How many Long Covid disabled are acceptable?

[Whyhunters]

I don’t understand the lack of outrage or action.

The ONS mention numbers like 6-800,000 people with LC …

Will it take someone very famous or close to govt like Carrie getting LONG COVID for the government to start treating long Covid disability with the seriousness it deserves?

Maybe if she is too ill, breathless, fatigued and in pain to do her normal day to day activities… maybe if she is unable to…

• meet and greet VIPs
• shag Boris
• look after her child
• go to work
• socialise with her friends
• cook Boris’ venison dinners
• attend appointments
• deal with loud noises and stress
• stay awake

Bearing in mind she might not improve for a couple of years (ever?) Will she have to wait many many months to access any support? Meantime she is running out of cash, her friends are fed up with her being tired and her kids aren’t seeing anyone either because she’s too sick to take them out?

Will we THEN reintroduce masks and social distancing?

Or do we have to wait for one of Boris’ children to get Long Covid before appropriate action is taken?

Before companies try to force sick people back to work? Sack them for being too ill to work?

Will Carrie have to try to claim PIP I wonder?

Do others feel this needs more consideration or are you just relieved this isn’t happening to you or your family?

@Norugratsatall

Long covid is just post viral chronic fatigue syndrome dressed up with a fancy new title.

Ah now here's the thing....it really isn't.

LC is about far more than just fatigue. It includes (but is not limited to)

Brain fog,
Insomnia
Neurological symptoms such as tremors, tinnitus, tingling, numbness, internal vibrations
Hair loss
Palpitations
Blurred vision
Loss of hearing
Organ damage
Shortness of breath
Nausea, vomiting

I could go on. It seems to affect every single organ and system in the body particularly the ANS. Even my GP said it was the weirdest virus she had ever come across in her medical career.

Post viral syndrome has very similar symptoms. I lost most of my hair and weight, had badly swollen lymph nodes that have even now 13 years on haven't gone back to normal, headaches, issues with heart and painful joints and general feeling very unwell.

It pisses me off that many people have had ME/CFS for decades. Many of whom are housebound. With no treatment or investigations into potential cures. While being refused PIP.

Then suddenly long covid is in the picture and people who have had it for a year or less are demanding help as they are struggling. I’m not surprised. It’s horrendous.

However they will have to join the queue.

Many others are in the same boat and have been for way way longer. If there’s a choice on how to spend funding investigating illness surely the ME sufferers should be helped first.

I wish they could help everyone though I don’t know if there will be sufficient funding. They’ve known for years that the mitochondria are different in ME sufferers yet they don’t even have a basic blood test to check! Meanwhile they refuse benefits as there is insufficient evidence that someone is ill and they just think they are lazy. Which is something a simple blood test could prove. WTAF.

Seek help for your health anxiety OP.

I’ve previously explained how measures could help. Work from home where possible, masks in schools, vaccines, reducing contact.
So if we introduce these measures how long would it be for? Yes they may well rescue cases now, and cases might stay reduced while we still have the measures, but what happens when we end them and go back to normal again? Surely cases go back up and many people who avoided covid (and long covid) during the measures, would catch it and potentially end up with long covid? So all you've done is delay people getting covid and developing long covid? Or have I missed something about what you think needs to happen?

I also have Hashimoto’s, as well as PCOS. I’ve just emerged from a debilitating month of insomnia, tingling, fatigue, headaches etc. I have finally been granted a medical marijuana card (I’m in the US) and by god I feel like a normal person for the first time since diagnosis a decade ago. It’s reduced the tingling by 80 percent, and deals with my intractable insomnia far better than Ambien etc. All I can say to those with long Covid is to do your research. Dr Terry Wahls is an excellent person to follow on IG. She has MS, but many of the same symptoms would apply to long Covid.

My cousin has ulcerative colitis and she hasn't got this under control and is in pain or on the toilet the majority of the time
Thankfully she has her own online business she'd never be able to go out to work and some days she feels horrendous but it isn't a disability

aND she has to pay for all her prescriptions whilst over condition ms are funded

I think long COVID will unfortunately be added to the list where the government just don't care

It's like anything some people have it more severely than others

@FreedomFaith

Come on, if Carrie caught long covid or was in no way useful to Boris anymore, he will find some other daft woman to cheat on her with and then impregnate the new one. He won't care about her or change anything.

