Need a handhold - posting here for traffic

[peboh]

So tonight my DH has been diagnosed with Guillain-Barré syndrome.
I'm scared. He could be facing months, if not longer in hospital. I currently can't visit him due to the ward he's on, and my DD could go without her father for months on end.
I don't really know what I'm doing. In the 7 years we've been together, we've never spent more than 5 days without each other.

@peboh

So tonight my DH has been diagnosed with Guillain-Barré syndrome. I'm scared. He could be facing months, if not longer in hospital. I currently can't visit him due to the ward he's on, and my DD could go without her father for months on end. I don't really know what I'm doing. In the 7 years we've been together, we've never spent more than 5 days without each other.

Oh how scary! You will be thinking the worst (you mentioned months) but many people do recover much more quickly. But I would be freaking out so you'll get no judgement from me for being horribly worried

An early diagnosis I hope OP?

My Nanna had this back in the 1980s and she was paralysed and had a long stay in hospital followed by an even longer recovery which led to early retirement. She was diagnosed quite late though.

She is in her 90s now and for the past 30 years has had absolutely no issues re GB

I know your worry is being apart but he is in the absolute best place

Op, how terrible for you all. What a shock you’ve had. Of course you’re scared; that’s only natural.
What information have you been given so far? Is he in ITU and that’s why you can’t visit? Do you have family near that you can go and stay with, so you have help with your daughter and company for yourself, until you know a bit more?
((((Big hug for you))))

My sister had this in her late teens. She was extremely unwell I was called back home from living in London to basically say goodbye but she fully recovered. Please don’t think too far ahead just concentrate on him getting better.

He is in the best place to be monitored and looked after. Be kind to yourself Xx

You poor thing. How old is DD? Hope you have some support at home through this. Sending your DH best wishes and a firm hand hold for you. You’ll get through.

Oh OP I've a very close family member who had this. I know how you're feeling. Please feel free to PM me if you would like to chat. I'm posting from my phone & lost two pm s to you

@peboh how are things today? I hope your DH is doing ok and is comfortable at least.

I'm sorry to hear about your DH. I have. CIDP, which is the long term equivalent of Guillain-Barre.

I'm also a single mum and work in quite a challenging role, albeit part time. Due to the permanent nature of my disability, obviously there are challenges and I get tired and frustrated. But I manage well, I love my life, I have a holiday home in west Wales and the kids and I go on LOADS of adventures.

I'm happy to answer any questions you might have about treatment etc, either here or by DM xx

My DD had this when she was 4. It was a long road to recovery but she pulled through despite being fully paralysed. It was diagnosed late due to paediatrician dismissing my concerns. It's a very frightening illness.

She's almost 11 now and still has a few issues. Best wishes to you and hope your DH makes a speedy recovery.

Thank you for all your comments.
He's doing okay, losing more movement as the days go on, but not in as much pain and he's in the best place! DD is two and half, so I'm just trying to carry on as normal for her. I get to go visit him today as he's finally been moved to a proper ward, so I'm feeling a little positive in that ❤️

Thanks for the update peboh. I wish your DH all the very best at fighting off this frightening illness. Look after yourself

Good to hear from you @peboh. Wishing your DH a rapid recovery. Take all the help that you get offered and don’t be afraid to ask for it. Most of all, be kind to yourself. You’ll need to stay strong, so do whatever it takes x