AIBU to ask for your help with supragastric burping (sorry. I know it's gross)

[Givemecoffeeplease]

I have been burping pretty much constantly since February. I've had tests (endoscopy and neuro) but they've found very little except for excess acid in the stomach which they treated with Omeprazole. However as the world opens up, I'm stuck indoors. I'm too embarrassed to meet friends, it's stopping me being intimate with my husband, and I'm terrified to return to work. The neurologist called it 'supragastric belching' (nice) and said it should just clear up, but I can't wait for that to happen - I feel like my life is on pause. I'm even avoiding my kids when it's really bad as I am so embarrassed. Nobody wants a mum who can't stop burping at the school gates, and my kids are at an age where this stuff really matters.

At first it was funny, now it's life limiting and I can't bear it. I've tried accupuncture, meditation... please please share any hints and tips so I can get my life back.

Have you been tested for small intestinal bacterial overgrowth? (SIBO)

I've had blood and stool tests and that ruled out H Pylori - is that the same?

I've had no weight loss or loss of appetite or any of the SIBO symptoms. I mean, if I'm gonna burp 24/7 I could at least be a size 10, no??!!

I have SIBO (both types) and it doesn't cause me to burp. What did however, was gluten... I used to burp constantly until I cut it out (Coeliac tests negative)

Right, I'm going gluten free! How long do you have to be free of gluten to notice a difference?

You could try seeing a dietitian. I saw an ex-NHS dietitian for my digestive problems which were making my life a misery. GPs had not been helpful. She diagnosed the problem, gave me a diet to follow that excluded certain foods, and basically that fixed me. Worth a try?

@Givemecoffeeplease

Right, I'm going gluten free! How long do you have to be free of gluten to notice a difference?

I can't remember tbh, it was a long time ago now! It's worth seeing if GP will test for Coeliac before you cut gluten out

Thanks. I had test for coeliacs and it was negative but a couple of weeks without gluten isn’t the end of the world as a test.

I’m also going to see a hypnotist and see if that helps at all. I am so grateful to you for commenting if you’ve got this far.

SIBO / SGB research paper here.

Get simeticone from your GP! Might be a little burpy before you go out but it’ll get rid

@Givemecoffeeplease

Thanks. I had test for coeliacs and it was negative but a couple of weeks without gluten isn’t the end of the world as a test.

I’m also going to see a hypnotist and see if that helps at all. I am so grateful to you for commenting if you’ve got this far.

I would give it a go for at least 6 weeks to be sure. Hopefully it will help

@Jayceewhy

Get simeticone from your GP! Might be a little burpy before you go out but it’ll get rid

You can buy Simeticone over the counter as 'Windeze' etc if you want to try it, and also charcoal capsules.

They do nothing much for me on their own, even with peppermint tea, exercise etc.

The biggest winner has been cutting out gluten. Three weeks in now. I'd give it at least 2-6 weeks as a trial. What have you got to lose?