I need a hand to hold.

[Troublewaters2021]

My DD8 had a heart transplant a few years ago now, she has been struggling this year on and off after a few good years. She has some changes in her cardiac echo however they said they would unlikely get worse they wasn’t really sure on the significance of the findings.
At 5.45 tonight she went in to perri arrest.
They were amazing and everything had happened so fast, she is stabilised in CICU. No one is allowed in apart from me she looks very peaceful, I am waiting for consultants.
I have been on here a while and sending myself crazy looking at the clock with no one to cry to.
It all happened so fast she was playing in the back and then she came through to say she didn’t feel well. Went to get her some paracetamol and when I came back in she was on the floor.

Dear OP,

I do hope this morning finds your daughter stable and that you have been able to get a little sleep. Just to add my voice to the many saying not ever to blame yourself. I developed sepsis when I was immunocompromised on chemotherapy. I was absolutely fine at 11pm when I fell asleep, I woke at 1am with a temperature of 40 degrees and raging sepsis. Sometimes it just is that fast and that insidious. Thinking of you both x

Hoping there is some improvement today OP.
Thinking of you both.

Thinking of you today OP.

I have witnessed amputation due to sepsis within my immediate family. Of course you don't want it to get to that and I have everything crossed for you that it won't. BUT although initially devastating, in the end it was not the horrific life-changing deal-breaker that we had all imagined. It WAS life changing - changes had to be made - but it has not restricted or impeded the person doing things they want to do. Sport/Travel/Adventure etc. They were a bit older than your DD when it happened but still young, so adapted very well. And without being patronising (i hope) they would tell you that in some ways it has made them more determined to succeed at things.

As I say, I really hope it doesn't come to that, but if it does - there is hope for a bright future.

Wishing you all well and holding your hand along with the rest of the MN army

Thinking of you and your lovely girl OP

Still holding your hand

She seems stabile they are happier with her blood pressure and her saturation’s they are going to lower her support and see how she does.
Her crp is slightly lower that it was yesterday.
Her legs are the main worry at the moment.

That’s a great start @Troublewaters2021... Hopefully she will improve very quickly. Kids are amazing. You are amazing. Sending you another push of strength to get you through another day. X

Still thinking of you and your lovely girl

I am glad to hear your DDs condition has improved a little, OP. I am thinking of you both today. Just take it one day at a time. I have my fingers crossed for a speedy recovery

Still here and handholding. Hoping she continues to progress well

That's a positive step forward.

Every stable hour is a treasure.

Sending you hand hold and prayers 🤞💕

Thinking of you both this afternoon.

Thinking of you both still, hope you've managed to have a bit of rest xx

Still handholding ❤️

Sending you and your precious daughter much love and strength
You are in my thoughts .

Sending you so much love - you are so strong and your daughter is lucky to have you. Thinking of you both.

Thinking of you x

Still with you. Hope she is stable and improving. Love to you both

Sending today’s dose of warm wishes from South Wales. You’re both doing great xx

I'm sending out another batch of healing energy to your DD.

she sounds like such a strong wee girl - here's to that strength carrying her onto good health. Sending healing thoughts to her today, and a shoulder for you to lean on, OP.

I'm still here OP handhold and sending lots of love and healing thoughts to your wonderful daughter

I am glad to hear that she is more stable. Keeping you both in my thoughts. Hang on in there.