Exactly Carrie must be stupid to have got involved with Boris

whilst over condition ms are funded
Is that a typo?

@Norugratsatall

Long covid is just post viral chronic fatigue syndrome dressed up with a fancy new title.

Ah now here's the thing....it really isn't.

LC is about far more than just fatigue. It includes (but is not limited to)

Brain fog,
Insomnia
Neurological symptoms such as tremors, tinnitus, tingling, numbness, internal vibrations
Hair loss
Palpitations
Blurred vision
Loss of hearing
Organ damage
Shortness of breath
Nausea, vomiting

I could go on. It seems to affect every single organ and system in the body particularly the ANS. Even my GP said it was the weirdest virus she had ever come across in her medical career.

But post-viral fatigue syndrome is about more than fatigue too @Norugratsatall

Post-viral syndrome may cause additional symptoms, such as:

• confusion
• trouble concentrating
• headaches
• aches and pains in the muscles
• stiff joints
• a sore throat
• swollen lymph nodes

www.medicalnewstoday.com/articles/326619#symptoms

@PastMyBestBeforeDate

Ah I think you've started from a false premise. There are no shits given about disabled people. Why would disabled through covid be different?

This

The issue is so many of th symptoms also cover other illnesses.

So for anxiety

dizziness
tiredness
a noticeably strong, fast or irregular heartbeat (palpitations)
muscle aches and tension
trembling or shaking
dry mouth
excessive sweating
shortness of breath
stomach ache
feeling sick
headache
pins and needles
difficulty falling or staying asleep (insomnia)

So a lot more work needs to be done to differentiate.

While I don’t doubt that genuine long Covid exists I thinks the numbers often quoted are exaggerated and not accurate.

Many of the studies relating to long Covid and numbers have been found to be pretty dodgy.

Yep it's too hard to know.

And i think the official term is having symptoms for 12 werksy+
Well I wouldn't class someone as disabled if they were I'll for three months then recovered. 🤷
I dunno, I kinda feel like it's just something else people will jump on the bandwagon about and blow it out of proportion

@Norugratsatall

Long covid is just post viral chronic fatigue syndrome dressed up with a fancy new title.

Ah now here's the thing....it really isn't.

LC is about far more than just fatigue. It includes (but is not limited to)

Brain fog,
Insomnia
Neurological symptoms such as tremors, tinnitus, tingling, numbness, internal vibrations
Hair loss
Palpitations
Blurred vision
Loss of hearing
Organ damage
Shortness of breath
Nausea, vomiting

I could go on. It seems to affect every single organ and system in the body particularly the ANS. Even my GP said it was the weirdest virus she had ever come across in her medical career.

Have you actually looked up the symptoms of M.E./CFS? It's a hell of a lot more than fatigue.

Nobody gives a toss about people with chronic illnesses that have similar symptoms to long covid, they've been struggling for years. I don't know why you think anyone will start giving a shit now.

The virus is endemic, what the hell can be done except more research into treatments?

When exactly will we be permitted to do away with the masks, social distancing, WFH etc which are purported to be such simple measures?

@daisyjgrey

I’m also a Long Covid sufferer of 19 months now, and I agree with you. It was never going to be any different. I have friends who have suffered from CFS long-term, so I’ve seen what they’ve had to cope with.

There is very little information as of yet to the extent to which long covid is even a thing.

But in any cases there are limited options. People are not willing to mask and social distance permanently. Just like they are not willing to stop living their lives in other ways to avoid every possible disease.

Diseases affect people, that's not always something we can prevent.

Welcome to disability OP. Did you help fight for us when we were getting shafted financially by Boris and his crew or did you just think 'nowt to do with me' and look the other way? This is chronic illness and disability in England 2021. A lot of people are in for a hell of a shock if it is new to them.

18 months with long Covid here, still have neurological symptoms and POTS/heart problems which I didn’t have before. Solidarity to everyone affected.

I’ve said this before about deaths, but starting a thread asking posters to pull hypothetical numbers of ‘acceptable’ disabled out of their arses so you can prove some kind of point on the internet is goady in the extreme.