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How to get a diagnoses for mental health?

24 replies

Chickennoodlesoup93 · 04/03/2021 23:13

Need some advice on diagnosing mental health.

I have been having issues with mental health since 2017 with anxiety and panic attacks, I have over the year been seen by the psychological wellbeing services CBT to help with these but I haven't had a official diagnoses. I also think I'm bipolar and have agoraphobia..

Can the psychological wellbeing team do assessments and diagnosed me officially or will i need to see a psychiatrist?

Thanks

OP posts:
Emeraldshamrock · 04/03/2021 23:17

I'd say a psychiatrist. Can you afford an assessment, a psychologist can't prescribe medication if you're thinking of going private go directly to a psychiatrist.
It can be a long road.

Chickennoodlesoup93 · 04/03/2021 23:35

@Emeraldshamrock I did a quick Google search of psychiatrist and first assessment was £450!! Unfortunately I can't afford that. You say long road because it could be a long time before I am seen by one referred by my GP.? Thanks.

OP posts:
Emeraldshamrock · 05/03/2021 00:36

Ive no idea of the public waiting lists, if you believe you are bipolar have you been ill enough for an inpatient stay? You would receive a full assessment in hospital. I hope you feel better.
.

Lovely1a2b3c · 05/03/2021 00:39

You could search for a Clinical Psychologist on the BPS website: www.bps.org.uk/public/find-psychologist

Only GPs, Clinical Psychologists and Psychiatrists can diagnose, which might be why you don't official diagnoses for your anxiety disorders and possibly Bipolar disorder yet.

Lovely1a2b3c · 05/03/2021 00:40
  • sorry that was 'don't have official diagnoses'
Becca19962014 · 05/03/2021 00:54

It's a long road because it's not as simple to be diagnosed as for example with physical illnesses. Some people have been through more than a dozen diagnoses before one is reached with medication/support that is helpful. Sometimes it depends on the "in" diagnosis for the moment and how you are at a single appointment.

Some will come with prejudice and discrimination within the mental health system and by their nature won't be removed. Some can exist with other conditions. Some professionals will only diagnose someone who self harms with borderline personality disorder, likewise suicide attempts even though they can exist as part of other conditions e.g. PTSD.

I've never found labels helpful, for no other reason than the prejudice I faced because of them. Personally I concentrated on what I found helped me. And by that I mean helped me. I was for example told under no circumstances to see support from the hearing voices network (they may or not still be around with their support groups) because I have a diagnosis of "borderline" which I was told means I'm just attention seeking (this was from a professional and is NOT my opinion) and I do not agree with it anyway - the diagnosis having been made by a questionnaire which was heavily edited to only include borderline traits and those that weren't were rewritten to meet the criteria. Consequently treatment was useless. Anyway, hearing voices network was about coping with voices (I was told mine are just me being a bit silly) I lied about my diagnosis to them (they wouldn't accept "borderlines") and went along to see if anything would help - fully aware it could make things worse, some things worked for me and I found the group helpful.

I cannot medically have meds due to neurological issues which the mental health team dismiss on the grounds of me being "borderline"; it's all rather rediculous to be honest. But here you are given that diagnosis first and must prove you are not.

Over the years of being allowed access to services (long story as to why it stopped, and no I didn't get better or do anything dreadful to staff or become "too reliant") I was diagnosed with the following :

Borderline
Severe depression that required hospitalisation multiple times
Anxiety
Life threatening medical phobia
Schizoid personality disorder (sort of bipolar and schizophrenia combined)
Schizophrenia
Bipolar
PTSD
Complex PTSD

Those are the main ones, there are others too but it's almost 1am and I need to try and get some rest. The last two I was told are just alternative names for borderline. Many were dismissed because I have a degree (yes really).

