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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Annoyed with my daughter

67 replies

ohthatbloodycat · 30/06/2021 01:12

My eldest daughter turns 20 soon. She has misophonia (properly diagnosed!) and autism. It was CAHMS who gave her the diagnosis, which they were in two minds about (as fairly mild) but then they proceeded as she'd get support at university. So she has high functioning autism.
We are due to go on a caravan break in a few days' time, with family members. This was booked to celebrate the 'big birthday' of a much loved family member. At the time of booking I checked with my daughter that she was happy to come, and she said she was. So I booked a 3 bedroom caravan for she and I and her two siblings. Due to her misophonia, she would never be able to share a room. All good.

Now that the time is drawing much nearer, she is starting to freak out about it. Instead of coming for the 4 nights originally booked, we agreed she'd come for 2 nights. Now she wants to back out of that and not come at all.
I won't lie, I am disappointed. I have always been massively supportive of her, and her biggest advocate. I adore her, she's wonderful. But she's freaking out about thin bedroom walls and hearing snoring sounds, eating out with others and 'eating' noises, being with family members all day - though I have explained that we can do our own thing too. She is working herself up about it completely.
It disappoints me that she won't try it for one night, to celebrate with a family member who has given so much to us all. That she can't change her mindset and get out of her comfort zone for once. The only reason she is awkward around family is because she rarely leaves her room.
I'm sad because this will be our only holiday this year, and because just for once, it would be nice if it could be normal and plain sailing. Pissed off because she won't meet me halfway on this. Embarrassed because I don't know how the fuck I'm going to explain her absence.

Am I putting too much on her?

OP posts:
ohthatbloodycat · 30/06/2021 10:13

Yes, probably! Grin

OP posts:
saraclara · 30/06/2021 10:17

Having a daughter with high functioning autism I see how hard it is. I know my daughter would never ever try something new or come out of her comfort zone without a good push. She would literally never leave the house if allowed. And so as her mother it’s my job to encourage, compromise, push etc so she can see her own abilities, what’s she capable of coping with and with that improve her self esteem.

Absolutely. As a lifelong teacher of children with severe autism, my job was to help them manage their autism related anxiety in order to grow, develop and be happier and more relaxed.
Pushing them gently, empathising with their perception of the situation, mitigating the stressors (I once sat with one child at a theatre trip, right at the back, next to an open emergency exit, with him on my knee, so that he wasn't in darkness and had my reassuring physical presence, rather than leave him behind. That was a step that later enabled his whole family to go to the pantomime six months later) all made a huge difference to their tolerance, to their enjoyment, and to their families' lives.

Consequently their parents realised that they too needn't be afraid to encourage their children ever so slightly out of their comfort zone, as the benefits were ultimately worth it.

Now I have a young adult daughter with well masked autism. And at a different level, she appreciates me supporting and encouraging her in difficult situations.

OP, I hope all goes well for you both.

HarebrightCedarmoon · 30/06/2021 10:25

I think it's fair enough for her to not want to go and fair enough for you to feel frustrated and disappointed about that.

Unless she wants you to go into her issues in detail with family I'd just say she has other plans, as that's quite normal for a 20 year old.

blissfulllife · 30/06/2021 10:46

I tend to not push my ASD daughter, just has the opposite effect and she retreats further into herself. We'd really like a family holiday but it's hard for her and she ends up miserable most of the time that we are there and I don't want her to feel that way. Last time I wanted her to do something that she refused (family meet up) she said I was guilt tripping her into attending, she was probably right as id made it all about what I wanted, how upset id be if she didn't come etc. She then did come on her terms for a short amount of time. I was so grateful at the time but afterwards seeing the distress she was in was horrible and id never put her through it again.

In the past she's masked her distress. People referred to her as high functioning as she could perform well to the outside world. She didn't typically have meltdowns etc. But masking was so damaging for our daughter and endless pressure at school and home to fit in ended up with her having an autistic burnout and becoming very unwell. She no longer masks and I'm glad. If you met her now you wouldn't refer to her as functioning. We were out for a walk once and I used the term hf and she stopped me right there and said "I'm hardly functioning at all mom".

