Underlying issue is month long Chron’s flare that hit joints as well. (also wheelchair disabled and managed to develop a heart speed and rhythm problem on top of things)
Am now locked into a cycle of tricking my body into accepting steroids with water in the morning for long enough (1hr) they’re probably getting absorbed, but nearly all attempts at very light gentle eating and most drinking, result in vomiting, either straight back up or within three hours.
In the last seven days I’ve been pushing myself in attempting to drink especially water and eat small amounts twice daily. Have successfully kept down a piece of scrambled eggs on toast, a half bowl of soup, a slice of bread and three milky coffees in a week.
It might sound ok, but it’s two out of fourteen, and I ’m beyond debilitated, bedridden, permanently grey and exhausted, (suspect the heart issue is being created by the state of me) and the exhaustion and pain involved in throwing everything else back up isn’t helping along with the lack of nutrition.
I’m doing all I can not to swallow air, eat slowly, small amounts etc but can’t find any rhyme or reason to the success’s vs the failures.
TMI maybe: but just before vomiting, always feels like bowels are about to go, but turns to vomiting instead.
Medics don’t seem to think there’s any big deal and treat me as if I’m in my 80’s and it's all to be expected. IBD nurses aren’t responding and GP’s happy for me to continue like this for another three weeks to next appointment. I understand I’m low priority but feel I’m existing waiting to see if things just randomly get better or worse while my life falls apart.
Any experience, knowledge, ideas for getting/keeping food/nutrition into someone in this position? (lifelong vegetarian If it matters.)