Over the years treatments included things like being advised to speak to a medium to find out who the voices were - I was advised by a mental health nurse to do that; they thought it was a friend who and ended their life and I was responsible for them doing it (I was told it was my fault). Pay for private assessment, again I've a degree and have worked so was told to get loans and credit cards and use the debt to encourage me to get better quicker (in the end their diagnoses were binned because they were private not NHS). NHS therapy was terminated after I was told I must have suffered severe abuse because of borderline label, the abuse I had gone through was dismissed as I was over 6 and so my long dead foster parents who I adored were blamed and I was repeatedly told it MUST have happened because in the 70s babies were given to anyone and no one would want someone else's unwanted kid except to abuse them and I ended up after weeks of hearing this losing my temper and then being told that meant they were right. I refused to go back. What I needed help with coping with was dismissed by this person as they were obsessed with foster carers being abusers (I wasn't alone being told this).

Hence, it can be a long road; with many cul de sacs and, can in itself be traumatising.

Becca19962014 · 05/03/2021 00:55

Blush my apologies @Chickennoodlesoup93 that turned into an essay. I meant to click preview and edit!!

Chickennoodlesoup93 · 05/03/2021 09:05

@Becca19962014

I'm so sorry to hear your story, thank you for taking the time to tell me your story. I really appreciate it, and understood your post. I hope and pray that things get better for the us. Flowers

OP posts:
Chickennoodlesoup93 · 05/03/2021 09:43

@Emeraldshamrock

I'm not sure if im ill enough for an inpatient stay to be honest but I feel myself slipping, I have felt like this over the years but was worried that they will section me and my kids will be taking away from me.

I have had treatment over the years for anxiety and panic attacks but never truly honest about my other issues. My brother has also mental health issues and my mother suspected he is bipolar also but this had not been diagnosed..

I've waiting for a telephone appointment this morning and trying to self referral myself to the psychological wellbeing team in my area.

OP posts:
Emeraldshamrock · 05/03/2021 10:20

@Chickennoodlesoup93 Okay from my little experience bipolar is a serious illness that often causes inpatient stays.
I'd eliminate that for now.
Have you considered you might be on the spectrum. A DMS5 MH assessment for autism would highlight other area's.
My DD on the spectrum with ADD is suffering awful anxiety and depression.
It might be worth going down that road for a DMS5 scale assessment.

Becca19962014 · 05/03/2021 14:13

@Chickennoodlesoup93 I'm glad it was helpful. It looks even longer in daylight. Opps!

Chickennoodlesoup93 · 05/03/2021 15:17

I'm feeling really deflated right now...

Spoke to my GP who i informed that I have self harmed today for the first time and feeling extremely low, gave me number for crisis team and told me to make a referral to psychological wellbeing service for my area.

I did speak to psychological wellbeing team has said they will call me back today to book a appointment, they close at 4:30 and I haven't got the phone call yet.

Call crisis team informed them that I fell on the edge explained what I was feeling, was told I'll get a phone call from mental health team which I got. Lady was nice but just told me to ask GP for medication to help now because my appointment could take a while.. and basically don't hold out to see a psychiatrist because the waiting list is long 8-9 month long.. Damn.

God.

What do i do now.. I really don't want to be sectioned, or got to A&E.

I have kids and I don't want them to be taken from me. Sad

OP posts:
ChiefBabySniffer · 05/03/2021 15:29

Took me 14 years of extreme behaviour and a breakdown to be diagnosed with bipolar and ptsd. That was ten years ago at 30 years old.

I don't say this lightly but the label is a tough one to carry. I am high functioning and have done a degree and a masters. But if I try to see the go for power much anything it's written off as imaginary, anxiety related or attention seeking. Took me 4 years of heavy bleeding to get diagnosed with fibroids. Because I'm bipolar. I was released from hospital without any tests at all after being ambulances in as I collapsed..... but I went to another hospital and had pneumonia.

ChiefBabySniffer · 05/03/2021 15:35

Sorry posted too soon.

My entire life since diagnosis has been centred around my diagnosis so much so that I now don't volunteer the information unless it's to my mental health team. Once drs have spoken to me, assessed me and can see that I am a fully functioning , coherent adult then I may disclose that I am bipolar but mostly I don't unless it's actually relevant. And bipolar is the " cool" one to have. The one that, if you HAVE to be in the club, that's the badge you want. If you get diagnosed with EUBPD then the stigma is even worse and that can be very hard to live with.

