loosing faith in the hospital ....

[sadandnooptions]

My boyfriend is 34 and has brittle asthma.
He is in hospital for the 4th time this year.
His last stay was 3 weeks ago.
His best peak flow is 300,today it's 160....yet they still want to discharge him tomorrow.
He is no further forward.
He is taking 6 steroids a day and they are trying to wean him off.
He has a nebs machine at home (they've told him only use when it's bad)
He is in hospital and they won't give him the nebs today as they want him out tomorrow and you need to be off the machine 24hours.

He is breathless when walking.
He has chest pain,feeling sick constantly and hot sweats.
They've told him it's just his asthma and they will play around with his meds.

He is sick of his life.
He feels like more is going on and they aren't listening.

Does anyone have any thoughts what could be going on here?
He is waiting to see the asthma doctor in the morning.
He can't continue this way ..every few weeks in hospital.
Then sent home.
I'm loosing my faith in them.

Go on the trust website. There will be an email to complain. Do that now and contact PALS

Sounds so hard, the chest x-ray I would ask for the results (or you boyfriend does) ask for the actual written report to be read/shared. Radiography services are under huge pressure and have been for years so it might not have been looked at even. Depending on the trust some medical staff will expect a radiography Dr to flag it to them, some radiography departments will expect the medic to flag if they have concerns. It will be reported on eventually but if that’s 3 months later it’s not much help.

I’m only saying this about the chest X-ray because every trust I’ve ever worked in the backlog of radiographs is huge. Hope things get better soon.

OK
Tweet the ceo
Post on the hospital fb page
Contact pals
Check out the NICE guidelines for asthma treatment and quote them

Just a update -
His peak flow went to 130 during the night so they gave him nebs.
I tweeted the hospital on Twitter
He is threatening to discharge himself today if no further forward.
I've wrote all the info from this thread down and sent it over to him to ask the doctor for all of this today.

Thanks for the update. I hope he's managed to get the support he needs now.

We have finally got somewhere
They've diagnosed him with
Eosinophilic asthma and he is seeing the asthma specialist today

God that sounds so stressful. They sound useless. Really hope that the people today are better.

I'm glad things look like they are taking him seriously now. It's much harder when you're not NOK

Thank heavens they've taken it seriously at last as that's not a diagnosis you want to slip under the radar. Now he can get all the best care and treatment - must be a weight off your mind.