I’m looking for health advice as I’m at my wits end and don’t know where to turn at this stage, i had similar thread up few months ago but unfortunately this is still going on and ruining what was a happy normal life.
I started getting episodes last December of tingling, limb weakness, dizziness all very sudden and would only last few mins. Was admitted to hospital, brain scan showed a few lesions but spine was clear and lumber puncture was clear so ms was ruled out. This went on and off for few months but I also got cfs leak from lumber puncture so it’s hard to know what is what… that seemed to clear up after couple of months.. I then had a few good months and ive been seeing a neurologist who can’t find anything wrong it felt like what I would imagine strokes would feel like but they can’t find any reason I would be having any type of stroke.
Anyway it’s all kicked off again 5 weeks again except this time I’m getting mini blackouts with it which is terrifying. I’m getting 3-4 a week. Back to hosp, spine clear, not fully sure if more lesions as waiting to see my neurologist but I don’t think there was anything major. Today out walking tongue tingling and felt weak then my side eyesight went blurry like really blurry for about 10 mins, ive severe pressure every day in my head and lots of neurological symptoms. Ive had every test at this stage and nobody seems to know what is wrong it’s a living hell I can’t work or drive and can just about look after my kids. As a result of this ive became a different person I’m so miserable and anxious as I never know When it’s going to happen. I’m thinking maybe cfs leak has opened but really ive no idea wtf is going on. They treated me for migraine but have now ruled it out, heart tests are clear, ive developed slightly high blood pressure which I’m on meds for but apart from that nobody knows what’s going on which means no treatment. I was such a happy person before all this I’m just at a loss. If anyone has any advice could you please give it, I’m booked in with a counsellor next week to try and help me talk all this through because I’m starting to go to a dark place in my mind.