I am now drug free. I had a course of intensive psychotherapy as part of a clinical trial 7 years ago and it really really helped me. I have a to up that I pay for every year (£500-700) and I get short term meds from my Gp if needed but I am VERY. Pro active about my mental health. The drugs, mood stabilisers etc , they won't cure you. It's much more complex than that. They just sedate you and numb you so you are compliant and less of a handful.

Becca19962014 · 05/03/2021 15:57

@Chickennoodlesoup93 it's really difficult. I know. You find the courage to phone and talk about difficult things and then get passed from pillar to post.

Phone your GP to arrange some meds. Tell them what you've told us. I know it's late on a Friday so you might need to contact out of hours.

The waiting times seem long I know, but in comparison that's actually really good - where I am it's almost 18 months. Then it's meds and mindfulness. The real only support is from mind and where I am they only support members which (depending on income) is expensive and not always helpful (they're not trained in mental health). Our mental health team require at least 5 working days to return crisis calls and even then might not bother. I genuinely found it more traumatic to ask for help than to just struggle. It's so hard with so many hoops to jump through, here you speak to at least half a dozen people before being allowed to speak to mh team if going to a&e by which time hours have passed as you're exhausted.

Going to a&e might result in assessment, or might just mean being referred to go out of hours for meds. Sectioning is an extremely hard process, and, I know here there's pressure to keep people out of hospital whatever their needs - I know someone who during a mh episode last week beat their parent badly, they're being treated at home, if the team turn up, they don't always.

It's very hit and miss.

What did you want from today?

What are your expectations here?

The mental health team here just want people to agree to whatever they want, be it meds or shuffled into mindfulness groups (which can be scary places if you're there with someone who abused you and the staff support his needs (yes I mean the assault) over yours).

Becca19962014 · 05/03/2021 16:02

@Chickennoodlesoup93

Unfortunately mental health representations on tv are, for a lot (if not all) of us, totally unrealistic.

I need to get some rest now (not well) so can't stay and support right now but please contact your GP surgery again as I'm aware it's late Friday. I think that's your best line of action here, if needs be they can contact mental health team for more input on meds if necessary.

Chickennoodlesoup93 · 05/03/2021 17:40

@ChiefBabySniffer
14 years my goodness!! I have had experience with being made to feel like I'm attention seeking and imaginary regarding my physical health. It is horrible!

@ChiefBabySniffer
"It's much more complex than that. They just sedate you and numb you so you are compliant and less of a handful." - I agree.

@Becca19962014
Exactly that fining the courage to talk then just feeling like I'm being past form pillar to post.

What did you want from today?

Reinsurance.. which I felt I didn't get when speaking to professionals just felt like I was being told good luck on your journey.

What are your expectations here?

Maybe I'm asking too much but to have a clear plan on how to go about it this.. GP ended the conversation saying she will call in 3 weeks time to see how I'm getting on and to call crisis team if anything. She didn't offer any medication just the same talk its anxiety and depression.. like no other mental health problems exist. She said I should wait for my appointment with psychological wellbeing team.

I understand this is not as simple especially with covid at the moment.

@Becca19962014

I hope you feel better. Flowers

I did get a phone call back from the psychological wellbeing team i have a appointment booked this Monday, so I'll see how this goes..

I have spoken to my dad about whats been happening these last few weeks and today ( I didn't tell him about cutting myself ) he has told me he will pay for me to see psychiatrist private...

Can I do this by asking for a referral from my GP and can they deny this? Is it a psychiatrist the professional I need to see regarding my mental health?

Thanks

OP posts:
Becca19962014 · 05/03/2021 18:16

@Chickennoodlesoup93 I'm so glad they rang you and offered an appointment, that's really good!! I'm sorry if my questions came across as a bit blunt, it wasn't my intention, nor was it my intention to accuse you of your expectations being too much - I just meant if they were a little high then that too could add to your distress right now. My mental health team discharged everyone not in a section or treatment order last March and have refused to see anyone else - that's a lot of people not being seen! But teams vary hugely. There's no way anyone would be seeing you Monday where I am, so that's good!!

Yes you can ask your GP to do a private referral. Hopefully you're somewhere you don't need to travel very far to get there. I don't think you can just go but I'm not sure on that to be honest. A psychiatrist is a dr who can prescribe meds, they can sometimes rely on input from other professionals as well. You could try asking on Monday if you feel able to. The person you're seeing should be able to help.

