Back story is I got diagnosed with endometriosis endometriosis around 18 but had been having awful periods since I was 12. I’ve had 3 surgeries and it’s slowly getting worse I’ve tried all sorts of medicines painkillers massage therapy tens machine you name it I’ve tried it. Nothing has ever fully worked even the morphine still has me crying in pain on extreme days I’m bed bound. Im often sick and passing out and also get migraines and struggle with my bladder especially if I laugh. Over the years I’ve had pelvic pain especially in my hips mainly after long walks or around my period it’s slowly getting worse to the point it hurts to walk long distances. I’m really wanting kids but am worried about chances of conception and then if I have kids how I will cope when I’m this ill. My partner is so lovely and tells me how strong I am he even text me after the recent family holiday to say how well I coped and that he knew I was hiding my pain to be able to try and go out with family for the days. But tonight I just had to have a big cry and no matter what anyone could of said I just had to cry eat some crap for dinner. It’s recently just got so much worse. We are supposed to be going to IKEA and Costco on the weekend and I’m debating how I’m going to walk round. I also really don’t want to have to borrow a wheel chair last bit of independence I have I’m just so at a loss.
I’ve seen the top endometriosis specialist in the uk and other endometriosis doctors and there all at a loss for what else I can try only solution at the moment is pain relief and some other meds until I’ve had children and then we can re evaluate but even hysterectomys aren’t a cure