Recently I've researched more into females with ASD, eye opener.

We've got a family wedding coming up and this time I've approached her and asked what she thinks she can manage with regards to attending etc. She's thinking about it. Our family understand. I'm interested to see what she comes back with

BusyLizzie61 · 30/06/2021 13:11

@ohthatbloodycat

Thanks everyone. I guess my annoyance comes from paying for a 3 bed caravan when I didn't have to, and just wanting her to make the effort. She only told me a very short while ago that she didn't want to come, so I'm still processing that. I'll be fine in an hour or so Smile And I've just given her a big hug and told her it'll be ok, whatever she decides. Update: she has just come through and told me that she's determined to try. If she wants to sack it off after one night, that'll be fine with me Smile
Glad about the update.

When she goes to university, will she be living at home? If not, how on earth will she really manage this and it could be setting her up to fail, unless via online learning etc.

SaltAndVinegarSandwiches · 30/06/2021 13:22

Oh OP you do sound like a really good mum. Of course it's frustrating and of course you wish your DD didn't have to contend with these issues and could happily come along on this holiday without thinking twice. It does sound like she's genuinely struggling though, not just being lazy.

ADHDgirl · 30/06/2021 13:40

May I just drop in a suggestion regarding noise cancelling earphones? They’re a brilliant idea, especially if your daughter has an iPhone because the new AirPod pros are something they won’t be embarrassed to be seen wearing at that age and the noise cancelling feature on them is really good. Then she will just be like any other young person with their AirPods in but it might help with some of the noises to do with caravans and being on holiday

ohthatbloodycat · 30/06/2021 14:29

Thanks again everyone. And just clarify something, my daughter dropped out of university. She is currently looking for a job.

OP posts:
FuckYouCorona · 30/06/2021 14:53

I am a mother of ASD adults (with ASD/ADHD myself too). I'm constantly frustrated & disappointed at how people expect the disabled person to switch off their disability because it doesn't suit the situation. Particularly when it is a parent, who should be more understanding of their conditions. I understand the frustration 100%, but times it by 100 & you are still nowhere near how your DD feels.

I read your update & happy that DD has said she is going to give it a chance. Don't be surprised if she changes her mind again, but I do hope that it works out for her. Flowers

WeMarchOn · 30/06/2021 16:01

@FuckYouCorona i wish i hadn't read this thread tbh

ohthatbloodycat · 30/06/2021 17:37

I hope that's not a dig at me! I am absolutely doing my best.

OP posts:
WeMarchOn · 30/06/2021 18:09

@ohthatbloodycat I'm talking about the ableist replies to you

KB921 · 30/06/2021 18:22

I can understand your annoyance but it's obviously giving her really bad anxiety thinking about it. The likelihood is if she goes she might enjoy it once she's there but the thought of it is putting her off. My son is autistic, I am too. Some things are really painful, I don't think people realise that. For my son it's sounds! For me it's other thing as I'm okay with noise. I hate new places too. I functioned very well as a child but I have got worse since being an adult.

The anxiety about is is obviously really real for her! Me and my son are high functioning but the struggle is still very real!!

Clydesider · 30/06/2021 18:26

I don't think you're asking too much in asking her to at least try it for one night. How on earth is she coping/will she cope with university?

BlankTimes · 30/06/2021 19:00

Clydesider

See OP's post 6 above yours

ohthatbloodycat Wed 30-Jun-21 14:29:05
Thanks again everyone. And just clarify something, my daughter dropped out of university. She is currently looking for a job.

BlankTimes · 30/06/2021 19:07

WeMarchOn

This isn't bad thread considering it's on AIBU.

You just have to learn to ignore the posts from people who don't have clue about having autism and its impact when an autistic person is put into that situation, or try to educate them.

Don't let their comments upset you, they are made from lack of understanding rather than malice.

WeMarchOn · 30/06/2021 20:57

@BlankTimes empathy goes a long way tho, being autistic and reading it makes me so sad.

Thank you for being kind tho xx

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