Wow!! Your dd is so lucky she had a mum willing to do research and fight on her behalf! That's amazing!
Thank you, though she's a stroppy assed teen now, so forgets too easily & is in denial so often misses treatment & supplements & makes herself ill. Frustrating & a real worry after what she went through
Yes, there's this really rubbish, elitist, egotistical attitude from some doctors when you are chronically ill and start looking for answers, and they are too proud to say 'I don't know' or take time to do some more in-depth research. Some health professionals would rather gaslight you and the dreaded suggestions for antidepressants, referrals for mental health clinic etc start. I think women are treated quite badly in the NHS overall, treated like we're hysterical, and our hormones and how they relate to autoimmune illnesses aren't taken any notice of.
Oh absolutely, I've had that & then some myself recently & it's clearly sexist assed crap, just putting in a complaint this week about more of the same. It's rife unfortunately
Any improvement in my health is through my own testing with occasional private help. I'm sad to say every single GP I've seen has been pretty clueless and some have been downright rude and I suffered very poor quality of life for years as a result.
Almost ditto here, our GP is now great, but that took a lot of work. She listens & is honest when she doesn't know, which is so refreshing. Rest have been awful though
I've noticed so much attention given to fatigue associated with 'long covid' but virtually none given to people with ME, CF, post flu etc before this.
Me too, though that could be a good thing. ME. Society seem to think so & are sharing posts about it 🤞