Emeraldshamrock · 05/03/2021 18:27

If you're a single parent be mindful of admitting self harm, it needs to be said to get help but it can cause SS to step in if you are unstable and not coping, the DC welfare comes before you.
Is cutting yourself and cry for help/attention try not resort to that it is a slippery slope.
How old are the DC? Are they aware of your illness?

c0ntent5 · 06/03/2021 23:56

What symptoms do you have that make you think you are bipolar? Mental health conditions can be difficult to diagnose as there can be so much symptom overlap. Although the professionals you have seen may not be able to diagnose you, if they picked up that you were displaying symptoms for a certain diagnosis they would most likely refer on for further assessment/diagnosis.
A diagnosis can be helpful, but it can also be unhelpful. As symptoms often overlap, the best treatment is working on the current symptoms and what you can do to improve these.

Cotbedy · 07/03/2021 11:20

I have bipolar disorder and it took a good year or so of bizarre, extreme behaviour and many trips to my GP, eventually being referred to psychiatry, more probing, then they mis-diagnosed me and shortly after I saw another doctor who finally gave me the diagnosis. I'm now on a lot of medication and still fairly unstable.

When I became really ill, I had no concept of what was going on, how ill I was. My sister moved in with me and I never really gave it a second thought. It was only later that I was told it was a deliberate action to keep me safe by my family.

My point is that it's not easy to get a formal diagnosis for a serious mental illness, even if you're acutely unwell.

Chickennoodlesoup93 · 12/03/2021 10:26

Hi all I wanted to give a update on everything as I took a break from my phone and didn't get to say thank you for everyone replies..

So I had my telephone appointment with the psychological wellbeing team on this Monday, told them everything whats going on was told will get a call the Tuesday to discuss treatment plan going forward.

Spoke to them again on Wednesday and was told that there is a bigger picture going on and not just anxiety and depression and so I would be referred to the (sorry can't remember exact name but psychosis team). I had a ECG at my GP that morning because of on going chest pain i had been experiencing for years and the nurse was concerned as I was basically hallucinating and experiencing depersonalization. I explained that I have been trying to speak to a GP this week but because the telephone system it is difficult to get one.

Managed to get a telephone appointment call that morning from a GP and told him everything (very very honest about everything) he said he's almost certain i have bipolar emailed me a questionnaire and booked me into a appointment the Thursday.

Thursday went for my appointment again spoke more in depth and was told he had put in a emergency referral to get my seen asap and i should get a call shortly, he said that I very much tick all boxes for bipolar however he cannot diagnose me but the team i do speak to can diagnoses me and go on from there. Got a call from two organisations I believe crisis team and psychosis team and again told them everything and now have a appointment with the psychologist/psychiatric/nurse this coming Monday.

I Cant believe how quickly everything has moved I really believed that this particular GP i have struck gold, sadly he is retiring next week..

I have suffered a lot of sexual/physical/mental abuse as a child by the hands on my brother. Long story short my father does not know but my mother knows and seems more concerned about my brother mental health than mine, she hasn't adressed nothing with him (her choice i guess) even though I told her he has this things of dating women with young children and I suspect he has done something with them...

She has told me I'm OK now because I have moved hundreds of miles aways and I have my house my partner and kids...

She has always put my behavior as a teen down the fact that I was a bitch as a teen.. and the story goes on..

Very highs and very lows the whole time accepting that I am damage and that this is normal when it is not. Suicidal thoughts and self harming have been very prevalent my whole life..

I just wished I spoke about this sooner, I have done some shameful and questionable things in my life I'm tired of feeling like I am crazy... I need clarity.

OP posts:
Becca19962014 · 12/03/2021 15:45

Hopefully now you can begin the road towards clarity. I'm glad you live in an area where people are able to help and support you. That's really positive. Hopefully you'll find another GP in the practice you get on with as well.

RavingAnnie · 12/03/2021 15:53

The psychologically wellbeing team can refer you to psychiatric services who can diagnose and prescribe. There's generally a fairly long wait.

Some conditions require referral to specific services and a multi disciplinary team diagnosis.

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