hence the ASD diagnosis.

LennyMurdoch · 03/11/2021 20:17

Also, to clarify this report won't follow him for years. File it away in a cupboard. He doesn't need to be letting anyone read it. He has his diagnosis, that's it.

Makinganewthinghappen · 03/11/2021 20:19

I wouldn’t give it any more thought my 11 year old was described as having odd behaviours and acting like a hyperkinetic 8 year old.

VillKrill · 03/11/2021 20:27

YANBU at all. It's the kind of language we'll look back on in years to come and wonder how the fuck it was ever deemed acceptable. I personally also have an issue with the term Autism Spectrum Disorder for the same reason - I genuinely don't understand why labelling autistic people as "disordered" isn't considered deeply problematic.

Midge75 · 03/11/2021 20:41

Technically, 'odd' just means 'differing from the usual, ordinary, or expected', so maybe that's why some medical professionals deem it ok to use. However, as it also means strange, I would say it should be struck off the 'accepted' list of words. Most of us would hear it as 'strange' or 'weird' and I wouldn't like it used to describe my child.